New 2nd primary - sigmoid colon this time: Crap!
New 2nd primary - sigmoid colon this time: Crap!
Hello all, long time no see. I've been avoiding CC for several months, just going through one of those weird phases. But I found out Thursday that I have a new primary cancer, so of course I came running back to the people who understand how I feel. Scared, pissed off, hurting, angry, stunned, and yet somehow not really all that surprised. After a year Ned I started having pain about 6 weeks ago. It kept increasing so I went in & my onc ordered a CT scan. All I know so far is that it's into the belly wall already. It's only been about 10 months since my last CT, and about 8 months since my last colonoscopy. I've been going in faithfully for my blood work every 3 months & that all looked great. I go next week for a colonoscopy & my onc will meet with the surgical team on Monday. Inc said surgery and chemo for sure, possibly radiation too. I'm surprised at how much it hurts already. My onc gave me pain meds and increased the dosage after 3 days because it wasn't enough. At least that's being managed, but I get these shocking jabs anyway. We'll know more by next week so just sort of in a holding pattern at the moment. I have lot's of great family support, but those phone calls and conversations sure do suck. I'm finding it much harder to be the positive Little Mary Sunshine that I was last time. I put on my game face for hubby, son, siblings, etc. but inside I'm thinking, "Yeah, right - blah, blah, blah." I can handle the surgery, but chemo was so brutal last time that I'm very anxious. Had Nulasta shots for VERY low white count, killer fatigue, and nasty hand & foot syndrome - neuropathy for life sucks already. Well, enough whining for now. I hope my old friends here are well, and I'll have to read posts like crazy to catch up as well as to "meet" the folks who joined while I was incommunicado. Stay strong. XOXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."
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midlifemom
- Posts: 1358
- Joined: Wed Jan 15, 2014 10:58 am
- Location: NJ
Re: New 2nd primary - sigmoid colon this time: Crap!
Delinda,
Sorry for the circumstances of your return.
It sucks!
Don't get anxious about chemo yet. Maybe it will be folfiri instead of folfox. While some folks struggle with folfiri, some find it easier than Folfox.
Sorry for the circumstances of your return.
It sucks!
Don't get anxious about chemo yet. Maybe it will be folfiri instead of folfox. While some folks struggle with folfiri, some find it easier than Folfox.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?
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Nik Colon
Re: New 2nd primary - sigmoid colon this time: Crap!
Sorry to hear 
I'm surprised that you didn't have a scan sooner.
I'm surprised that you didn't have a scan sooner.-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: New 2nd primary - sigmoid colon this time: Crap!
I'm so sorry to hear this!*hugs* We are here for you every step of the way!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: New 2nd primary - sigmoid colon this time: Crap!
I'm so sorry. I'm new to this board and am so glad to have found this. I know how you feel as I am still stunned and angry after going from stage 1 to stage 4 in 6 months. I hope your journey goes easier with the chemo and wish you the best.
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0
Re: New 2nd primary - sigmoid colon this time: Crap!
That is incredibly crappy. I'm so sorry.
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Re: New 2nd primary - sigmoid colon this time: Crap!
So sorry to hear this Delinda. It really sucks. Hope you come up with a treatment plan that you can tolerate.
It sucks because you were being diligent in followup testing. It just sucks in general. Cancer sucks.
Best Wishes, peanut
It sucks because you were being diligent in followup testing. It just sucks in general. Cancer sucks.
Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED
Re: New 2nd primary - sigmoid colon this time: Crap!
That's absolutely crazy, Delinda. I don't understand how it could grow that big in only 8 months! Aren't the doctors always trying to tell us how colon tumors are so slow-growing, take 10 years to develop, blah, blah, blah? Ugh! I'm so sorry you're having to go through this again.
Last edited by lpas on Sun Feb 07, 2016 11:33 pm, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
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Cowgirl918
- Posts: 326
- Joined: Sun Jan 17, 2016 12:55 am
- Location: Indiana
Re: New 2nd primary - sigmoid colon this time: Crap!
This is horrible for you. I am so sorry. All of my non CC friends and family always assure me that CRC grows "so slowly" so I have nothing to worry about. But those of us here know that such a statement is a myth. Maybe it is slow if you don't have it or haven't had polys that were villious or whatever......but for many of us it just sneaks up and grabs us by surprise even when we are under care or surveillance. My thoughts are with you. One step at a time.
HX Colon Polyps Villious and Tubillovillous
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
12/29/15 Colonoscopy/Endoscopy - Ascending Colon Mass- Hemicolectomy Scheduled
1/17/2016 Right Hemicolectomy Cancelled
1/25/2016 CT No evidence of other disease
2/12/2016 EMR-ascending colon mass 80%
8/12/2016 EMR #2 ascending colon mass curative
8/13/16 NED
7/26/2023 Neuroendocrine mass small bowel, two mesenteric lymph nodes
9/1/2023 Small bowel resection jejunum and lymph nodes removed mesentery
Re: New 2nd primary - sigmoid colon this time: Crap!
Delinda, ditto to everything that's already been said here. Sending you gentle hugs, Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed
2 Corinthians 12:9
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Jachut
- Posts: 1137
- Joined: Mon Sep 26, 2011 11:16 pm
- Facebook Username: hutchinson@aanet.com.au
Re: New 2nd primary - sigmoid colon this time: Crap!
Oh boy, thats just crappy news for you, I'm so sorry. And its so scary, how incredibly fast! Like most of us, whenever I get an ache or pain (common when you're full of adhesions fro surgery!) I initially think the worst (not entirely seriously), then I remind myself I only had a scan a year ago, or bloodwork six months ago, or whatever and that I'm being silly! And I get over it. But the fact that you appeared fine such a short time ago is a good reminder that nothing is too trivial to bring up with your doc.
Re: New 2nd primary - sigmoid colon this time: Crap!
So sorry - that really sucks.
Cathy
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
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daughterseekinginfo
- Posts: 40
- Joined: Mon Mar 31, 2014 7:10 pm
Re: New 2nd primary - sigmoid colon this time: Crap!
I'm so sorry, Delinda. This is just not fair. I'm sure the knowledge and support system that got you through the last battle will be much to your benefit this time around. Wishing you smooth, effective treatment.
daughter of a 68-y-o male
10/13: T4N0MO CC (sig colon resection, part bladder resection)
04/14: radical resection remaining bladder--both recurrent CC in bladder & stage 2 bladder cancer (high grade).
10/14: questionable pelvic lymph nodes; biopsy of one clear
02/15: Clear CT scan & X-rays; small bowel fistula put off re-connection
02/16: Advanced cancer found on CT scan; determined to be aggressive bladder cancer; in lungs/liver/abdomen/hip bone.
03/27/16: My dear father died at home on hospice.
10/13: T4N0MO CC (sig colon resection, part bladder resection)
04/14: radical resection remaining bladder--both recurrent CC in bladder & stage 2 bladder cancer (high grade).
10/14: questionable pelvic lymph nodes; biopsy of one clear
02/15: Clear CT scan & X-rays; small bowel fistula put off re-connection
02/16: Advanced cancer found on CT scan; determined to be aggressive bladder cancer; in lungs/liver/abdomen/hip bone.
03/27/16: My dear father died at home on hospice.
Re: New 2nd primary - sigmoid colon this time: Crap!
Hey Delinda,
I can so relate to your post. Last year I had a recurrence found via colonoscopy after nearly 4 years NED. Like you my bloodwork was fine and CEA was never elevated.So to say I was shell shocked is an understatement. In some ways coping with a recurrence is harder because although you know what to expect it reminds us that cc is a stealth bomber. I also just found out that after 15 txs Folfiri+Avastin it's back after only a 6 week break. Yeah, this stuff crawls out of nowhere and decides to materialize fast.
I do want to give you some encouragement though. The tumor that was found during colonoscopy last year (and which projected into the omentum) completely resolved after a few cycles of folfiri, as did the liver lesions.
I can so relate to your post. Last year I had a recurrence found via colonoscopy after nearly 4 years NED. Like you my bloodwork was fine and CEA was never elevated.So to say I was shell shocked is an understatement. In some ways coping with a recurrence is harder because although you know what to expect it reminds us that cc is a stealth bomber. I also just found out that after 15 txs Folfiri+Avastin it's back after only a 6 week break. Yeah, this stuff crawls out of nowhere and decides to materialize fast.
I do want to give you some encouragement though. The tumor that was found during colonoscopy last year (and which projected into the omentum) completely resolved after a few cycles of folfiri, as did the liver lesions.
Dx 7/11, Stage IIIc CC
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin
12 txs Folfox 8/2011-2/2012
MSS, KRAS-mut G12D
NED until 3/2015, mets to liver and peritoneum
April-December 2015: 15 txs folfiri+avastin
Liver mets resolved; pelvic met remains
January-May 2016: folfox+avastin; allergic rxn to oxi
June-August 2016: 5FU+avastin
October 2016: looking into immuno trial
January 2017: maintenance chemo xeloda + avastin
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Steph20021
- Posts: 553
- Joined: Sat Dec 27, 2014 4:58 pm
- Location: Ontario, Canada
Re: New 2nd primary - sigmoid colon this time: Crap!
*hugs*DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab
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