2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

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DK37
Posts: 509
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

Postby DK37 » Tue Mar 01, 2016 8:58 am

The 2016 Colondar 2.0 was released today! It is a BEAUTIFUL coffee table quality magazine profiling the INSPIRATIONAL stories of (12) colorectal cancer THRIVERS as well as meant to educate that CRC is not an “old man’s disease”. I LOVE this page from my section of the Colondar. Note the caption they chose to use for me, I think they captured my mindset and philosophy perfectly. :)

“Incurable… For now… The lung spots are still there today, but they are no longer growing and Tom continues to live life as a stage IV colon cancer survivor. Tom knows that the chemotherapy he is undergoing will not cure him of stage IV cancer – it is only managing the disease. Controlling it. Buying him time. And in Tom’s mind, that’s all he needs – time.”

Image

Meeting the other models and staff changed my view of life – I believe the same will be true for you! My short blog post on the Colondar & what it means to both me & I believe others is at the link below


http://adventuresinlivingterminallyopti ... -0-is-out/

The Colondar 2.0 can now be ordered either at The Colon Club website https://colonclub.com/store/ or if you want a personalized copy PM me! It is only $10 and all proceeds support The Colon Club. I’ll be contacting everyone who previously ordered a personalized copy!

Thank you to the staff for putting this huge project together and giving me the experience of a lifetime! Troy, Mark, Ray, Alayne, Deb, Krista, Trish, Suzie, Chris, Angie, Leigh, the writer of my section Doug and especially Lindsey. The other (11) models you know how special you are :)
Last edited by DK37 on Fri Mar 04, 2016 6:13 am, edited 1 time in total.
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

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CRguy
Posts: 9230
Joined: Sun Feb 10, 2008 6:00 pm

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRANTIONAL CRC THRIVERS

Postby CRguy » Tue Mar 01, 2016 11:58 am

Great job Tom and thanks for sharing this on forum.

We'll "sticky" this for a while to highlight the launch of 2016 Colondar 2.0 !!!!

Cheers buddy
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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DK37
Posts: 509
Joined: Tue Sep 17, 2013 8:31 am
Location: San Diego

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRANTIONAL CRC THRIVERS

Postby DK37 » Tue Mar 01, 2016 1:03 pm

CRguy wrote:Great job Tom and thanks for sharing this on forum.

We'll "sticky" this for a while to highlight the launch of 2016 Colondar 2.0 !!!!

Cheers buddy
CRguy


Awesome - thanks CRguy!

-DK
6/4/2012 Dx Stage 3C CRC @ 40 yo. MSS, KRAS-WT, BRAF-WT, p53-mut
7/12 FOLFOX/FOLFIRI
2/13 NED!
8/13 Enlarged lymphs - Stable
10/14 Stage IV. Lung & Lymph mets. 5-FU+bev
3/15 Cetuximab
11/15 FOLFIRI + bev
11/16 Signs of FOLFIRI resistance (Lymph mets)
1/17 Palliative radiation for resistant mets
2/17 FOLFIRI + bev + Maraviroc (off-label)
3/17 FOLFIRI + Erbitux + Maraviroc (off-label)
MSS-CRC Clinical Trial Finder: http://trialfinder.fightcrc.org/
2016 Colondar 2.0 Model
DK37 Science Posts List

Jacques
Posts: 408
Joined: Sun Dec 28, 2014 10:38 am

2016 Colondar Model stories

Postby Jacques » Sat Mar 05, 2016 2:39 am

DX(2012): RC
Stage IIc,T4b N0 M0 L0 PN1 H0 D0 P0 I1
LAR
MSI: not tested
Chimio-radiothérapie
Chimiothérapie adjuvante : capécitabine + oxaliplatine
CEA < 1.0,
5 years NED,
End of 6-month follow-ups: 7/2017
----
Info links:
Create Your Signature
How to Select a Surgeon
List of Forum Features
Colorectal Cancer Stages (TNM)

ronswife
Posts: 141
Joined: Mon Apr 25, 2016 12:25 am

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

Postby ronswife » Mon May 30, 2016 2:12 pm

I just read ALL of the stories of the VERY courageous cancer survivors listed!!

I am BEYOND impressed!!!!!!

A lot of the stories brought tears to my eyes. Most of the people are SO young! It sure made me realize I should NEVER take ONE day or my health for granted again, EVER!!!!

:cry:
Husband Ron diagnosed with stage 4 colon cancer on 3/15/16, right after first colonoscopy at age 68. Had surgery to remove tumor on 3/31/16. Many mets on top and bottom of liver that are not resectable. Started chemo 4/28/16 using Fluorouracil (5-FU) and Irinotecan. Started Erbitux 5/26 on third chemo. Had very good results on 7/14 CT scan!! Treated with Avastin and Capecitabine 8/4/16. CT on 10/18 showed cancer growth. Now on FOLFOX. Placed in Hospice in early December and passed away 12/29/16.

Stewsbetty
Posts: 91
Joined: Thu Jul 14, 2016 7:08 am

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

Postby Stewsbetty » Sun Jul 17, 2016 5:43 pm

Very encouraging to read all of the stories!
42yo At diagnosis. Female in BC, Canada
Dx: CC ascending
Right Hemi colectomy 06/16 clear margins
Adenocarcinoma 6cm High Grade
pT3 pN2a Stage 3
10 out of 16 lymph involved
MSI-h, Kras mut, Braf wild
Finished chemo Feb. 2017
PET scan showing active area April 2017
July 2017 CT showing LN mass and spread to other LN
Stage 4

Coloncancerqueen
Posts: 24
Joined: Tue Aug 23, 2016 12:37 pm

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

Postby Coloncancerqueen » Tue Aug 30, 2016 9:03 am

I just read all of the feature stories and am so glad I did. Recurrence is knocking on my door and am more scared this time than when first diagnosed. I also feel more alone than ever. After reading I am encouraged that there are treatment options and I will get through this. Thank you all for sharing your stories.
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

Marica
Posts: 1
Joined: Sat Jun 24, 2017 4:12 am
Facebook Username: marica.jurinov

Re: 2016 Colondar Out - My Story (DK37) + 11 Other INSPIRATIONAL CRC THRIVERS

Postby Marica » Tue Oct 17, 2017 4:53 pm

very encouraging


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