5 year TAE for T3 follow up - NED!

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5 year TAE for T3 follow up - NED!

Postby dschreffler » Tue Jan 26, 2016 6:31 pm

Happy 2016!

It has been a while since I checked in on the board and wanted to share how I'd doing 5 years since my treatment ended. In short, all is good.

I had chemo and radiation prior to surgery, transanal excision surgery, and post surgery chemo for my T3 rectal cancer.

Quality of life is pretty close to what I reported back in 2012:
  • I have no side effects from the surgery; some due to chemo and the radiation.
  • I have no eating or bowel issues other than I seem more sensitive to fruit juices - i.e. next day frequent bathroom visits - manageable. I think due to the chemo. Otherwise same as prior to having colon cancer.
  • Skin irritations at the radiation site - only an issue when using sandpaper toilet paper at cheap work and public place rest rooms!

The following improved a lot due to exercise, eating better, and meditation. Not in any ruthless fitness nut way, just simple changes. Stuff we should all do anyway, cancer or not.
  • Still fighting some fatigue and chemo brain (forgettfulness).
  • Post cancer depression -- I really believe mental health needs to be part of the cancer treatment journey. Sound mind and sound body - treat the whole person. Therapist thinks PTSD from going thru treatment. That has merit, but also think I had some depression issues for a long time prior. A case for baselining mental health as we do with physical health.
  • Some sexual dysfunction... radiation and chemo impact plus an issue with age, weight gain and lax exercise. Continues to improve with diet and exercise and dealing with stress/depression.
  • Neuropathy in feet - happens occasionally when running - feet feel like they fell asleep and I have sandbags attached to my legs. Goes away, eventually.

For more of the back story, you can check these threads out.
If anyone has any questions ask here or feel free to PM.

I remain indebted to the people on this forum whom helped me thru this tough issue and I hope tho information can help others.

I wish you all the best - health, success, and happiness.
DX:T3,Nx,M0 2/5/10 RC 3cm@analverge CEA7.3
Neoadjuntive 2/24-4/5: 28 rad/Xeloda(M-F),5 rnds Oxaliplatin,IVwkly
6/15/10-TAE surgery 10 weeks aft neoadjunctive.
Path clean, CEA1.3
post surgery 12 rnds FOLFOX
NED 1/26/11

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Bev G
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Location: Quechee, VT

Re: 5 year TAE for T3 follow up - NED!

Postby Bev G » Tue Jan 26, 2016 9:38 pm

How nice to see you again! I suppose most of us have residual, challenging post-treatment effects. I'm so glad you've survived and are doing pretty well. Seems like you have a lot of wisdom in the strategies you've put together to deal with the issues.

Warm best wishes for your ongoing health.

58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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