Insurance . . . adding insult to injury

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AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Insurance . . . adding insult to injury

Postby AnnClare » Wed Mar 30, 2016 5:59 pm

As if we don't have enough to worry about, guys.

So today I went to get my pump disconnected and was informed that my co-pay, for chemo infusions and for EACH of the 3 Granix shots I get later that week, will cost me a $100 co-pay. When my husband and I looked at our plan online, it clearly states that chemotherapy is a $25 co-pay, but the woman I spoke with today coldly said, "It shows here your copay is $100 for each visit." This equals $800 a month, not counting the two $50 co-pays for when I see the oncologist in my off weeks.

After spending 1 1/2 hours there, my doc (who was unaware of the Gravix cost I'd be paying) agreed to put me on Neulasta, a little pump device the put on your arm at the same time they disconnect your pump, and it apparently starts injecting 27 hours later. It's supposed to only cost me $25 each time. So I won't have to go to the infusion center three times a week (post-disconnect), and it supposedly works the same as Granix. WHY didn't they just start with this?

Anyway, he waived my Granix injections this time. (They were supposed to begin tomorrow, but since insurance can't work out whether or not I'll be on the hook for the $100/injection in that short of a time frame, the doc said I should be fine this go-round and we'll have the Neulasta in place for the next round.)

What's got me concerned now is that the hospital is maintaining that each of my chemo visits is a $100 co-pay, DESPITE the fact that my policy has a co-pay deductible of $800, and $500 has already been reached. They're going to try to bilk me for $1,200 in co-pays - WTF? Of course, now it's after business hours so I have to wait until tomorrow to try to get someone on the phone.

I want off this stupid ride. It's not worth the stress and aggravation. I swear insurance is the devil. :evil:
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

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Kick'nAssCancer'sAss
Posts: 248
Joined: Tue Feb 25, 2014 4:38 pm

Re: Insurance . . . adding insult to injury

Postby Kick'nAssCancer'sAss » Wed Mar 30, 2016 6:08 pm

When I read shit like this I am grateful that here in Canada no one goes broke fighting cancer or any disease. My doctors told me to date that well over $300k worth of procedures have been performed on me. My biggest expense...parking.
53M Dx RC Halloween 2013
CT & BONE scan
MRI/T3N0M0 1 suspicious LN
5 wks chemo/rad
LAR open TME Feb 26/14
temp bag
0/24 nodes pCR/pathological
Folfox (8) Mar 28-Jul 4 /14
Aug/14 clear CT scan
Aug 27/14 reversal
Feb/15 clear scope
July/15 Feb/16 Feb/17 Feb/18 clear CT scans
Feb/18 clear scope
Sept 19 clear CT scan & DISCHARGED :P
Mar/23 clear scope
CEA 1.6 @ dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal
https://kickingasscancersass.blogspot.com/

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Insurance . . . adding insult to injury

Postby midlifemom » Wed Mar 30, 2016 7:10 pm

Ann Clare,
Insurance can be a hassle, you have to be proactive unfortunately.
My suggestion is to call your insurance company to have them verify your understanding of your financial responsibility. If the hospital is incorrect, ask that the insurance company call the billing person at the hospital to straighten it out.
Good luck!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Insurance . . . adding insult to injury

Postby jhocno197 » Wed Mar 30, 2016 7:35 pm

It is unfortunate, and makes me very angry, but you will have to fight with insurance companies & doctor's office staff repeatedly throughout.

It sucks.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: Insurance . . . adding insult to injury

Postby BeansMama » Thu Mar 31, 2016 2:05 am

I second midlifemom, call your insurance company and have them contact the Dr's office.

I recently had an issue with the oncs office billing under an incorrect code, they wanted me to pay 300.00. I looked through past EOB's and found a date where the same office visit had been covered and called the insurance. They took care of it from there. I owe nothing because they got the dr to submit with the correct code.

Look up your out of pocket maximum. I hit mine a while ago, of course last time I looked this dang disease had racked up 1.5 million in charges to my insurance. Not the norm I know, but I ended up with multiple surgeries and a few lengthy hospital stays. I don't pay anything now, and won't until July when my benefit year starts over. Depending on how high yours is your co-pays should be temporary.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: Insurance . . . adding insult to injury

Postby AnnClare » Thu Mar 31, 2016 10:51 am

Just got off the phone with my insurance company and had them contact the doc's office & infusion center directly. Supposedly it's all straightened out now and I'm to pay NOTHING, ZERO, NADA, when I go for infusions (which is what my policy states, since it's classified as an outpatient facility.) The insurance rep said IF they give me grief next time to have them call the insurance company on the spot. At least now I feel like I have back-up. Hopefully it won't come to that. Naturally, I wrote down EVERYTHING the rep said, including her name, the name of the person SHE spoke to, time & date of the call, reference no., all of it.

It frustrates me that we have to be so overly diligent, particularly during a time that we're already under stress and feeling vulnerable. Unfortunately, from reading what you guys have said, this is the 'norm.' What didn't help yesterday's situation was the cold, callous attitude of the woman at the facility. I'm not a violent person, but I had visions of reaching across the desk, smacking her headset off her head, and giving her a good, old-fashioned punch. (Not that I know how to throw one - I've never been in a physical scrap in my life. She probably would've won, but that's beside the point.)

Now I'm off to do some deep breathing and (attempt) meditating to mitigate the effects of yesterday's stress. Om . . .
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: Insurance . . . adding insult to injury

Postby midlifemom » Thu Mar 31, 2016 11:02 am

So glad that was resolved in your favor. Enjoy the rest of your day!
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Insurance . . . adding insult to injury

Postby ktwmn » Thu Mar 31, 2016 11:45 am

I hear you. Last year I paid $7000 out of pocket. My out of pocket maximum is $3900, but each co-pay is $70 and there is no out of pocket maximum for those. They add up.
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: Insurance . . . adding insult to injury

Postby jhocno197 » Thu Mar 31, 2016 11:54 am

ktwmn, copays should be included in out-of-pocket-max....
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Insurance . . . adding insult to injury

Postby weisssoccermom » Thu Mar 31, 2016 12:14 pm

jhocno197 wrote:

ktwmn, copays should be included in out-of-pocket-max....


Not exactly correct. IF the plan is grandfathered in, then no, the copays don't have to be applied to either the deductible or the out of pocket max.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Insurance . . . adding insult to injury

Postby juliej » Thu Mar 31, 2016 2:00 pm

AnnClare, I'm glad it got resolved, but you are absolutely right -- we shouldn't have to deal with crap like this at a time when we're under incredible stress to start with!

Totally understand your desire to whomp the woman! :evil: But I think we can trust karma to deal with her. :D And yes, meditate and clean this out of your mind. I find that when I meditate the shitty life stuff gets processed quicker and I am way less interested in it afterwards.

Hugs to you!
Julie
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: Insurance . . . adding insult to injury

Postby nkoske » Thu Mar 31, 2016 7:26 pm

I've hit my out of pocket max every year since I was diagnosed So I'm in for about $15000 of costs since 2012 not including Xeloda prescriptions and other incidentals. Looking like another $4000 this year (two MRIs, a CT, and a colonoscopy are expensive).

I'm pretty sure my co-pays were included in my out of pocket max. At some point I just told the Doc's office I reach my out of pocket max. May be worth trying for those who aren't sure. No front desk person ever told me I didn't need to pay because I reached my out of pocket max, they would have happily taken my $20, so long as I was willing to hand it to them.

You could also just say you reached your out of pocket max, if you need to pay it they will bill you. A copay here or there may get lost. I've found the person taking your money at the desk has no idea about your insurance coverage.

I'm fortunate to have a wife that use to work in HR/Benefits who knew how to navigate the system.
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

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ktwmn
Posts: 350
Joined: Tue Aug 02, 2011 9:41 am

Re: Insurance . . . adding insult to injury

Postby ktwmn » Thu Mar 31, 2016 8:56 pm

BCBS of NC doesn't care whethet you hit your 3900 out of pocket max. Every " specialist" appointment is $70 copay regardless. So if you're a chemo for lifer that means cha - ching $70 every 2 weeks. I feel we have no recourse. If I don't pay my copay at each appt they will bill me.
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Insurance . . . adding insult to injury

Postby Lydia666 » Thu Mar 31, 2016 9:16 pm

muskokamike wrote:When I read shit like this I am grateful that here in Canada no one goes broke fighting cancer or any disease. My doctors told me to date that well over $300k worth of procedures have been performed on me. My biggest expense...parking.

I feel the same! Canada's system is not perfect , but it beats this crap for sure!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

SuseB
Posts: 33
Joined: Thu Feb 04, 2016 11:34 am
Facebook Username: Susan Bomkamp Burke

Re: Insurance . . . adding insult to injury

Postby SuseB » Fri Apr 01, 2016 8:03 am

I so commiserate with all of this. If anyone thinks we don't need health care reform here they have never been seriously ill. Or they're rich. My husband retired last year, and while we are lucky enough to get a retiree rate for insure it's high deductable HSA, and it's still $450 every month with a $9600 out of pocket max. We hit it last year with my first surgery, thought it was all over, and lo and behold...it's back, right at the first of the new year. Another $9600. And whatever awaits the next year, etc. Who has that kind of money? We're not even halfway through paying last year's and trying to figure out how to fund this year's HSA. And had to fight with them to get Neulasta approved for WBC count. I stress as much about money as I do about the disease.
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0


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