introduction

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macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

introduction

Postby macpudd » Sat Feb 20, 2016 9:55 pm

Hello everybody,
I am from the Republic of Ireland, my doc has told me I am stage 2C, this is my first time posting on this forum. I was diagnosed on October 2014 and had right hemi colectomy on the 13/10/2015 which removed about two feet of small and large intestine, followed by 12 cycles of Folfox6 over nine months. I had some problems after the surgery with abdominal abscess and was hospitalized twice after my initial surgery, TPN for twelve days after the initial surgery. I am still having a lot of pain due to abdominal adhesions, and some cognitive problems, have had one colonoscopy and one CT since finishing chemo in August 2015 both came back NED. I am having CT on the 26th of Feb so fingers crossed :D. Hope to learn from this forum and hopefully be able to pass on some info to others, I am fifty years of age with four adult offspring and my wife who means everything to me God Bless all..
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

jhocno197
Posts: 817
Joined: Mon May 11, 2015 9:33 pm

Re: introduction

Postby jhocno197 » Sat Feb 20, 2016 11:10 pm

Hi & welcome!

I hope your next CT still shows you to be NED :).
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: introduction

Postby macpudd » Sun Feb 21, 2016 5:12 am

jhocno197 wrote:Hi & welcome!

I hope your next CT still shows you to be NED :).


Hi jhocno197
Thanks for the welcome, its great to have a forum like this to talk to people with similar issues. My family are a great support but I am sure that some times they need a break from listening to me :shock: Hope the Stivarga helps you.
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine

Nik Colon

Re: introduction

Postby Nik Colon » Sun Feb 21, 2016 6:04 pm

Welcome. Best wishes

User avatar
Cowgirl918
Posts: 319
Joined: Sun Jan 17, 2016 12:55 am
Location: Indiana

Re: introduction

Postby Cowgirl918 » Sun Feb 21, 2016 6:42 pm

Welcome. No one wanst to have to be here, but since you do, you will be really glad to be part of this group. Welcome and take care. :D
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80% removed
5/29/2016 Compressed lumbar spinal fracture (riding accident)
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
10/18/16 Autoimmune Diseases confirmed

Deb m
Posts: 558
Joined: Tue Jan 14, 2014 10:08 am

Re: introduction

Postby Deb m » Mon Feb 22, 2016 11:40 am

macpudd,

My husband also was 50yr when he was diagnosed. He too was a stage IIT4 and had a rt. hemicolectomy. He was treated with surgery followed by 12 hits of folfox.

He has been ned since surgery which was done on 2/11. He has a ct scan coming up on 3/23, next month. Hoping for both of you to have clean scans!

Welcome to the board,

deb m

macpudd
Posts: 120
Joined: Tue Jul 21, 2015 7:00 pm

Re: introduction

Postby macpudd » Mon Feb 22, 2016 12:28 pm

Thanks for all the welcomes everybody,
Its been a lovely day here in Ireland with some early spring sunshine, snowdrops and some varieties of daffodils in flower. Hope its nice wherever you are in the world.
Deb m hope all goes well for your husbands scan, this will be my second since finishing chemo, and despite my best efforts not too, I still find myself worrying what if, but I suppose thats par for the course. I returned to work last December but have had to take sick leave in the last two weeks as I am having abdominal pain, fatigue, and problems concentrating and poor memory. My doc says the pain is most likey from adhesions but the scan will show if its anything else, and that the other symptoms should resolve given time.
Take care all,
Macpudd
Dx 10/13/2014 right hemicolectomy 10/15/2014 pT4b N0 M0
Folfox x12 from Dec 2014 to July 2015
01/16/18 tonic seizure hospital admission
01/17/18 ct and mri 2cm tumor on left side of brain
commenced anti epileptic and steroids and
insulin.
01/25/18 brain craniotomy 80% of tumour removed pathology says gbm4
6 weeks of rad and Temodar chemo and then 6 monthly cycles of Temodar
MRI in Oct no tumor
Mri Jan 2019 tumour growth Feb Pet scan tumour 6cm, no surgery, starting Avastin also Lomustine


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