I thought it was over...wrong

Please feel free to read, share your thoughts, your stories and connect with others!
Nik Colon

I thought it was over...wrong

Postby Nik Colon » Sat Feb 06, 2016 2:25 am

I have recently gone of my oxy which many know can constipate you. Had loose stools in the days after. Had not taken meds to help either and in the last few days been somewhat normal, then felt constipated. Took just a little to go and was fine. But just a few minutes ago, diarrhea. I mean the dtaf kind. Seriously, when will it (if ever) get better! My surgery was April 2015! Will it ever be somewhat normal again?

Nik Colon

Re: I thought it was over...wrong

Postby Nik Colon » Sat Feb 06, 2016 2:36 am

All I know is I had a foot of colon removed, was my sigmoid, up to 25+/-. Ever since have not been normal. Either constipation or diarrhea. When I have to go I need to NOW! It sux not knowing when, where, etc. I'm still hoping it will get better. But having my recent issue, idk. How can one live a normal life with this!

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: I thought it was over...wrong

Postby JudeD59 » Sat Feb 06, 2016 3:34 am

No answers for you, Nik, just a hug and a hope things improve very soon.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

User avatar
O Stoma Mia
Posts: 1709
Joined: Sat Jun 22, 2013 6:29 am
Location: On vacation. Off-line for now.

Re: I thought it was over...wrong

Postby O Stoma Mia » Sat Feb 06, 2016 10:14 am

Have you tried Questran for hard-to-treat diarrhea?

jalusa
Posts: 221
Joined: Thu Apr 02, 2015 9:26 am

Re: I thought it was over...wrong

Postby jalusa » Sat Feb 06, 2016 10:49 am

Maybe more fiber? Fiber can help even things out. I had the same surgery things work well. I eat a bowl of raisen bran every AM.
Hoping to get to resection with HAI pump.
Failed PVE - Searching for options
Chemo for life

Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: I thought it was over...wrong

Postby Joannerogers » Sat Feb 06, 2016 10:53 am

Sorry to hear about your troubles, I hope it gets better
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: I thought it was over...wrong

Postby Stanfordmom » Sat Feb 06, 2016 6:00 pm

Hugs a positive energy to you! Sorry I cannot help more.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!

Nik Colon

Re: I thought it was over...wrong

Postby Nik Colon » Sat Feb 06, 2016 6:45 pm

Thanks everyone, just gets frustrating when you don't know what to expect on a daily basis.

SuseB
Posts: 33
Joined: Thu Feb 04, 2016 11:34 am
Facebook Username: Susan Bomkamp Burke

Re: I thought it was over...wrong

Postby SuseB » Sat Feb 06, 2016 7:08 pm

Sorry, Nik. I feel your frustration. I have had extreme issues since my surgery... Hose down the bathroom kind of stuff. Several times a week. No predicting what days. Have yelled cried and thrown stuff. For me at least, it at least clustered in the evening, so I'd know when to be home. Haven't been out in the evening much since. Nothing touched it; high fiber; BRAT diet, medication. Gradually less severe and less frequent over the last 6-8 weeks. Some respite now with the zofran and pain melds. I know this isn't helpful in a practical sense, but I always felt alone about it, making excuses why I couldn't get together with people in the evening. So commiseration.
61 y/o female
Dx May 2015 Stage 1T2 rectal cancer
Surgery 06/08/2015 clean margins 16 lymph nodes all clean
Post surgery bowel issues and sacro pain
6 mon f/u w/onc 12/23/15 ordered cat scan for bowel pain issues-
liver lesions
PET Scan 01/14/16 mets liver & pelvis
03/31/16 done 4 rnds FOLFOX w/ Avastin
Scans 04/15/16 all shrunk!
2 rnds FOLFIRI done 05/12/16
Liver resection 06/08/16
CEA 06/08/15- .9 (post Stage 1 surgery); 12/28/15 (post pet scan) 3.9
02/03/16 (pre-treatment) 13.0 ; 03/31/16 - 2.0

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: I thought it was over...wrong

Postby Nichoebe » Sat Feb 06, 2016 7:42 pm

The problem is stopping the oxycodone your body is withdrawing. I unfortunately have much expierience in this dark area. I spent ten years addicted to pain meds due to back problems . Pain meds are a necessary evil and then just become evil,by know means am I accusing you of being an addict please do not take it that way it really only takes a matter of weeks for the brain and body to need and want more pain medication and even if you've only been taking them for a few months you really need to slowly come off them for example 30 mg tabs every 4 hours that becomes 1 tab every 6 and begin dropping in milligrams 30 down to 15 mg or whatever your Dr should be able to help you if your past a few days without them your getting close so if you can fight "the sickness" drink Gatorade and fluids as tolerated same with food unless your vomiting a lot and for the " peeing out of your ass" as it is Imodium works well as long as it takes for stool to harden up but as I said from my own expierience sit sounds like withdrawls . It sucks I spent a lot of tears in hell because of those little pills then I stopped for 2 1/2 years stopped drinking as well got in the best shape of my life back pain as I still have many herniated and bulged discs , stenosis, arthritis and such but it went away I went back to physical work and was the happiest and fullest I had been in years and then as I started my small side business I was diagnosed with a thing called colorectal cancer go figure I certainly hope that you feel better and take my advise and talk to Dr if you like but it's probably stopping the Oxycodone
Mime
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: I thought it was over...wrong

Postby Nichoebe » Sat Feb 06, 2016 7:42 pm

Mike not Mime stupid iPhone
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

Nik Colon

Re: I thought it was over...wrong

Postby Nik Colon » Sat Feb 06, 2016 10:09 pm

Nichoebe wrote:Mike not Mime stupid iPhone

I've been off them for a couple weeks now (roughly). I'm sure it's my body readjusting, but idk.

User avatar
BeansMama
Posts: 959
Joined: Thu Jan 28, 2016 1:38 am
Location: North Carolina

Re: I thought it was over...wrong

Postby BeansMama » Sat Feb 06, 2016 10:20 pm

Hope it starts getting better for you soon.
41 yrs old
Tumor found 9/2015
Surgery 1 - 11/2015 LAR and colostomy
Surgery 2 - 11/2015 wound vac
Surgery 3 - 12/2015 revise resection, move colostomy
Mets to liver - tumor inoperable - one add'l met destroyed
Stage IVa (T3 N2a M1a)
Primary tumor 9 cm x 7.5 cm x 2 cm
Beginning Folfox 1/2016 - Failed
Beginning Folfiri and vectibix 8/2016 — Failed
Beginning Folfirinox + Avastin 11/2016 - Failed
Beginning Keytruda 1/2017
CEA drop from 345 to 7.3 after starting immunotherapy
Lynch positive 3/2016

Nichoebe
Posts: 46
Joined: Fri Dec 18, 2015 7:18 pm
Facebook Username: Michael.Rosenbach

Re: I thought it was over...wrong

Postby Nichoebe » Sat Feb 06, 2016 10:30 pm

Yeah a couple weeks you should be past the major withdrawls try the Imodium that worked better during chemo rad than the prescription anti diarrhea meds they gave me eat rice bagels pasta things to bind you up and exercise is great even just walking
Hope this may help
Sucks being sick and side effects
Really suck
Good luck and stay strong
Mike
Diagnosed colorectal cancer 9/27/13 3B

Chemo/radiation 28days Xeloda Oxaliplatin
Surgery 2/5/14 0/27 nodes upgraded 3A
Negative Lynch
3/28/14 Chemo 5FU Oxaliplatin 6month
9/27/14 ileostomy reversal
Mid October 2014 wound infected
Mid November 2014 Blood Clot Lovenox 6 months
Colonoscopy 2014

December 2015 Colonoscopy
I Can't Believe It's Back
1/22/16 Salvage surgery
Permanent Colostomy
1 week from surgery in hospital insane pain
60 treatments hyperbaric oxygen therapy
6 months Xeloda 5000 mg/day

User avatar
chrisca
Posts: 246
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

Re: I thought it was over...wrong

Postby chrisca » Sat Feb 06, 2016 10:57 pm

More fiber is usually a good idea, but the kind of fiber seems to be very important. I experimented with a lot of foods before finding ones that gave me the best bowel stability (but it's far from perfect.) That said, I seldom have diarrhea. One thing I did, no guarantees, is to take a turmeric capsule each day at breakfast. Turmeric is proven to boost the gut immune system. I very seldom experience diarrhea, only when truly sick from some spoiled food or change in the water when traveling.

I make my own turmeric capsules (much cheaper) but it's easy to buy a bottle of the supplement at any natural food store and try it first. If it works, I can give you all the instructions for making them yourself. I take about a gram a day. I also eat a lot of probiotic foods, yogurt almost every day at lunch and I take a probiotic (Reuteri pearls) every other day. These things might help. If you only lost your sigmoid and kept the rectum, diarrhea shouldn't be a bowel function issue so much as it could be a gut microflora issue. Chemo messes with the gut quite a lot.

Some food sensitivities can contribute to diarrhea. Likely culprits are artificial sweeteners and less digestible sugars such as xylitol. Try going as natural as possible with all your food including an experiment with all organic foods for a while. My theory is that chemotherapy sensitizes the gut to all kinds of new food allergies and it can take a lot of time to sort it out. Quinoa was murder on my gut until I figured out I had a sensitivity to it. Before chemo, I could eat all I want. It's showing up in all kinds of foods these days. That's just one example.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 10 years


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 335 guests