In the hospital

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In the hospital

Postby DarknessEmbraced » Sun Jan 03, 2016 3:30 pm

Still in the hospital but may be getting out tomorrow. I've been in an isolation room because they were worried about me having an infection. Everyone has to wear gowns and gloves sometimes they wear face masks and I can't leave the room. I have disposable trays, ect.. The sigmoidoscopy showed inflammation above where my bowels were reattached after my colon resection. The infection test came back negative but they are waiting on a parasite test. The doctor thinks it's unlikely that I have parasites. The other possibilities for my colitis(inflammation of the colon) are inflammatory bowel disease like crohns's disease or recurrence of my cancer. Biopsy results are pending and will show whether it's inflammatory bowel disease or cancer. I was on a clear liquid diet for a few days then a full liquid diet. I haven't been having anymore bleeding but my colon is still inflamed. The doctor put me on iv prednisone 3 times a day and said I would have prednisone when I go home. I'm not having as much pain as before and haven't required painful dilaudid shots in the back of my arms. My stomach has been very distended daily. I've had two migraines and was given iv medication last night. I saw an aura last night after my migraine. My boyfriend visits often.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

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Re: In the hospital

Postby Lee » Sun Jan 03, 2016 4:00 pm

So sorry this is happening to you. Hope you are on the mend and out of the hospital tomorrow. I'm sure you have cabin fever by now, I know I would.

Thinking of you, (((HUGS)))

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Location: New Brunswick, Canada

Re: In the hospital

Postby DarknessEmbraced » Sun Jan 03, 2016 4:57 pm

Thanks Lee. I do.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19

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Facebook Username: Kathy Maine Ruess

Re: In the hospital

Postby alphagam » Sun Jan 03, 2016 6:06 pm

Hoping you are out of the hospital soon and finally have a diagnosis for all your pain!

Dx Feb 2010 4 cm tumor, just inside rectum
EUS stated T3 tumor
2nd opinion, need better path
Mar 2010 transanal surgery. Surgery by board certified CRS found tumor only in lining
6 exams of surg site, 3 PET, 3 scopes laterNED.
Scope in Mar2015, clean colon
Next scope/test in 3 years

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Joined: Sun May 25, 2014 1:31 pm

Re: In the hospital

Postby peanut_8 » Sun Jan 03, 2016 7:02 pm

Sorry to hear that you're in the hospital DE. Hope you start feeling better soon, and get to return home.

In the mean time, here is an internet hug for you.


Best Wishes, peanut
female, diagnosed Jan 14, RC stage 2a, age 56
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

Sams wife
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Joined: Sun Jan 11, 2015 2:49 pm

Re: In the hospital

Postby Sams wife » Sun Jan 03, 2016 7:08 pm

Hate to hear that. I thought I missed a post that you went. Maybe they will find you some answers now. Hopefully just some inflammation!! & you are out of there soon.

Aww. I was trying to figure out how to give her Her a hug. That is way better than XXX"s
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

Posts: 288
Joined: Sat Aug 15, 2015 7:47 am

Re: In the hospital

Postby jortego128 » Sun Jan 03, 2016 7:15 pm

Hope everything turns out OK!
DM 57 yrs old dx 6/8/15 T:4a N:1b M:1
KRAS G12D and TP53 C242fs mutations
Poorly Differentiated, Prominent Signet Ring Component(~50%)
Microsatellite Stable, 3 of (13)lymph nodes positive
15 Liver mets, largest 3.2 cm
Prim. Resection, Right Hemicolectomy 6/21/15
Start Chemo 7/20/15
2 rounds FOLFOX, 1 round FOLFOX +Avastin
CT 8/28/15, met growth, largest 4.5cm
4 rounds FOLFOX+Avastin
CT 11/06/15 mets stable, lungs clear
Begin FOLFIRI+Avastin 11/17/15, Stop chemo 1/26/16
Entered Paradise 3/11/2016

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Facebook Username: Diana Wiseley

Re: In the hospital

Postby spinnz » Sun Jan 03, 2016 7:49 pm

I know I'm new on this site, but I wish you a speedy, pain free recovery and good pathology!
Dx age 53 10/8/15
Lap/robotic converted to open sigmoid colectomy, partial small-bowel resection and right salpingo-oophorectomy 10-9-15
CRC stage 3b, T3N1aM0
Margins clear of malignancy
1/27 lymph nodes
Well differentiated
CAT / MRI's indicate NED
FOLFOX + Neulasta- 2 rounds 11/15
Xeloda, 1 week on 1 week off 1/16- 5/16
1/5/16 CEA 1.0, 5/16, 1.0
Factor 13-bleeding disorder
11/15/18 IDC

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Location: Ontario, Canada

Re: In the hospital

Postby Steph20021 » Sun Jan 03, 2016 11:54 pm

Hospital stays are the worst. I'm glad you are getting lots of company from your boyfriend. Best of luck, we're hoping for the best. Hope you get outta there soon!
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
11/18- Beacon trial-encorafenib & cetuximab

Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: In the hospital

Postby JudeD59 » Mon Jan 04, 2016 2:59 am

Oh, man, I didn't know you were in the hospital. I'm so sorry to hear that. Sounds like you've been through hell. I'll be keeping you in my thoughts and hoping for a good outcome when the tests come back and especially hoping you can get the heck out of there soon.

Sending lots of hugs and good energy your way!

56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

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Location: New Zealand

Re: In the hospital

Postby Sophy » Mon Jan 04, 2016 3:56 am

Sending you best wishes for a speedy recovery. Hospital stays can be scary and boring at the same time. Hoping your stay is short and not too boring.
dx T3N1M0 Feb 11 when children age 11, 7 and 2
Xeloda/rad March 11, LAR June 11 temp ileo
Xelox 6 rounds, NED
Lung mets Oct 13
Laser surgery Germany Jan 14. 3 mets left lung.
Laser surgery UK Jun and Aug 14 one met each lung, NED
Aug 14 Started Xeloda and Celebrex (ADAPT)
Oct 2018 CT shows still NED
Continuing ADAPT

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Facebook Username: Nathan Drew Allen

Re: In the hospital

Postby NateA » Mon Jan 04, 2016 3:58 am

Hope you're freed soon! Get well quick! !
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4

Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: In the hospital

Postby cathy123 » Mon Jan 04, 2016 10:44 am

Oh no - I hope you get out soon and they find a benign reason for your pain. Hang in there!

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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Location: Central NYS

Re: In the hospital

Postby BrownBagger » Mon Jan 04, 2016 10:45 am

Wishing you a speedy recovery and quick release. Home is where you heal.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Posts: 10021
Joined: Sun Feb 10, 2008 6:00 pm

Re: In the hospital

Postby CRguy » Mon Jan 04, 2016 2:01 pm

I can't compete with peanut's puppy hugs !!!

BUTT here's hoping you get sprung from the Big House asap ... with good news !

Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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