weisssoccermom wrote:Mine had no issue...I believe because the standard of care protocol calls for testing every 3 - 6 months even following traditional methods. The only time my insurance pitched a fit was at after my 5 year mark. They didn't want to pay for the CT scan. Instead they told me that I could have a chest x-ray and IF it showed something, then they would pay for a CT scan. Other than that, no issues here. That being said, insurance companies don't consider the follow up testing to be 'routine'. They paid for it but I had to pay our deductible first and then I had a 10% copay amount. We had double coverage so for me, I had nothing.
Jolene wrote:My arm is no longer aching, the ache went away around day 4/5 but that was also the time when I felt the most exhausted when the steroid weans off. It's day 12 of my very first cycle and I'm starting to feel mild tingling on my palms. I guessed its coming !!!
Hi Rikamaroo
Did you feel any symptoms before recurrence ? So was it about 6 months after you had stopped chemo rad or more ? Thanks for help xxx Annie ccx
Rikimaroo wrote:Hi Rikamaroo
Did you feel any symptoms before recurrence ? So was it about 6 months after you had stopped chemo rad or more ? Thanks for help xxx Annie ccx
No symptoms. I just went for my 3 month follow-ups and scans and blood work and that is how they saw recurrence.
prs wrote:Hi Jolene, the tingling in the palms is why I suggested not to have the infusion into the back of your hand. The arm/hand ache and tingling slowly get worse with each infusion. It was the third or fourth cycle when they switched from my elbow to hand, but after that infusion my hand was so tender I couldn't even bear to put on a pair of soft gardening gloves. Switching arms half way through the infusion also helped reduce arm ache and tingling.
Scary ? Sorry, I thought I'd read you had blood again etc in stools ? Xxx annie xxx
Rikimaroo wrote:Scary ? Sorry, I thought I'd read you had blood again etc in stools ? Xxx annie xxx
Sorry I misread your post. Yes after chemo radiation which was done in Feb 2017, I thought all was well. I had scopes for 6 months twice and nothing. Then the same bleeding starting happening again and thats how I knew it was back and then confirmed with my next scope.
Jolene wrote:Hey Nifty - was just thinking about you and wondered if you started Chemo !
Congrats on the good pathology news ! What's your WW surveillance arrangement with your team like ?
My mum had a port installed herself a few years back due to colon cancer and she appreciated it. Like you, they often couldn't get a good vein out of her and she was sick of being pricked repeatedly for all sort of blood work and infusions. The fact that she was on 12 cycles of Folfox warrants it even more !
I'm wondering how do the doctors decide between FOLFOX or XELOX for ww patients ! Were you offered XELOX at all ?
My arm is no longer aching, the ache went away around day 4/5 but that was also the time when I felt the most exhausted when the steroid weans off. It's day 12 of my very first cycle and I'm starting to feel mild tingling on my palms. I guessed its coming !!!
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