Dear SuseB, So sorry you are experiencing the muscular issues as well as neuropathy. I too had severe calf cramping and hand clawing and also had some issues with my lips cramping of all things.
My oncologist decided to deliver the chemo I received at the hospital at a slower rate which helped immensely. It didn't totally alleviate the cramping, but reduced it a lot. It did make for a very long day at MDA, but it was worth it. The chemo rate for the pump infusion remained the same.
I hope you get some relief!
Susan
Side effects calf cramping and painfully tight
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sbrainbolt
- Posts: 146
- Joined: Mon Oct 08, 2012 1:01 pm
- Location: Houston, TX
Re: Side effects calf cramping and painfully tight
DX 1/12 50 yrs
LAR 2/12 CR 3A T1N1M0
chemo 3/12- 9/10/12 FOLFOX, issues with platelet counts every 4th treatment
CEA normal
CT 3/15 stable lung nods since 1/2012 NED.
SBO kinked small bowel 10/13 - LAPRO surgery to fix
yrly scans now
09/25/2017 - Graduated to the Survivorship Clinic at MDA! Cured!!!
LAR 2/12 CR 3A T1N1M0
chemo 3/12- 9/10/12 FOLFOX, issues with platelet counts every 4th treatment
CEA normal
CT 3/15 stable lung nods since 1/2012 NED.
SBO kinked small bowel 10/13 - LAPRO surgery to fix
yrly scans now
09/25/2017 - Graduated to the Survivorship Clinic at MDA! Cured!!!
Re: Side effects calf cramping and painfully tight
Thanks for the reply. I will be mentioning all of this to him! It's a little better today (day 6). So maybe I can go about my day lol. Hope you are doing well.
Suse (also Susan)
Suse (also Susan)
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Re: Side effects calf cramping and painfully tight
This could be a sign of blood clots in your leg or DVT (deep vein thrombosis). You need to have this checked. My husband had this cramping / pain and it turned out he had 5 clots in the calf. Added Lovenox and cleared right up. I believe it was related to the Avastin.
Re: Side effects calf cramping and painfully tight
Thank you. I will have them check that out. I called them today and they are seeing me tomorrow address all this.
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Re: Side effects calf cramping and painfully tight
I found a nice big push of magnesium and calcium was a deal maker to lessen the calf cramping.
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4
Re: Side effects calf cramping and painfully tight
I already get the cal/mag and still getting them 
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
-
Stewsbetty
- Posts: 170
- Joined: Thu Jul 14, 2016 7:08 am
Re: Side effects calf cramping and painfully tight
Suseb, I am wondering if this issue was ever solved for you? I have been experiencing severe calf cramping for the last week. I started adding more calcium to my diet through a multivitamin and extra calcium. I can't really tell if it is helping yet. I also started wearing compression socks and that does seem to help. Weird thing for me is this started 3 weeks after chemo. I had a bad reaction to round 2 and have been off. No problem in my hands just my legs.
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
Re: Side effects calf cramping and painfully tight
Stewsbetty wrote:Suseb, I am wondering if this issue was ever solved for you? I have been experiencing severe calf cramping for the last week. I started adding more calcium to my diet through a multivitamin and extra calcium. I can't really tell if it is helping yet. I also started wearing compression socks and that does seem to help. Weird thing for me is this started 3 weeks after chemo. I had a bad reaction to round 2 and have been off. No problem in my hands just my legs.
Hi Stewsbetty...not really. They reduced my dose of oxi, and then stopped it all together after 4 rounds and switched me to FOLFIRI. My hands and legs never got better when I was on FOLFOX
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
-
Stewsbetty
- Posts: 170
- Joined: Thu Jul 14, 2016 7:08 am
Re: Side effects calf cramping and painfully tight
SuseB wrote:Hi Stewsbetty...not really. They reduced my dose of oxi, and then stopped it all together after 4 rounds and switched me to FOLFIRI. My hands and legs never got better when I was on FOLFOX
Interesting. They lowered my dose this time and I have finally started #3. Hoping I can tolerate it well otherwise we will have to consider other treatment options.
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4
Aug 2017 failed Fofiri
Sept 2017 keytruda scans every 3 months showing shrinkage and stability
November 2018 CT shows only 1 small tumour left
September 2019 clear CT finally NED!!!
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