Hello Everyone from Wales, UK

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barbara jayne
Posts: 756
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Hello Everyone from Wales, UK

Postby barbara jayne » Sat Jan 23, 2016 4:12 pm

Hello everyone,
Thought I'd pop back on here to perhaps give hope and encouragement to anyone who is new to dealing with CC.
I'm so happy to say I reached my 8 year cancerversary on January 3rd 2016....
I was diagnosed with stage 3 plus 2 lymph nodes, with the usual chemo to follow, I have to say I was so nervous about my future survival at that point mainly because around 5 years previously my Dad had had a CC. diagnoses ( stage 2 with no lymph nodes involved ) he sadly died just 2 years later.
I embarked on my prescribed treatment only to discover I was highly sensitive to Oxi & I also lacked the enzyme in my body to convert the Xeloda to 5fu rendering it highly toxic ....
Xeloda was discontinued immediately, and I limped my way through a mere 4 rounds of Oxi....
Extremely nervous at that point at the thought of no more chemo !!!
I was left with lasting chemo damage, then got diagnosed with Fybromyalgia and also discovered I have Lynch Syndrome ...
Fast forward to now & I have recently undergone a Laprascopic Hysterectomy + BSO, as a risk reducing measure for my LS, I still see my oncologist once yearly & I also get regular screening colonoscopies.
I am ecstatically happy to be lucky enough to still be here 8 yrs later after such a shaky start.
I hope this gives anyone of you worrying about their outcome some positivity & hope, I had a very bad experience with what turned out to be a comparatively tiny amount of treatment at the beginning of my journey but still made it through to be here to tell the tale :D
I really wish for a good outcome for you all, I think about you all the time and have never forgotten all the lovely folks on here back when I first joined the colonclub ....thank you all so much for giving me hope back then.
Much love Barbara x

Hoping you all stay safe in the current blizzards that are hitting your country right now, take care all x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
10 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

DarknessEmbraced
Posts: 3308
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hello Everyone from Wales, UK

Postby DarknessEmbraced » Sat Jan 23, 2016 6:16 pm

Wonderful news! Congratulations!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18

Andrea1976
Posts: 380
Joined: Sun Jan 03, 2016 10:32 am

Re: Hello Everyone from Wales, UK

Postby Andrea1976 » Sat Jan 23, 2016 6:29 pm

Congratulations!!! So happy to hear!!!
Stage I
pedunculate polyp in descending colon
moderately diff adenocarcinoma 0.6 cm
Tumor confined to the head of the polyp
Stalk margin 2 cm negative for dysplasia and malignancy
Polyp removed during colonoscopy 1/15/16
No lymphovascular involved
No surgery
CEA after polyp removal 0.3
Genetic testing negative for colon and breast cancer
39 year old female. I am not celebrating my 40th but waiting for my big 50 birthday party!!!

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: Hello Everyone from Wales, UK

Postby Bev G » Sat Jan 23, 2016 11:00 pm

Hi Barbara Jayne! So nice to see you again and to hear how well everything is going for you. YAY! A cure!!!! Thanks for checking in.

Love,

Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

User avatar
barbara jayne
Posts: 756
Joined: Thu Feb 26, 2009 7:08 am
Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: Hello Everyone from Wales, UK

Postby barbara jayne » Sun Jan 24, 2016 5:29 am

Thank you all so much, & Bev ! Hope all is well for you and yours .......it's so good to hear from you too ( another old timer like myself ) :D ....
Barbara x
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
10 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927


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