Diarrhea is back and more pain

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DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Tue Jan 26, 2016 11:28 am

I've read that it's possible that adhesions can cause ischemic colitis so it may have been due to my surgery. I've had tenderness and pain on the right side as well since surgery but maybe that's referred pain. Unfortunately I don't have a medical team as doctors don't work that way here. Doctors here don't sit down together and discuss my various conditions. They do get copies of the results of various tests. I wish I had a medical team. The surgeon who did the sigmoidoscopy and who is doing the colonoscopy said he would talk to GI doctors to find out what other tests should be run to find out the cause of my ischemic colitis. I believe an angiogram would be useful to see where the blood flow to my colon has been reduced. Ideally possibly a referral to a cardiologist but referrals take a long time here. So do getting appointments for scans. I have to wait until March for my sinus ct and until June for my thyroid/neck ultrasound. All of my doctors are aware of all of my medications. I might have had ischemic colitis for a while. It's impossible to say at this point.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

alphagam
Posts: 203
Joined: Tue Jun 14, 2011 10:48 am
Facebook Username: Kathy Maine Ruess

Re: Diarrhea is back and more pain

Postby alphagam » Tue Jan 26, 2016 1:09 pm

DE,

When I had my very first colonoscopy, which is when my rectal tumor was found, my GI was trying to find out why I had constant bowel issues. He took numerous biopsies to rule things out such as celiac disease. If you are having a colonoscopy anyway, have them do a biopsy for celiac. The blood test is a screening tool, but only a biopsy can confirm the diagnosis.

Just an idea....
Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

DarknessEmbraced
Posts: 3577
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Diarrhea is back and more pain

Postby DarknessEmbraced » Tue Jan 26, 2016 1:11 pm

They did a lot of biopsies during my colonoscopy before surgery and during my second sigmoidoscopy. I thought celiac disease was mainly found in the small intestine? I can ask about it.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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