Rob in PA wrote:So, getting back to the point I was about to make....Is there anyone else out there who is currently NED but going through a "mini-hell" daily due to effects from years of chemo/surgeries/etc? And, if so, do you find yourself in a "gray" area between treatment and total cure where it is difficult to explain to casual friends that, while I am NED, I have the cancer gift that keeps giving painful/uncomfortable reminders every day that render me unable to function normally?
Hope all the best for everyone this year.
Fightin the fight.
MHL888 wrote:Hi All,
This booklet https://www.beatingbowelcancer.org/sites/default/files/page_files/PsychologicalEffectsofCancer-MikeOsborn-booklet.pdf covers a lot of the points raised in this thread.
While it doesn't contain any earth-shattering 'silver bullet' type advice, I found it well written and useful without being patronising.
Cheers and peace,
esk2poo wrote:Hi Rob,
I do post much at all anymore but I read a couple of times a day. Not sure if that is good or not. I have been thinking about this post since you put it up here. I fought like hell when diagnosed and said throw the heaviest treatment at it. Now, a couple of years later, I wish I was one of the ones that didn't make it. I hate thinking that way when there are so many fighting so hard to see another day but I have been through a lot of shit in my time here on earth and I am already tired and ready to rest. Constant severe neuropathy, pain from neck to toes, cognitive issues, watery diahreea from 10-20 times a day no matter what I do. Best is it starts around 1-2 in the morning and I can't sleep after that. Lost my insurance last year because I lost my job and my original onc does not take my new one. Didn't like the one I saw and don't think I will be keeping February's appointment anyway. I should probably seek some type of professional help but I guess I just don't give a shit anymore. So glad you put this out here though as I am probably not the only one who feels this extreme either.
PainInTheAss wrote:When I was first diagnosed, I couldn't see very far into the future. All I cared about was having a future.
I feel like a broken person. And less than a woman. Nevermind all the odor problems with my colostomy. I just don't see how any man would want me now... Not like this. And deep, deep down inside, that makes me really sad.
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