Newly diagnosed aged 28

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Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Fri Dec 18, 2015 2:53 am

Thanks Cathy, I plan on dancing with my husband at their weddings. I have to hope anyway that with a lot of medicine & a lot of luck that dream can happen.
I've been refered to genetics but initial tumour testing looks like it's not lynch so that's great news for my family. My parents are in their early 50s no health problems & my mums taken 6months off work to help with the kids while I'm on chemo. They hate that it's me & not them. My inspiration is a friends mum- she was diagnosed in 1992 with aggressive breast cancer (my friend & her brother were babies). She felt like me but now she's in her 50s healthy and has raised her kids. My children need me so doing my best for them xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

Lisa90
Posts: 50
Joined: Tue Oct 13, 2015 4:26 pm

Re: Newly diagnosed aged 28

Postby Lisa90 » Fri Dec 18, 2015 11:23 am

Hey!

Welcome to the board. I was diagnosed a little under 2 weeks before my 25th birthday - I'm quite glad to see another "kid" here :lol:

Sorry to hear about your diagnosis though - it's great that you are so positive.

Take care,
Lisa
25y/o F
Symptom onset Aug '14
Colonoscopy done 1 Sep '15
Emergency colectomy done 2 Sep '15 due to obstructing tumor
DX CC stage IIIB - Sigmoid Colon (Adenocarcinoma)
FOLFOX started 13 Oct '15
Oxaliplatin dropped at treatment 9
Treatment completed 5 May '16
Li-Fraumeni syndrome confirmed

Previous history:
- Rhabdomyosarcoma ('92) Right leg
- Osteosarcoma ('01) Right leg
- Osteosarcoma ('12) Left leg (recurred '14)

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Newly diagnosed aged 28

Postby DarknessEmbraced » Fri Dec 18, 2015 12:22 pm

I was diagnosed with stage 2a colon cancer(T3N0M0) on October 29th, 2014 at age 36. I had half of my sigmoid and half of my rectum removed. No chemo. My first post op colonoscopy was clear and my ct scans were clear as well. Currently NED. I am waiting to get genetic testing done. I'm in Atlantic Canada and there is only one testing facility here so the wait is 18 months. Hope that your chemo goes well. Hope you have a Merry Christmas and a Happy New Year! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Newly diagnosed aged 28

Postby JudeD59 » Fri Dec 18, 2015 12:34 pm

Welcome and I hope you'll find lots of stories and information to help you on your journey here on this board. Everyone is kind and supportive and very willing to answer questions. You have a very good attitude and that's half the battle. I'm betting on you to still be on the dance floor at your children's weddings when the waiters are clearing off the tables and packing up to go home!

Don't be afraid to ask any question. There are no stupid or silly questions and feel free to share any rants, large or small, you need to get off your chest. I must have used the search box a thousand times since I was diagnosed. It's a great resource.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Thu Dec 24, 2015 5:30 am

Thankyou, to be honest I'm terrified but trying to remember I don't need a miracle, just a large bit of luck! My medical team are hoping it won't come back & they have lots of success stories even after recurrence.
I have a few good factors in my favour, low cea, not high grade, low LNR, high Hb it's just the bloody nodes! But if I'd had radiation/chemo first they may have come back clean (as the MRI suggested they were) & we'd all think I was stage 2a... Just shows stage is so variable & ultimately you're either 0% or 100%. Fingers crossed for the latter!
Hope everyone has a cancer free 2016 and every year after that too! Xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Newly diagnosed aged 28

Postby stu » Thu Dec 24, 2015 10:00 am

Hi.
Enjoy your time with your family. For sure there is every likely hood that this will become part of the fabric of your past. You have a robust scanning programme and the tremendous liver unit on your doorstep as an insurance policy with the surgeon to the Queen operating on people like my mum on the NHS and the same liver is still clear 4 1/2 years later. Every reason to enjoy your family for many years to come.
Merry Christmas and many more to you.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Thu Dec 24, 2015 11:48 am

Thanks Stu, so pleased your mum is doing well. My care has been fantastic- diagnosed on a Thursday, staging scans the next day & operated on the Monday. People knock the NHS but my doctors really do care (plus my husbands a GP so I'm biased & know how hard they work!). This Christmas is tough emotionally but as my husband points out- last year we were in blissful ignorance but I had cancer. This year I definitely don't, whether it comes back or not no one knows but if it does I will fight with everything I have to raise my kids.
Totally unrelated but my great gran was shot in the heart accidentally as her brother fooled around with their dads pistol (it was the 1920s). She survived somehow despite the life threatening surgery, she died at 89 of a stroke in her sleep. This is my bullet & I'm trying my best to dodge it. Merry Christmas Stu to you and your family xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

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Bob Bones
Posts: 162
Joined: Tue Jan 22, 2008 2:32 pm
Facebook Username: markcooper1968@btinternet.com
Location: UK

Re: Newly diagnosed aged 28

Postby Bob Bones » Thu Dec 24, 2015 3:08 pm

Have you looked into or been tested for Lynch Syndrome?
Sigmoid Tumor 5cm T(3) , 11/23 nodes
Stage IIIC at age 37, Poorly differentiated
Surgery 23/01/06 ( Laparoscopic )
Converted to Formal because of my anatomy!
6 months of Xeloda
NED 10 years (touch wood)
Lynch Syndrome MSH2

Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Thu Dec 24, 2015 3:24 pm

Hi,
My tumour looks to be non-lynch & I've been referred for DNA testing but looks like this is down to bad luck. Would be extra ironic if I am lynch positive given my surname is funnily enough... Lynch
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED


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