First of all, I don't mind answering your questions and your not rambling on. This is what this board is all about, helping others! While my husband was undergoing chemo, he did have some issues with low wbc and plt counts. He had his treatments delayed a few days on two or three occasions because of this. Within about two months of finishing chem, all his blood counts returned to normal. He also had neuropathy on his feet and hands. His hands are fine now, but he still has it on the bottom of his feet thought it doesn't slow him down any. He has some issues with loose stools and diarrhea, but imodium seems to keep it under control. He never had any problems with adhesions. My husband did have about 2-3 inches of his small intestine removed as well, that's the terminal ilium, where the large meets the small intestine. We were also told that T4's are not to common and give you a much poorer prognosis, but that has not been the case so far with him and I bet it won't be the case with you either! Because of his T4 status, he was scanned every three months for the first two years, then went to every sis months for a couple of years and is now just once a year. This will be his fifth year scan coming up in March. If he's still clear, Our oncologist at MDA in Texas wants to follow him for two more years but replace the ct's with mri's to help reduce radiation exposure. I think after those additional two years, if all clear, we will probably be cut loose at last!
Overall it's been a very stressful experience to say the least, but I'm so grateful that he continues to do well(ned) and is able to live a completely normal life. So many times I thought we would never get to this point.
We have two boys that are now 20 and 18 years old. Even though all the genetic testing on my husband came back ok, I still worry about my sons future health. We were told that they should have their first colonoscopy at age 40 instead of the normal 50 year mark. I'm going to push for them having it even earlier than that! Did you have genetic testing done?
Also, jut to be complete, my husband's cells were moderately differentiated (low grade) and he had 34 nodes removed that were all clear. This should be noted in your Pathology report.
Once again, hoping for both of us to have clean scans,