mCRC - one year out of chemo :) NED

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elise
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Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

mCRC - one year out of chemo :) NED

Postby elise » Fri Jan 22, 2016 7:56 am

I'm reflecting on what it means, what it feels like, to go a year without chemo. Today is my second 1st survivorship anniversary (the second time I've hit one year after chemo) but this one is more special. Being a year out of stage 2 colon cancer is very cool but being a year out of chemo for metastatic colon cancer is really special. The journey is far from over and truthfully I've not passed the worst part statistically speaking. But here I am 365 days out and NED. Almost 2 years ago I told myself "Wouldn't it be cool if I beat metastatic cancer..." I have years to go before I'll know for sure but today, I'll let myself feel all the emotions that come with knowing I'm walking a path that very few have the privilege to enjoy. Enjoy the cold on your face today. It's a beautiful reminder that you're alive today.

Chin up,
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

Andrea1976
Posts: 384
Joined: Sun Jan 03, 2016 10:32 am

Re: mCRC - one year out of chemo :) NED

Postby Andrea1976 » Fri Jan 22, 2016 8:11 am

Congratulations!!! What a great success!!! So happy for you!!!

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: mCRC - one year out of chemo :) NED

Postby DarknessEmbraced » Fri Jan 22, 2016 9:06 am

Congratulations! So very happy for you! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: mCRC - one year out of chemo :) NED

Postby mariane » Fri Jan 22, 2016 1:45 pm

Congrats! Many, many more happy years to go!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

Willow.NZ
Posts: 176
Joined: Sun Mar 08, 2015 3:05 am

Re: mCRC - one year out of chemo :) NED

Postby Willow.NZ » Fri Jan 22, 2016 2:40 pm

Congrats, that's awesome & inspiring :D
Dad diagnosed Sept 14 Stage IV. Age 57yrs. Transverse colon - spread to Retroperitoneal, Mesenteric & Supraclavicular lymph nodes. Folfiri commenced Sept 14.
April 15 - Bowel resection
August 15, stable scan
Feb 16 - No signs of cancer on scan...stop chemo & scan in 3 month
Scan April 16, Crazy growth to stomach, lymph nodes & multiple mets to liver. Commencing Folfox.
August: chemo not working. Stopped treatment.
September 3rd 2016 peacefully left this earth.

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: mCRC - one year out of chemo :) NED

Postby juliej » Fri Jan 22, 2016 5:28 pm

elise wrote:Being a year out of stage 2 colon cancer is very cool but being a year out of chemo for metastatic colon cancer is really special.

AMEN to that, sista! :D No one quite gets it like a Stage IV. if you’ve ever faced the possibility of not having much more time, you treat time a whole lot differently . Enjoy and celebrate your life! Congratulations!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: mCRC - one year out of chemo :) NED

Postby stu » Fri Jan 22, 2016 5:30 pm

Great news. Today counts as much as the future , so definitely worth celebrating.
Know no regards
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: mCRC - one year out of chemo :) NED

Postby Bev G » Fri Jan 22, 2016 5:37 pm

Very happy to hear your wonderful news!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

TracieLynn
Posts: 46
Joined: Thu Mar 19, 2015 2:00 pm

Re: mCRC - one year out of chemo :) NED

Postby TracieLynn » Fri Jan 22, 2016 6:33 pm

LOVE hearing this!!! So happy for you!!! In respect to NED, I hope many of us hear that in 2016! Congrats!
43 yr old Wife to DH Stage IIIB w/one Tumor Deposit
1/17 lymph nodes
Low RC Dx 2.26.15 CEA 19.5
Xeloda and Radiation 3.24-5.1
May 2015 break for recover CEA 5.5
LAR June 2015 w/temp ileostomy CEA 3.3
Xelox Aug 2015 and switch To Northwestern
09/2015 blackout, blood clot, seven stitches, on blood thinners
CT scheduled for 12/8/15
Feb 2016 Met to liver. CEA at 3.1
Liver resection @NW 3/23/16
VATS for Lung 5/6/16
More spots popping up lungs
Folfiri+Avastin Started Sept 2016-current (April 2017)

Nik Colon

Re: mCRC - one year out of chemo :) NED

Postby Nik Colon » Fri Jan 22, 2016 7:00 pm

That's wonderful! Congrats!

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: mCRC - one year out of chemo :) NED

Postby KElizabeth » Fri Jan 22, 2016 7:07 pm

Great news! Thanks for sharing, it really does inspire me to kick some cancer butt!
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: mCRC - one year out of chemo :) NED

Postby CRguy » Fri Jan 22, 2016 7:38 pm

elise wrote:Today is my second 1st survivorship anniversary (the second time I've hit one year after chemo) but this one is more special.

Image

YUP .... calls for the squirrel sista' :mrgreen:

Cheers and Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: mCRC - one year out of chemo :) NED

Postby chrissyrice » Fri Jan 22, 2016 8:24 pm

:D :D
Great day and enjoy!
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: mCRC - one year out of chemo :) NED

Postby orcasres » Sat Jan 23, 2016 1:56 am

Wonderful news. Enjoy your day Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: mCRC - one year out of chemo :) NED

Postby Annemiek » Sat Jan 23, 2016 10:51 am

Yiha!
Great to hear! Here's hoping for anothr year witht chemo or cancer.
Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9


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