New 2nd primary - sigmoid colon this time: Crap!

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canadiandaughter
Posts: 676
Joined: Sun Aug 17, 2014 11:19 am

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby canadiandaughter » Wed Feb 10, 2016 8:59 am

Nice to see you back here, I just wish it was under different circumstances. So sorry that you have to deal with this again. Praying for a great plan by your doctors that you can tolerate!!
DD to 81 year old father
dx 24/07/14 iv cc mets liver/lung
folifiri started 19/07/14
shrinkage of all mets
growth in the liver,started folfox/avastin 80% 13/01/16
reduced to 70% due to side effects 27/01/16
First scan on folfox shows shrinkage in lungs, but liver just stable
6 rounds of vectibix-fail. 3cm growth and new spots showing Waiting for panel recommendations
At peace January 8, 2017

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Delinda2 » Wed Feb 10, 2016 4:25 pm

Thanks to all for your kind words. It helps to vent concerns I can't share with hubby. Poor guy was at the end of his rope before we got my news. His beloved father was recently diagnosed with multiple myeloma, his uncle just passed - also had multiple myeloma, and hubby himself got hurt at work & will probably have surgery on his knee and possibly his shoulder too. He's sitting in his recliner looking like a cartoon character with stars circling his head. He's strong but he's only human - enough is enough, so I stay strong & bring my fears here. Thanks again. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby michelle c » Thu Feb 11, 2016 10:20 pm

Sorry to hear this Delinda. Could they have missed it on your last CT or colonoscopy? To grow so fast since your last colonoscopy doesn't seem possible. Best wishes to you. Please keep us updated.
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Delinda2 » Fri Feb 12, 2016 3:04 am

Thanks Michelle, I've wondered the same thing & have that on my list of questions. I am scheduled for a colonoscopy on the 16th, them meet with the surgeons on the 25th. I see you have sigmoid cancer too, so any questions or information you can share would be greatly appreciated. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby JudeD59 » Fri Feb 12, 2016 11:02 pm

Wow. Can't tell you how sorry I am to hear this news. It sucks so much. Your family is just getting clobbered with bad news. I wish I could give you a hug in person, but I guess a virtual one will have to do.

You did the treatments, you did the follow up and yet kablam! This disease has no rhyme or reason and is a dirty fighter. I hate it so freaking much.

I'll be praying for you and sending good vibes your way. I hope you get good answers from your doctors and a doable plan in place.

Hugs, hugs, hugs

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Delinda2 » Sun Feb 14, 2016 10:56 am

Thanks Judy, a nice warm hug goes a long way these days. Hope you are doing okay yourself. Take care. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

User avatar
Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Bev G » Sun Feb 14, 2016 11:10 am

Dear Delinda,

I'm so sorry to hear this awful, hateful news. Cancer is a horrible thief of so many things, and often things that have no rhyme or reason. I know you are scared. I hope the plan of attack is straightforward and completely effective. Over the many years I've been here, I have met many people who have had recurrences and go on to be NED for extended periods of time, or forever. I will hold you in my thoughts and prayers and sincerely hope you'll deal with this one OK and go on to restored good health.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Delinda2 » Sun Feb 14, 2016 11:31 am

Thank you Bev. So good to "hear" you. You always have the best information and soothing words of comfort & encouragement. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby JudeD59 » Mon Feb 15, 2016 1:34 am

Delinda, can I ask what will probably be a stupid question? You say it's a new primary cancer. How is that different from a recurrence? How do they make that distinction? If the first tumor was in the colon and the second was in the rectum, I would understand, but if both are in the colon, what makes it a primary and not a recurrence of the earlier colon cancer? Is it a different form of colon cancer this time?

I'll understand if you don't have the time or patience to explain. I know you have enough on your plate already. I was just confused by the two terms.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Delinda2
Posts: 483
Joined: Fri Jan 16, 2015 6:28 pm
Location: Washington state

Re: New 2nd primary - sigmoid colon this time: Crap!

Postby Delinda2 » Mon Feb 15, 2016 5:27 am

I'm wondering the same thing & will ask for clarification. The onc called me with the results (she asked if that was okay before the scan) and I was sort of rattled to say the least. But she was very clear that this was a new primary, not a spread of the first cancer. She said that though it was tough to have this, it is far better than having the original one spread. I'll take that over stage 4 any day. I can't help feeling that they must be related though. Anyway, she said to call anytime with questions, so I have a bunch & will call Moday. Let me know if you think of anything else I should ask about and thanks for your concern. XXOXO, Delinda
63 yrs,wife & mom
4/14 dx colon cancer,3C,9/22 nodes
Lymphatic,venous,&perineural invasion
<1cm margin,poorly differentiated
6/14 colostomy take down
7/14 FOLFOX w/9 Nulasta shots
2/16 dx new primary of sigmoid colon
6/16 surgery-rescection on sigmoid, total hysterectomy, temp ileo, stage 4
"I AM the storm."


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