On the road again

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justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

On the road again

Postby justin case » Thu Dec 24, 2015 5:54 pm

In November of last year, the PA at my oncologist's office, told me my CEA was on the rise, and I had 4 nodules in my lungs :shock: The oncologist would not look in my eyes :shock: My oncologist has always been too straight forward with me, and perhaps the facility noticed. I was told I needed a CT scan, as my CEA was rising. I knew my oncologist, and she was hesitant to push me into the scan. I avoided doing the scan, and waited it out. Again, I saw the PA , who was livid, I didn't get my scan, and my CEA was rising. (She knew I was watching my CEA) Once again, I was not intimidated, as my oncologist didn't even bother to get involved. I told the facility I no longer needed their services, went to another facility, which had my CEA, at 3.2 instead of 6.7 :roll: :roll: :roll:
They recognized 1 node at 6mm, instead of 4 nodes :roll:
Previous PET scans, CT scans, showed that node at 8mm with no cancer :roll:
Saving a few dollars, not doing CT scans, I was able to take a trip to New Orleans, and Biloxi, Mississippi. One of my bucket list items, was to see the Mississippi river, and go to the other side.
I feel great, and it's off to Biloxi, Mississippi once again. Cancer will just have to catch me, before I'm willing to dote on it more 8) 8) 8)
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: On the road again

Postby Sharon Brent » Thu Dec 24, 2015 6:10 pm

Happy Travels my friend have a great time, remember a few pictures for us ....... Please
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: On the road again

Postby juliej » Thu Dec 24, 2015 6:14 pm

What a story, Michael! I'm very happy to hear it turned out so well! However, I was a little worried about this:
justin case wrote: One of my bucket list items, was to see the Mississippi river, and go to the other side.

"Go to the other side"?! :shock: :shock: :shock:

Then I realized you meant the other side of the Mississippi river! Whew! :D

One day I want to go to New Orleans and eat beignets at Cafe du Monde. Did you drink any of the bitter chicory coffee? The story goes that they brewed it with chicory to deter the reportedly effete tastebuds of Union soldiers. Have fun in Biloxi!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: On the road again

Postby justin case » Thu Dec 24, 2015 6:37 pm

juliej wrote:What a story, Michael! I'm very happy to hear it turned out so well! However, I was a little worried about this:
justin case wrote: One of my bucket list items, was to see the Mississippi river, and go to the other side.

"Go to the other side"?! :shock: :shock: :shock:

Then I realized you meant the other side of the Mississippi river! Whew! :D

One day I want to go to New Orleans and eat beignets at Cafe du Monde. Did you drink any of the bitter chicory coffee? The story goes that they brewed it with chicory to deter the reportedly effete tastebuds of Union soldiers. Have fun in Biloxi!

Café Du Monde, was just a few minutes from the Hilton. Mothers Poorboy's (Featured on the food shows) is also very close. The River Hilton, has an outlook on the Mississippi. Harrah's casino is across the street. The French Quarter is within walking distance, as well as Bourbon Street.( If I should happen to get on the other side, I know a lot of good people, just sayin 8)) One day, I may even go to NYC, it's the only city of the big 3, I haven't lived in! As for chicory, I'm not a fan. Community coffee is Louisiana's trademark brand, and is readily available throughout Texas. If I knew how to post pictures here, I would, butt having to go to a web sight to configure the picture, download it to here, is just too much trouble, and way too many opportunities to get Malware.
Happy Holidays,
Michael
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

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CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: On the road again

Postby CRguy » Thu Dec 24, 2015 7:42 pm

Sent you a PM buddy
Have a BLAST !!

Cheers and Mega Harmony for the Holidays
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: On the road again

Postby Lydia666 » Fri Dec 25, 2015 6:39 am

I was wondering how come the nodule we t from 8 to 6 mm if it's not cancer. I have one that went from 3 to 2 mm but nobody explained how could that be if it isn't a met?
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: On the road again

Postby peanut_8 » Fri Dec 25, 2015 10:39 am

Drive careful. Have fun. Drink beer. Win big.
Merry Christmas to my good friend.
Terri
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: On the road again

Postby justin case » Wed Dec 30, 2015 5:17 pm

peanut_8 wrote:Drive careful. Have fun. Drink beer. Win big.
Merry Christmas to my good friend.
Terri

Thanks for the encouragement! Ha! I took all your advice, my friend 8)
Bro Nut
Happy New year to all, and to all a good night :roll: :roll: :roll: :roll: :roll:
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: On the road again

Postby Lee » Wed Dec 30, 2015 7:06 pm

I love New Orleans and Boloxi. I hope you have a wonderful time.

Take care, happy new years,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: On the road again

Postby chrissyrice » Wed Dec 30, 2015 7:57 pm

Michael
How was your trip?

Happy New Year!

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

peanut_8
Posts: 2340
Joined: Sun May 25, 2014 1:31 pm

Re: On the road again

Postby peanut_8 » Wed Dec 30, 2015 8:38 pm

justin case wrote:
peanut_8 wrote:Drive careful. Have fun. Drink beer. Win big.
Merry Christmas to my good friend.
Terri

Thanks for the encouragement! Ha! I took all your advice, my friend 8)
Bro Nut
Happy New year to all, and to all a good night :roll: :roll: :roll: :roll: :roll:


Nice to have you back.

Image
female, diagnosed Jan 14, RC stage 2a, age 56
MSS
April 14, 28 chemo/rad with Xeloda
June 14 adjuvant Xeloda 6 rounds
currently NED

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horizon
Posts: 1593
Joined: Tue Apr 12, 2011 10:10 pm

Re: On the road again

Postby horizon » Wed Dec 30, 2015 10:45 pm

justin case wrote:Thanks for the encouragement! Ha! I took all your advice, my friend 8)
Bro Nut
Happy New year to all, and to all a good night :roll: :roll: :roll: :roll: :roll:


Glad you have fun. I saw Lewis Black in Biloxi a million years ago.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

bitchslapped
Posts: 1534
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: On the road again

Postby bitchslapped » Thu Dec 31, 2015 2:15 pm

How long did it take you to figure out they wouldn't take TP in place of chips :lol: :mrgreen: :D :P
Come on...I know you took some of your own stash along (as any self-respecting survivalist would).

Just throwin some BS your way. Happy New Year!

BS
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

justin case
Posts: 4269
Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: On the road again

Postby justin case » Thu Dec 31, 2015 6:10 pm

bitchslapped wrote:How long did it take you to figure out they wouldn't take TP in place of chips :lol: :mrgreen: :D :P
Come on...I know you took some of your own stash along (as any self-respecting survivalist would).

Just throwin some BS your way. Happy New Year!

BS

Quite frankly, I just didn't eat until I got there :shock: Then in the hotel, I was remiss when I only saw a half of roll, but there it was, another one 8) I'm just pissed I left $42.00 in comp food, so I could drive home :evil: :evil: :evil:
Then I was really worried when traffic shut down on the Achafalalya bridge (22miles long)
Butt life is back to normal,except, I'm pretty sure I will see the New Year, once again :roll: :roll: :roll:
Enjoy yours,
Bro Nut
7/11 diagnosed Stage 2 colon and rectal cancer
chemo/rad
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012


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