I'm so confused Mozart
I had CCR at top hospital The Christie with top surgeon and onco looking after me and MDT team he took 8 biopsies under anaesthetic to check and then no cancer cells so said W &W but no extra chemo as he says why when no evidence .. he did say I could speak to onco but seems so confusing ? Helllp ... xxx Annie xxx
sorry Annie for late response, I don't come much here these days.
It's nice that you are CCR, that's actually great. All this guys have their own opinions just like us patients, but at the end it's our skin on the line.
One has to be own advocate here, and look what is in our own best interest.
If you go through my posts on these forum, you'll find a lot's of useful links, with very informative data.
My surgeon that is watching me said that he would do the same as I did.
When I mentioned to my onco that some people that didn't have extra chemo after initial CCR, had to have surgery, basically experienced come back of the tumor, the answer was that one should continue with therapy that already showed good response.
8 rounds of folfox is recommended:https://www.ncbi.nlm.nih.gov/pmc/articl ... Cancer.pdf
As for CCR , there are very strict rules what is considered CCR and what not, there are some good pictures on this link:http://www.iwwd.org/wp-content/uploads/ ... 015-NF.pdf
It's not an easy decision, I went through that process as well, initial surgeon and radiologist were pushing for surgery regardless of response, the surgeon that is following me up now thought that 4 folfox is enough, maybe was right. My onco when I went to talk about skipping surgery and doing only folfox, after initial chemo/rad, and mentioned it's risky, said that every thing is risky. My onco told me that will go for 11 folfox, but will push at least 8, must come from that previous study.
But I tell you something, I don't regret going this way regardless of side effects of folfox.
I started folfox almost 2 1/2 months after finished initial chemo/rad, gave me enough time to recuperate , fix my hemoglobin, dropped little after chemo/rad, also got herpes vaccine, went to see dentist to fix any cavity if any. As for Herpes vaccine , my family md told me to get it, plus there is some study going on about herpes vaccine extract carrying chemo to the targeted cells.
Distant metastasis and small microcells that might be present and floating is what you actually targeting with chemo, are they there or not , who knows ?
Wish you all the best, and smile, you got good reason for it !!!