All treatments stopped..... Now a pill called Lonsurf is here?

[Jason43]

I have not had a round of chemo since nov 5 2015. My tumors continued to spread so I chose to stop treatment or should I say agreed with my oncologist. I have always wanted QOL from day 1 2 years and 2 months ago. I had a long road as I was initially diagnosed at stage 4 right from the start. I've had liver resection , lung resection, tumors removed from colon chemo and other operations since Nov 2013. Fast forward and it's now overwhelming. I'm so tired every day. I try so hard to be normal again but I can't. I'm on many pain meds and really continue with pains in my liver daily. Some days I sleep 12-16 hours only to sleep again within hours of waking up. I've basically made a extremely tough decision to try live as far as I can without the chemo. My onc however told me about a pill called Lonsurf. I'm meeting with her on the 18th to discuss. I don't get labs anymore. I don't get chemo. But I have this weird feeling, like a dream I want to believe so bad that I'm going to be ok. With tumors in my liver lungs and colon I don't know how but I do believe. I don't want to die, im sure nobody does however I can't seem to live with chemo that isn't working. Can anyone give me any info on Lonsurf? Thanks so much. I've recently started a juicing regimen and every day I awake I tell myself I don't have cancer and I'm going to get married to my fiancé and try to be the best Dad I can be to my 9 year old son. I believe in God and with his help and my faith. I'm going to somehow be ok.

[BIGC4ME]

Two words LANCE ARMSTRONG

Never give up and always believe anything can and will happen

[Dana123]

Jason--So sorry about your struggle. Join colontown (colontown.org) and follow the process to get access to their general and Blue Hope Clinic facebook pages. There you will find people with information about Lonsurf and who are taking it, as well as clinical trials. In the meantime, here is some information on it.

http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm463650.htm and https://www.taihooncology.com/us/newsroom/press-releases/Taiho-Oncology-Inc-Announces-FDA-Approval-of-LONSURF-for-Refractory-Metastatic-Colorectal-Cancer

[stu]

Hi Jason.
Good to see you posting. Thanks for updating. I hope this treatment works for you.
Think of you often.
Take care
Stu

[midlifemom]

Lonsurf, like other treatment, seems to cause side effects that Xilonix addresses.
I'm guessing the answer is a big NO, but can folks be on lonsurf and xilonix simultaneously?