This is all so new & scary!

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Redwiner
Posts: 4
Joined: Mon Feb 15, 2016 3:58 am

This is all so new & scary!

Postby Redwiner » Mon Feb 15, 2016 4:57 am

Hi everyone! I'm Jill. As I'm preparing for my LAR on Tuesday 2-16-16, I'm finding out that this surgery is not just another arthroscopic gallbladder or appendix surgery! It's kinda a big deal! So much to learn, absorb, comprehend & digest. I'm heading into this with a very positive attitude (on the outside) but realizing after sifting through so many posts here that recovery can be really rough. I've had several surgeries over the years & each have had their little complications & long term effects. I really have no idea what to honestly expect post-op and for the weeks/months ahead. What helped... What didn't? What are the long term effects of the LAR? Fecal leakage sounds simply awful! Is this common? Walking is key I hear but I need more than that! All suggestions / comments welcome! Thx from the nubie! :)
1-13-2016: pedunculate Rectal polyp, stage I, less than 1cm in diameter
2-16-2016: LAR (laparoscopic)
CEA & CT both negative
Carcinoid 4mm found by pathologist after LAR
14/14 lymph nodes were clear!
50 yrs old, Mom of 2 girls, 12 & 10

Lee
Posts: 5722
Joined: Sun Apr 16, 2006 4:09 pm

Re: This is all so new & scary!

Postby Lee » Mon Feb 15, 2016 10:05 am

Hi Jill and welcome. Sorry for the reason you are here, butt you have found a wonderful site for information and support.

Do you have rectal or colon cancer?

Yes walking those halls is the best thing you can do for yourself following your surgery. Be sure to bring a long light bathrobe (easy to get in and out of) and a good pair of slippers for walking those halls. Ipod if you have one, computer.

Regarding your surgery, take it one day at a time. Are you having a lapro or will you be cut open? Lapro is a faster easier recovery. Not everyone has problems recover wise. I was cut open and had little recovery problems.

Good luck today with your prepping. Let us know how your are doing when your surgery is over. Again welcome,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

User avatar
O Stoma Mia
Posts: 1450
Joined: Sat Jun 22, 2013 6:29 am

Abdominal binder

Postby O Stoma Mia » Mon Feb 15, 2016 1:23 pm

Redwiner wrote:... Walking is key I hear but I need more than that! All suggestions / comments welcome! ...

I've said this before in other places, but I'll say it again: After LAR surgery you should wear an abdominal binder to keep from damaging the LAR incision site. (They also have models to use with stoma bags in case you are going to have an ileostomy.)

Also, although you need to walk, you also need to be very careful about how you get out of bed and how you get back into bed because the torque pressure on the abdomen caused by turning and twisting to try to get out of bed can loosen up the incision site and take it longer to heal. So, when getting out of bed while in the hospital you should ask for the help of two nurses so that you do not put excessive strain on your abdominal muscles while making the movement.

In addition, you should not cough or sneeze violently, since this action can produce excessive pressure in the abdomen that can loosen the healing suture and cause an incisional hernia. Also, you should not laugh uncontrollably, like watching a very funny video, because strong laughing can do the same thing... And don't expect to drive a car for a good two or three weeks, because if you have to suddenly slam on the brakes while driving, this abrupt movement could cause damage to your LAR incision.

You haven't said whether you have a tumor, and if so, where it is located. If the LAR is for the purpose of removing a tumor along with the adjacent lymph nodes, then it would help if you could create a Signature to inform other users where your tumor is located and what your situation is:

Create a SIgnature:
http://coloncancersupport.colonclub.com/viewtopic.php?f=1&t=52681&p=414489#p421597
Last edited by O Stoma Mia on Sat Feb 03, 2018 2:11 am, edited 2 times in total.

Redwiner
Posts: 4
Joined: Mon Feb 15, 2016 3:58 am

Re: This is all so new & scary!

Postby Redwiner » Mon Feb 15, 2016 9:55 pm

Thank you Lee & O Stoma Mia! Abdominal binder sounds like a must! After my open hysterectomy, it was very helpful! I have rectal CA. It was a small polyp and they don't believe it has spread. Will know more after the surgery. I know... One day at a time. Every situation & surgery is different. Doing the prep now. Geez this stuff tastes so damn awful! Thanks again!
1-13-2016: pedunculate Rectal polyp, stage I, less than 1cm in diameter
2-16-2016: LAR (laparoscopic)
CEA & CT both negative
Carcinoid 4mm found by pathologist after LAR
14/14 lymph nodes were clear!
50 yrs old, Mom of 2 girls, 12 & 10

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: This is all so new & scary!

Postby Sams wife » Mon Feb 15, 2016 11:41 pm

Lots of protien for healing!
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

Redwiner
Posts: 4
Joined: Mon Feb 15, 2016 3:58 am

Re: This is all so new & scary!

Postby Redwiner » Tue Feb 16, 2016 12:10 am

Thank you Sams wife for the protein tip! :)
1-13-2016: pedunculate Rectal polyp, stage I, less than 1cm in diameter
2-16-2016: LAR (laparoscopic)
CEA & CT both negative
Carcinoid 4mm found by pathologist after LAR
14/14 lymph nodes were clear!
50 yrs old, Mom of 2 girls, 12 & 10

Badass
Posts: 1158
Joined: Sun Jan 15, 2012 11:42 am

Re: This is all so new & scary!

Postby Badass » Tue Feb 16, 2016 4:16 am

Hi Redwiner,

Wishing you smooth sailing in surgery. There is so much to say about LAR consequences that I recommend using search terms to pull up threads on this forum related to each phase or your recovery. Diet, ileostomy care, ileostomy reversal, bowel movement routines, etc. It can all seem overwhelming. I recommend taking it one step at a time. What was a hitch for one person, may go easily for you. It is wonderful that this surgery is available and with your early stage, will likely stop your cancer in its tracks. Keep us posted on YOUR experience!

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: This is all so new & scary!

Postby JudeD59 » Tue Feb 16, 2016 7:25 am

One thing that you may find is that you have a lack of appetite for quite a long time after surgery. It helps to try to eat smaller meals and snacks throughout the day instead of three large meals, at least that's what helped me. It wasn't that I was nauseated or anything, I just had no desire to put food in my mouth. So I tried to eat a couple of pieces of sharp cheese, then a few crackers with peanut butter an hour or two later, a fruit cup an hour or so after that, etc.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Pathfindergrl28
Posts: 119
Joined: Mon Dec 08, 2014 12:35 pm
Location: East coast, USA

Re: This is all so new & scary!

Postby Pathfindergrl28 » Tue Feb 16, 2016 9:08 am

Hi redwiner, may I ask what type of polyp did you have, and what was the size? How old are you? I hope your surgery goes well, & you have a fast, quick recovery! Prayers...
36/F
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

Andrea1976
Posts: 380
Joined: Sun Jan 03, 2016 10:32 am

Re: This is all so new & scary!

Postby Andrea1976 » Tue Feb 16, 2016 7:18 pm

Hope your surgery went well!!! I have my scheduled for 2/29. I have decided to go ahead and do it.

My polyp was Pedunculate on colon. Colorectal surgeon said I have very small % of having "bag" and will not have LAR syndrome due to location.

My CEA was 0.3.

Should know Lynch test result next 2 weeks. Found out my insurance covers all but $375.
Stage I
pedunculate polyp in descending colon
moderately diff adenocarcinoma 0.6 cm
Tumor confined to the head of the polyp
Stalk margin 2 cm negative for dysplasia and malignancy
Polyp removed during colonoscopy 1/15/16
No lymphovascular involved
No surgery
CEA after polyp removal 0.3
Genetic testing negative for colon and breast cancer
39 year old female. I am not celebrating my 40th but waiting for my big 50 birthday party!!!

Redwiner
Posts: 4
Joined: Mon Feb 15, 2016 3:58 am

Re: This is all so new & scary!

Postby Redwiner » Thu Feb 18, 2016 6:59 pm

Well my surgery took 6 hours due to scar tissue in my belly. Still have tubes & drains. No ileostomy thank goodness! Pain meds & walking. I'm not progressing as quickly as doc would like so here I stay for now. Full liquid diet. Appetite not great but I can stand to drop a few lbs! My polyp was pedunculate in the rectum. It was less than a cm in diameter. Waiting on pathology to see if it had spread. I'm 50, so all of this just came as a shock! I had no symptoms. Everything happens for a reason! Thanks to everyone for sharing their stories & experiences with this surgery. It's all helped!
1-13-2016: pedunculate Rectal polyp, stage I, less than 1cm in diameter
2-16-2016: LAR (laparoscopic)
CEA & CT both negative
Carcinoid 4mm found by pathologist after LAR
14/14 lymph nodes were clear!
50 yrs old, Mom of 2 girls, 12 & 10

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: This is all so new & scary!

Postby Sams wife » Thu Feb 18, 2016 10:05 pm

Congratulations. Get some rest while you can.
I just wanted to throw the protein in there so you would see it before surgery. I saw it on here at least 50 times but a month after hubby's surgery I had already forgotten, dealing with everything else.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5


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