Who remember my story. I am after surgery already two mont. How I fill ? I am alive and it is good already
My surgery was 10 hours, they founded more problem related to my post radiation, my rectum wall , uterus and bladder was fried together, so they separated this organs. I was in the hospital for two weeks and I thing I was lucky, because I stay in intensive care unit all the time. It was not easy with colostomy and BIG cut in the front and in the back. I lost a lot blood during the surgery and I had transfusion, infection and it was no fun....
The was day when I thing I can't and I don't want to live but now I am here., with VAC machine for the month already and it is going better( VAC machine - it is the vacuum pump), they use this machine because after a month they founded fluid stay inside ( infection) , so they did cut 7cm deep and in diameter 2 cm on the back and this Vac works , it is better . Doctor said I need this for 2-3 month. So every two days the nurse came in to my house to change the dressing.
Colostomy it is not so bed , how I thing before surgery, I use to already.
My surgeon,after surgery he said its end of the road, no more radiation and in anal cancer they don't have a chemotherapy after surgery.
Last week I so my oncologist and she told me , the standard protocol not include chemotherapy after surgery because they don't know if it work , they don't do a lot of testing because not a lot people has this type cancer. So, she told me I need (probably) some chemo,my cancer was toooo aggressive ( from December up to my surgery( one month) my new tumor was 4 cm.She said , she want to look for Trial program first but if she don't founded anything, she want to use standard chemo for metastatic cancer what it is really aggressive (4-6 month of chemo).
If chemo help? Nobody knows. It is maybe give me a little bit of better chance to be cancer free. But they give me a good chance now without chemotherapy. So I don't know what to do, chemotherapy - another half a year of hell and nobody guarantee it help to prevent... Or , don't do anything and wait what's next? If cancer come back or not....
I understand nobody can't make this decision for me but you can give me your advices, please.
Thanks to everyone.
Dx-32y.o. Anal cancer-stage 3.
Aug-Sep xeloda & radiation-30
November 12-MRI-bones clear
Moms of two (3 & 12 y.o.)
Colostomy and APR surgery - 01.27.2016
Possibly chemo - June