Hope and a Miracle

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Phuong
Posts: 1496
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Hope and a Miracle

Postby Phuong » Wed Mar 02, 2016 12:12 am

Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Hope and a Miracle

Postby Lydia666 » Wed Mar 02, 2016 1:44 am

I'm happy for you!
I was wondering did you have positive lymphnodes after the initial surgery 8 years ago?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Hope and a Miracle

Postby ams5796 » Wed Mar 02, 2016 6:58 am

NOTHING is better than than. Congratulations!



Ann
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: Hope and a Miracle

Postby Delinda2 » Wed Mar 02, 2016 7:14 am

OMG!!! Sooooo happy for you! Hope is infectious & you definitely passed it on to a bunch of us. Isn't cancer full of surprises? Usually nasty ones, so this is a great delight. Congrats!! XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

DarknessEmbraced
Posts: 3525
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hope and a Miracle

Postby DarknessEmbraced » Wed Mar 02, 2016 9:27 am

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Snapfish
Posts: 50
Joined: Mon Oct 05, 2015 10:42 pm
Location: Washington, DC (dad in Houston, TX)

Re: Hope and a Miracle

Postby Snapfish » Wed Mar 02, 2016 9:47 am

Such wonderful news! Congrats!
Daughter to 70-year old father dx 2015-Sept-28: Stage IV adenocarcinoma with signet ring cell features
Sigmoid colon primary with peri mets
MSS; RAS wild-type; mutation in exon 8 of p53

2015-Oct: Began FOLFOX-6 at MDA; CEA was 15.1 at baseline
2016-Feb: CEA 5.7; 10 full rounds of FOLFOX-6 completed
2016-Mar-3: Began FOLFIRI
chemo, chemo, chemo
2017-Jan: Total of 29 cycles of chemo down. Back on FOLFOX again after FOLFIRI fail. CEA now 118.

mariane
Posts: 683
Joined: Sun Sep 13, 2015 6:16 pm

Re: Hope and a Miracle

Postby mariane » Wed Mar 02, 2016 9:48 am

I believe in miracles! Phuong, congrats!!! Stay in NEDville forever!
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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horizon
Posts: 1572
Joined: Tue Apr 12, 2011 10:10 pm

Re: Hope and a Miracle

Postby horizon » Wed Mar 02, 2016 10:04 am

I was legitimately scared for you when I was reading that. So happy for you.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

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Phuong
Posts: 1496
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Hope and a Miracle

Postby Phuong » Wed Mar 02, 2016 11:38 am

Lydia666 wrote:I'm happy for you!
I was wondering did you have positive lymphnodes after the initial surgery 8 years ago?


Yes, I had some positive lymph nodes. My memory isn't what it used to be, but I think I had 7 or 8 out of 12.

Keep hoping and sharing the love my friends. There is so much crap (literally and figuratively) with this disease, but it is wonderful to have this place to come back to and to know that there is a shared understanding and huge support. <3
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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CRguy
Posts: 10246
Joined: Sun Feb 10, 2008 6:00 pm

Re: Hope and a Miracle

Postby CRguy » Wed Mar 02, 2016 11:49 am

MEGA Harmony with that sista' !!!!!!!!

The best way to play whack a mole … IS …
when there ain't NO MOLES !!!!!!

Colorectal BUTT has been kicked and Phuong is takin' names :mrgreen:

CHEERS on the Journey
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Hope and a Miracle

Postby JDinNC » Wed Mar 02, 2016 12:15 pm

WOW that's like winning the lottery...congratulation!!!!
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

peanut_8
Posts: 2334
Joined: Sun May 25, 2014 1:31 pm

Re: Hope and a Miracle

Postby peanut_8 » Wed Mar 02, 2016 1:52 pm

Hurray! You have to love news as good as this. Very happy for you Phuong.

Image

peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Hope and a Miracle

Postby KElizabeth » Wed Mar 02, 2016 5:51 pm

Great news. Congratulations!
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

NateA
Posts: 115
Joined: Sun Aug 02, 2015 7:41 pm
Facebook Username: Nathan Drew Allen

Re: Hope and a Miracle

Postby NateA » Wed Mar 02, 2016 7:13 pm

Best kind of stories, thanks so much!! Rock on!!
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Re: Hope and a Miracle

Postby BrownBagger » Thu Mar 03, 2016 9:48 am

Awesome! Congratulations, Phuong.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.


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