chrissyrice wrote:Any updates on your treatment dosage?
So hope you get the correct amount for free close to home or at least management coordinated with trial center.
Chrissy
I had my appointment with my onc yesterday. She said the drug company was offering 2 or 3mg per kg for me. Every 3 weeks. I told her I spoke with the other doctors in Ohio and at Northwestern and they both said the 2mg per kg dose shold be fine. She's willing to dose me lower once she confirms with the other drs that it would be sufficient I guess. So I'm hoping to get it in 2 weeks.
She gave me a round of folfox and avastin to try to alleviate my symptoms for the time being. She also said to keep looking at clinical trials. Northwestern offered me a spot in one that basically had no data on the drug - I turned them down only because I'm still so new at this I'm trying not to make mistakes.
Hoping to hear from my onc in the next few days.