SuseB wrote:Anyone ever had this happen?
It happened last round to a lesser degree and when I mentioned it they said they hadn't encountered that before.
Thanx for your posi vibes my friend !!!!KElizabeth wrote:CR Guy, reading your response to this thread made my day. I love your enthusiasm and how diligently you care about the colon club members.
I too had muscle spasms while on FOLFOX, and was dismissed. ..Lucky I had a sensitivity reaction to the Oxaliplatin and stopped before too much damage was done.
SuseB wrote:Ok for some reason I can't figure out how to reply to an individual post here.... So CRguy thanks for that! I really appreciate your offer of assistance. And eveyone else for the replies and support.
They did add a cal/mag drip after the first round and going forward because my jaw pain was so intense as was the tingling. In retrospect, maybe they thought that would address the cramps etc which weren't nearly as intense then as in this round, so they were dismissive of that? They were definitely surprised about the intensity of the jaw pain. I'm going to give them a call tomorrow to alert them that I want have this on the table when I show up for my pre chemo appointment. I also take a magnesium supplement, B6 & B12, 10,000 units of D, alpha lipoic acid. I'm all good with the whole marijuana thing; just wish I was in a medical state, as random smoking doesn't seem to do much for me. Lol. Much to my disappointment. well I take that back- it's great for that initial nausea and appetite, so I've been keeping it on board periodically for that.
Having said that, I really do like my team. My onc is kinda of roll his eyes at the supplements but has said he's fine with anything that causes no harm, including the pot. But I will be insistent about this. And look into a nutritionist for more advise on supplements that may help. I'm terrified about losing function in my hands especially because I work with my hands and doing my stained glass keeps me sane.
Nik Colon wrote:SuseB wrote:Ok for some reason I can't figure out how to reply to an individual post here.... So CRguy thanks for that! I really appreciate your offer of assistance. And eveyone else for the replies and support.
They did add a cal/mag drip after the first round and going forward because my jaw pain was so intense as was the tingling. In retrospect, maybe they thought that would address the cramps etc which weren't nearly as intense then as in this round, so they were dismissive of that? They were definitely surprised about the intensity of the jaw pain. I'm going to give them a call tomorrow to alert them that I want have this on the table when I show up for my pre chemo appointment. I also take a magnesium supplement, B6 & B12, 10,000 units of D, alpha lipoic acid. I'm all good with the whole marijuana thing; just wish I was in a medical state, as random smoking doesn't seem to do much for me. Lol. Much to my disappointment. well I take that back- it's great for that initial nausea and appetite, so I've been keeping it on board periodically for that.
Having said that, I really do like my team. My onc is kinda of roll his eyes at the supplements but has said he's fine with anything that causes no harm, including the pot. But I will be insistent about this. And look into a nutritionist for more advise on supplements that may help. I'm terrified about losing function in my hands especially because I work with my hands and doing my stained glass keeps me sane.
To reply, hit the " in the upper right of the post
SuseB wrote:Nik Colon wrote:SuseB wrote:Ok for some reason I can't figure out how to reply to an individual post here.... So CRguy thanks for that! I really appreciate your offer of assistance. And eveyone else for the replies and support.
They did add a cal/mag drip after the first round and going forward because my jaw pain was so intense as was the tingling. In retrospect, maybe they thought that would address the cramps etc which weren't nearly as intense then as in this round, so they were dismissive of that? They were definitely surprised about the intensity of the jaw pain. I'm going to give them a call tomorrow to alert them that I want have this on the table when I show up for my pre chemo appointment. I also take a magnesium supplement, B6 & B12, 10,000 units of D, alpha lipoic acid. I'm all good with the whole marijuana thing; just wish I was in a medical state, as random smoking doesn't seem to do much for me. Lol. Much to my disappointment. well I take that back- it's great for that initial nausea and appetite, so I've been keeping it on board periodically for that.
Having said that, I really do like my team. My onc is kinda of roll his eyes at the supplements but has said he's fine with anything that causes no harm, including the pot. But I will be insistent about this. And look into a nutritionist for more advise on supplements that may help. I'm terrified about losing function in my hands especially because I work with my hands and doing my stained glass keeps me sane.
To reply, hit the " in the upper right of the post
Lol I'm pretty sure you told me that the first time I posted. I keep forgetting... And I have a new tablet that I'm not used to. Sticking to that excuse. Lol. Thanks.
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