Ethically the geneticist told my DNL, they don't like to test til age 18 to avoid burdening a child. So his mom had the pediatrician order the test instead for my 8yr old grandson because she just had to know. Though results did show a genetic abnormality, it was somewhat inconclusive because of his young age, so he will need to be retested when he is older.
Being Lynch positive is a blow when initially told, but in ways can be perceived also as an avenue to more regular testing than others may normally be allowed beyond the standard of care to catch any other primary cancers one might get. It does not mean that your children will automatically have Lynch syndrome, but certainly will need to be tested @ some point in time.
IMO having my young grandson tested did not reveal anything more than what we already knew: Colon cancer is in the family before 50 yrs of age (his grandpa, uncle). His dad is Lynch positive (not a cancer patient) & so my grandson will need to be retested & monitored when he is much older, which they would have done anyway.
They do subscribe to clean, organic living as closely as they can to reduce risk factors considering the family history...and now the genetic component only reinforces their commitment to that belief. Nothing has really changed other than my grandson will never be allowed to eat a hot dog in their presence.
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia