My Chemo/Radiation notes

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Posts: 1
Joined: Thu Jun 30, 2016 9:41 pm

Re: My Chemo/Radiation notes

Postby DME123 » Thu Jun 30, 2016 10:06 pm

:D Hi,
I'm new to this forum and read all your notes on the radiation and chemo you finished. I am halfway through the same treatment (radiation and Xeloda). I was wondering if you knew what kind of radiation machine you were using. Mine is IMRT. Also, if you're comfortable sharing, have you noticed trouble with painful intercourse or the shrinkage that others describe? Lastly, what kind of pain med were you given for pain? I'm working and trying to use OTC pain relievers, but think I may need some bring stronger. Thanks for any info you can share. I hope you are well. :-)

Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: My Chemo/Radiation notes

Postby AppleTree » Wed Jul 06, 2016 8:08 am

Pyro...sorry for the late reply...I was in the hospital having surgery. I really tried to include all my notes and can not think of anything else to add. The radiation I had was short and targeted several points/angles at once. I did not have skin issues until the later weeks and certainly 1-2 weeks after. And I was very tired! Just be sure to talk with your doctor's about ANY issues you run into - they are there to help you get to the finish line! By now you might even be about 1/2 way through.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

Posts: 305
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: My Chemo/Radiation notes

Postby Pyro » Mon Jul 11, 2016 11:36 pm

Thanks AT, 8 sessions left, cannot wait. Certain parts of my anatomy feel sunburned, though just a small bit. Xeloda seems to be really kicking in, my head feels in the clouds. Have some time off before surgery, thank the good Lord.
Aug 2015- Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail
Jun 2019 - FOLFURI
Aug 2019 - No more, quality time!

Big Jay
Posts: 35
Joined: Fri Jun 17, 2016 5:41 pm
Location: Baltimore, MD

Re: My Chemo/Radiation notes

Postby Big Jay » Tue Jul 12, 2016 10:12 am

Thanks for the excellent diary. Tomorrow I'm off to meet w/ the Rad Oncologist for the first time. It's been a good read to help me get prepared for the first step on getting rid of these traitorous cells.

We're y'all on Xeloda for the entire 5.5 weeks or was there a break in the treatment?
DX at 45yo 6/9/16, 2.4cm tumor, 9cm from Anal Verge, 6/27/16
Clinical staging IIIC, CEA 3.1 7/1/16
30x Chemorad 8/5/16 - 9/16/16
CT/MRI/Scope => CCR 11/1/16... Rolling the dice on Watch & Wait
Snake Eyes: Tiny regrowth at scar 11/1/17
LAR 1/17/18: Path = 3mm tumor, 0/12 nodes Med Onc doesn't recommend chemo.
Reversal 4/17/18

Posts: 218
Joined: Tue Nov 10, 2015 10:29 pm

Re: My Chemo/Radiation notes

Postby Soccermom2boys » Wed Jul 13, 2016 12:13 am

Big Jay--not that I wrote this thread, but had rectal cancer so I wanted to answer your question for you. You take the Xeloda pills only on the days you have radiation treatments which is typically Mon-Fri. You take them after food in the morning and then again after food in th evening. I believe this is a common procedure, but after my five full weeks (25 rounds) I then had a round that did not include any radiation, but they took images (totally same equipment and was about the same amount of time as a regular round) so that the last three rounds were honed in directly on the tumor itself, not just the general pelvic area. Since that day did not have any actual radiation I did not take the xeloda on that day either. Just a tidbit of information to keep in mind for when you meet with radiologist. Good luck at your appointment! Between chemoradiation, surgery, and chemotherapy treatments I found radiation to be the "easiest" to deal with and bounce back from. Also, the dosage for xeloda is based on your body surface area which they use your weight and height to calculate. I had 1300mg twice a day (4 pills: two 500 mg and two 150 mg) and my onc considered that a low dose. As a non pill taker, that was more pills than I have probably taken in at least the last ten years combined! LOL Good luck with your appointment tomorrow, it will help you mentally to know what the overall plan is for your treatments.
8/3/15 Went in with a hemorrhoid, came out with a tumor
8/12/15 Biopsy from colonoscopy confirms RC (45 yrs old--zero family history!)
9/21 - 10/29/15 chemorad 28 tx (with Xeloda)
12/17/15 APR with perm colostomy
Pathology report stages me as IIIA (T2N1M0)--1/15 LN detects cancer
2/3/16 chemo port inserted
2/8-6/2/16 8 rounds of Folfox

Posts: 2508
Joined: Fri Jul 21, 2017 3:43 am

Re: My Chemo/Radiation notes

Postby NHMike » Thu Aug 31, 2017 10:19 am

I went out for a walk while reading this on my phone and it was hard to read because it was sunny. Then I realized that I could get hit by a car doing this so I converted the text to an iTunes track and will listen to it on my next walk.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

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