Newbie - questions?
Newbie - questions?
Hello everyone this is my first time here. About a month ago I had a colonoscopy and had several precancer polyps removed and one found to be cancerous. They made me an appointment with a surgene who I see this week. The biopsy showed abnormal cell growth. A week ago my doctor told me I have skin cancer and now I have a lymph node in my neck that is very tender and swollen. Should I be concerned about the new findings. Plus everyone keeps telling me I look really pale and I feel really bad physically.
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: Newbie - questions?
WT 55
Sorry you find yourself here.
First, make sure you are going to a certified colorectal surgeon, not a general surgeon.
Either your GI or regular doc should send you for a CT scan or MRI or PET scan.
I don't know about juggling two cancers but hopefully someone who does will jump in.
Good luck.
Sorry you find yourself here.
First, make sure you are going to a certified colorectal surgeon, not a general surgeon.
Either your GI or regular doc should send you for a CT scan or MRI or PET scan.
I don't know about juggling two cancers but hopefully someone who does will jump in.
Good luck.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Newbie - questions?
Welcome to the board WT55, sorry for the reason you're here and that you're dealing with two different cancers.*hugs* There are others on here who can advise regarding the two different cancers. Hope your meeting with the surgeon goes well!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Newbie - questions?
So sorry you have to join our club ...which you wi find to be full of sympathetic and supportive fellow travellers and their families.
You need a medical oncologist as well as a specialized surgeon. In many cases surgery is not the recommended first treatment step but, rather, follows chemo and radiology. Look for a cancer center where a team of specialists cares for you and they coordinate and sequence the treatments. Many large hospitals organize oncology that way. The surgeon you are going to see may already be part of such a team... definitely ask. but in any event do not go directly into surgery before an oncologist has reviewed your complicated case of 2 cancers and recommended the right sequence of interventions for you. It's also common for people to get two opinions from the same kind of specialist..doctors are used to it..
You are in the most psychologically painful stage right now..you are desperate to DO SOMETHING and facing all this uncertainty. .. It actually gets better once you can pick a treatment course with doctors that give you confidence. .
All the best..
You need a medical oncologist as well as a specialized surgeon. In many cases surgery is not the recommended first treatment step but, rather, follows chemo and radiology. Look for a cancer center where a team of specialists cares for you and they coordinate and sequence the treatments. Many large hospitals organize oncology that way. The surgeon you are going to see may already be part of such a team... definitely ask. but in any event do not go directly into surgery before an oncologist has reviewed your complicated case of 2 cancers and recommended the right sequence of interventions for you. It's also common for people to get two opinions from the same kind of specialist..doctors are used to it..
You are in the most psychologically painful stage right now..you are desperate to DO SOMETHING and facing all this uncertainty. .. It actually gets better once you can pick a treatment course with doctors that give you confidence. .
All the best..
DH 63 12/12 unresectable liver mets. 2/13 Ffx-Avstn fail. 4/13 HAI pump@MSK. 8/13 mets 50%;Resectn & LAR 10/13.NED! Folfiri & FUDR. reversal 4/14. 3 lvr spots 10/14. 5FU+FUDR. 5/15 resectn/IRE . 7/15 lung 'thingy' 9/15. FUDR, Xeloda. HFS. 2/16 RFA of lung met. FUDR/IRI. 4/16 2 lung 1pelv spots. XEL, stop FUDR. 6/16 RFA 2of 3 mets. XEL. D.10/3/2016 of infection post surgery to remove aortic clots (rare Budd-Chiari syndrome) in local hospital. HAI success! then blindsided...
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Nik Colon
Re: Newbie - questions?
Others here also had melanoma. Hope they chine in. Best wishes
Re: Newbie - questions?
WT55 wrote:Hello everyone this is my first time here. About a month ago I had a colonoscopy and had several precancer polyps removed and one found to be cancerous. They made me an appointment with a surgene who I see this week. The biopsy showed abnormal cell growth. A week ago my doctor told me I have skin cancer and now I have a lymph node in my neck that is very tender and swollen. Should I be concerned about the new findings. Plus everyone keeps telling me I look really pale and I feel really bad physically.
Hi WT55,
Have you have blood tests? Your paleness could be caused by anemia with is often associated with CRC.
Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
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Travelgirl
- Posts: 123
- Joined: Sun Dec 20, 2015 4:17 am
- Facebook Username: Jac gar
- Location: Florida
Re: Newbie - questions?
Sorry your here ..
And well I was also given the 2 for 1, double trouble cancer special .. Cause people like us are RARE BUT NOT UNUSUAL .
Colon cancer and follicular lymphoma.
You need to make sure you are at a hospital that is approvd by the national cancer institute and you best make sure you see a surgeon that is a colon cancer specialist..
Plus you may want to be tested for lynch syndrome.
You need blood work done. The gland in the neck could be a ton of things.
All my cancer was found when I got sick after eating Chinese food. I felt like hell.. Went to the ER . They diagnosed me with GERD and then I had an endoscope and a colonopspy that found H-Pylori and a precancerous polyp .. The combo of GERD and H - Pylori these things ...I was ready to call the coroner and let him know to expect my body soon. Seriously thought I was on death row. I saw three GI - DRS two said it was precancerous and the third one said it was cancerous. The third DR who said it was cancerous ordered a CT scan, which found swollen lymph nodes next to my aorta. Then ordered a pet scan only spot that lit up was the chest. So bam I got the 2 for 1 double trouble special...
Please get second and third opinions and make sure the hospital is a national cancer institute along with a onocology colon surgeon.
Keep us posted I wish you the best.
And well I was also given the 2 for 1, double trouble cancer special .. Cause people like us are RARE BUT NOT UNUSUAL .
Colon cancer and follicular lymphoma.
You need to make sure you are at a hospital that is approvd by the national cancer institute and you best make sure you see a surgeon that is a colon cancer specialist..
Plus you may want to be tested for lynch syndrome.
You need blood work done. The gland in the neck could be a ton of things.
All my cancer was found when I got sick after eating Chinese food. I felt like hell.. Went to the ER . They diagnosed me with GERD and then I had an endoscope and a colonopspy that found H-Pylori and a precancerous polyp .. The combo of GERD and H - Pylori these things ...I was ready to call the coroner and let him know to expect my body soon. Seriously thought I was on death row. I saw three GI - DRS two said it was precancerous and the third one said it was cancerous. The third DR who said it was cancerous ordered a CT scan, which found swollen lymph nodes next to my aorta. Then ordered a pet scan only spot that lit up was the chest. So bam I got the 2 for 1 double trouble special...
Please get second and third opinions and make sure the hospital is a national cancer institute along with a onocology colon surgeon.
Keep us posted I wish you the best.
Travel Girl
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
53/F
DX-CC 12/19/15
Tumor location Cecum
Tumor Type -Adenocarcinoma arising background sessile serrated polyp high grade dysplasia
Tumor size 1.5 cm
TNM - T1, N0, M0
Stage 1
Baseline 12/15 CEA 2.4, 8/16 CEA 1.7,11/15 CEA 2.3
Surgical Margins Clear
Lynch - Neg
Primary Surgery 1/11/16 LAR right colon and portion of ileum right hemicolectomy
1/4 follicular lymphoma- Wait n Watch (found in CT scan for Colon cancer) a 2 for 1 special.
8/16/16 NED for Colon/Lymphoma nodes have shrunk on their own.
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