Update on Mom, prayers needed...

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Update on Mom, prayers needed...

Postby jortego128 » Wed Mar 09, 2016 5:18 pm

Since we made the decision not to do SIRT last Monday, she has gone downhill very quickly. Thursday before last the hospice nurse told us mom had "10 days or less", which despite her condition, was still quite shocking to us. Today is day 13 of that 10 days or less, but I believe she is close.

As recently as this past Sunday (day 10) we were able to get her to her recliner in the living room and she was able to visit, chat, and laugh with family, two of her Aunts stopped by to visit and they are always a hoot! We called them the day before and told them the news from hospice. Monday and especially yesterday and today though, she has become almost incoherent-- unresponsive most of the time, with lucid moments in between when she can look and speak to us.

I took off work all last week to be with her, and she surprised us all by beating the hospice estimate-- and I was able to spend quality time with her and speak with her, which I will never regret. Encouraged by that, I decided to return to work Monday of this week, but she has taken a turn for the worse and they called me mid-day Tuesday saying she was asking for me. I left and was able to speak with her, despite her condition. She told me "youre special", and "I love you".

She was almost totally unresponsive last night, I spent the night by her bedside on a cot and checked on her thoughout the night, giving her sips of water during her lucid moments. Despite her condition, she still has very little pain related issues and most of the ones she does have are in her arms and legs, presumably from being bed-confined. Despite this terrible situation, I consider this to be a small miracle. She has essentially ceased eating and drinking-- it takes quite a bit of effort to rouse her enough just to take a teaspoon of apple sauce with a crushed lortab in it and a sip of water from her sports bottle.

At this point though Im still hoping for a miracle, my prayers are largely focused on her continuing to be essentially pain-free until her passing. Your prayers and thoughts likewise are needed. Thanks to everyone here who has taken the time to support and encourage us.

DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

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Re: Update on Mom, prayers needed...

Postby midlifemom » Wed Mar 09, 2016 5:21 pm

Our thoughts and prayers are with you.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

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Re: Update on Mom, prayers needed...

Postby Snapfish » Wed Mar 09, 2016 5:35 pm

Thinking of you during this tough time. You have and are continuing to do everything you can to help her on this journey.

Daughter to 70-year old father dx 2015-Sept-28: Stage IV adenocarcinoma with signet ring cell features
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53

2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.

Nik Colon

Re: Update on Mom, prayers needed...

Postby Nik Colon » Wed Mar 09, 2016 5:38 pm

Sending prayers

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Re: Update on Mom, prayers needed...

Postby JDinNC » Wed Mar 09, 2016 5:52 pm

Thoughts and prayers for her and your family..may her passing be pain free and peaceful
61 y/o female @ DX...........
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

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Joined: Mon May 11, 2015 9:33 pm

Re: Update on Mom, prayers needed...

Postby jhocno197 » Wed Mar 09, 2016 6:07 pm

DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

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Joined: Sun Feb 10, 2008 6:00 pm

Re: Update on Mom, prayers needed...

Postby CRguy » Wed Mar 09, 2016 6:14 pm

I have walked in your shoes.

Sending prayers for this next Journey
free from pain, in Peace and Harmony.

Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Update on Mom, prayers needed...

Postby chrissyrice » Wed Mar 09, 2016 7:03 pm

It was good that you could be with her last week.

You are very special... praying for comfort and peace.

DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

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Re: Update on Mom, prayers needed...

Postby WriterGirl1969 » Wed Mar 09, 2016 7:15 pm

A special prayer for you, your mother, and your whole family that Christ will give you the peace that passes all understanding, and lend you His amazing strength in this difficult time.
DX 3/4/2016 Colon Cancer; age 46 Mom of then 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Surgery
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
CT CLEAR: 3/6/17; 4/17/18; 4/16/19
NED 3 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

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Location: California

Re: Update on Mom, prayers needed...

Postby ziggymonster » Wed Mar 09, 2016 7:22 pm

I am very sorry, glad you could spend some quality time with her.
DX advanced prostate cancer 2002
2014 still fighting mPca , failed surgery, radiation, hormone
DX Stage IIIa Rectal Cancer 12/12 1 of 12 nodes +
LAR permanent colostomy 1/13
Folfox 2/13 - 7/13 clear CT CEA 1.2
7/14 liver met chemo the resect in Oct
6/15 2 pos lung mets watching for now

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Joined: Wed May 14, 2014 1:32 am

Re: Update on Mom, prayers needed...

Postby Stanfordmom » Wed Mar 09, 2016 7:33 pm

Praying for you and your mom

Hugs ((((((((((Josh))))))))))
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

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Bev G
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Re: Update on Mom, prayers needed...

Postby Bev G » Wed Mar 09, 2016 7:52 pm

Hello Josh. I am so sorry you are having to go through this. Your mom is right, you are special. You've had a long walk with her. I'm glad you can be with her now. God bless her, and you.

58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Location: Philadelphia

Re: Update on Mom, prayers needed...

Postby HopeForJesse » Wed Mar 09, 2016 7:59 pm

Sending prayers and hugs to you.
Romans 8:38-39
DH DX 01/16 49 YO inop RC stage IV liver mets
12/15 CEA 241, FOLFOX to 11/16
LAR/ileo 5/16 Clear margins 1/29 nodes
HAI, reversal, liver resections7/16
FUDR 8/16 -NED 3 mos
Rising CEA 3/17 Xeloda, 5/17 -12/17 Erbitux & Iri stable but lung/lymph mets CEA 2.7
5/18 5 days SBRT radiation to sternum 10/22/18 surgery to remove zyphoid process met
6/11/19 5FU added to cetuximab and irinotecan CEA 16
Ephesians 3:20 Our God is able to do immeasurably more than we can ask or imagine!

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Re: Update on Mom, prayers needed...

Postby Cowgirl918 » Wed Mar 09, 2016 9:58 pm

I have also walked your path. All such journeys are similar yet unique. You have honored your Mother with the greatest gift, your love and presence in her time of need. I am keeping you and your family in my prayers. I know that God is with you.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

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Joined: Sun Sep 13, 2015 6:16 pm

Re: Update on Mom, prayers needed...

Postby mariane » Wed Mar 09, 2016 10:44 pm

I am very sorry. Praying.
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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