Newly diagnosed aged 28

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Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Newly diagnosed aged 28

Postby Wishingonastar » Wed Dec 16, 2015 12:16 pm

Hello,

I wasn't sure whether to post as it makes this all seem more real but wanted to say thank you as so many of your stories have given me inspiration & hope.
I was diagnosed in October with T2NOMO upper rectal cancer and operated on 2 days later (LAR)- unfortunately restaged as T3 with 4 of 25 nodes showing microscopic spread... Not a good day! As my tumour was completely above the peritoneal reflection docs have decided to skip radiation as my margins were massively clear. I started chemo 5weeks after my op and just finished my second cycle cap and oxy.
This all was diagnosed 4months after my second baby was born (I also have a 3yr old girl). He probably made the tumour bleed (10lb big baby!) which led to my diagnosis so hoping he's saved my life... Terrified of recurrence though my oncologist has given me a 60% chance of this not coming back. Not great but workable. Anyways that's me, I wanted to say hi and thank you for this board and the colonder showing survivor stories, I'm in Scotland & the support is all aimed at over 60s... Not loving being the 28year old in the chemo suite Xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

SurvivorsSpouse
Posts: 88
Joined: Sun Nov 22, 2015 12:38 pm

Re: Newly diagnosed aged 28

Postby SurvivorsSpouse » Wed Dec 16, 2015 1:11 pm

Good luck!!!!!

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: Newly diagnosed aged 28

Postby NZJay » Wed Dec 16, 2015 1:24 pm

Hi. I was diagnosed at 31, and I felt young then... so I can totally understand! Good news about the margins; sad about the spread but there are no guarantees for any stage. I'm similar stage to you, and doing ok thus far. Best wishes :)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

KElizabeth
Posts: 400
Joined: Sat Oct 31, 2015 12:41 pm
Facebook Username: KElizabeth
Location: Omaha

Re: Newly diagnosed aged 28

Postby KElizabeth » Wed Dec 16, 2015 1:30 pm

I'm so sorry you are going through all this with a new baby you would rather be enjoying. Hugs!
You may feel alone at treatment due to your age, but you're not alone here; there are many here that are under 40 and some under 30. We understand much of what you must be feeling. Hang in there!

Elizabeth
Female age 39- ,2 teens.
Colon Cancer - DX March 2013
Age 34 at DX - Stage III B
Resection surgery -May 2013
FOLFOX - June, 2013 to Sept, 2013
5FU plus leukavorin Sept, 2013 to Dec, 2013
METs liver and lungs discovered Sept, 2015
KRAS - MSS
FOLFIRI plus Avastin - Sept, 2015 - July 2017
Durvalumab and Cediranib Sept 2017 Dec 17
FOLFOX with desensitization protocol - current

lynch2015
Posts: 57
Joined: Fri Jun 19, 2015 12:04 pm
Facebook Username: tiffany.mccleary

Re: Newly diagnosed aged 28

Postby lynch2015 » Wed Dec 16, 2015 4:43 pm

Similar to you, I was diagnosed with stage 3b CC 7 months after having my 4th baby. Sorry you are having to go through this!
Lynch positive 2011
Dx stage 3b CC 6/2015
Right hemicolectomy 7/2015
Xeloda and Oxaliplatin 9/2015, 8 rounds
Xeloda reduced 10/2015
Oxaliplatin reaction on rounds 2 & 3
Oxaliplatin reduced to 75%
Oxaliplatin administered over 5 hrs to avoid reaction
Wife and mommy to 4 girls

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Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: Newly diagnosed aged 28

Postby Sharon Brent » Wed Dec 16, 2015 6:00 pm

Greetings and sorry you had to join us here, sending you lots of hugs and strength for the Journey ahead, live each day as it comes and never loose hope.

This is an amazing Forum I have fond it a great help thought-out my Husbands journey, I'm based in London so there are a few of us in the same Time zone.

Ask questions if you need/want there is a wealth of knowledge and helpful people here.

Good Luck
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Newly diagnosed aged 28

Postby Lydia666 » Wed Dec 16, 2015 6:57 pm

Sorry you had to join the club, but welcome. All the best to you!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Iitg ritesh
Posts: 173
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: Newly diagnosed aged 28

Postby Iitg ritesh » Thu Dec 17, 2015 12:10 am

I also got diagnosed at 31 year 4 month in 2013.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Thu Dec 17, 2015 1:18 am

Thank you for the replies, helps to feel less alone though wish no one had this disease in the first place.
I know my chances are crappy but also know it could have been worse and I'm fighting with all I've got to stay with my husband and children. I had a very odd vivid dream of my baby boy a few weeks after surgery where I was taking him to a swimming lesson aged around 6/7yrs. Weird as I hate swimming & never dream of my kids being older. Taking it as a sign I'll get through this, maybe I'm wrong but it stupidly gave me more hope than my oncologist repeatedly telling me they're aiming for cure... Hope everyone is enjoying the Christmas run up. We're finding it hard but putting on our happy faces for my 3yr old xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

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O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

Re: Newly diagnosed aged 28

Postby O Stoma Mia » Thu Dec 17, 2015 3:58 am

Welcome to the Club. and I'm sorry to see that you have to be here.

I have a couple of comments/questions:

I think it would be a good idea to create a signature and put all of the essential information there. The link for creating a signature is here:

http://coloncancersupport.colonclub.com/ucp.php?i=ucp_profile&mode=signature

Did your surgery include a temporary ileostomy? If so, this information should be included in your signature as well.

stu
Posts: 1429
Joined: Sat Aug 17, 2013 5:46 pm

Re: Newly diagnosed aged 28

Postby stu » Thu Dec 17, 2015 4:20 am

Hello,
A fellow Scott. Welcome. I agree being a smaller population it is aimed at an older age group, however with a rise in young people getting bowel cancer going up by 125% in the UK I think this will have to broaden out.
My mum is a stage 4 patient and has been for over six years. Cant fault the care she has had and we have both benefitted by all the knowledge shared here.
I hope the anxiety of recurrence settles for you and you can get on with enjoying your children without that pressure.
Kind regards
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Annemiek
Posts: 304
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: Newly diagnosed aged 28

Postby Annemiek » Thu Dec 17, 2015 7:11 am

Hi,
Welcome to ths place nobody wants to be. Amazing bunch of people who can help you Loads.
I'm from the Netherlands but have lived in Aberdeen for a bit, wheabouts are you based in Scotland?
I was 42 when disagnosed and also the youngest in the chemo suite ( not by far though...) i usually took my ipad and headphones and watched kill bill or some other violent movie, as the natter of the old ladies and support team drove me nuts. :roll: not to mention the chemo seems to have the effect on me that I wanted to swear swear and swear some more :oops:

60% is good, remember stats are only stats and you are on the young and otherwise healthy side of the stats, everyone is different! Take it easy, hope you have support with your little ones as being on chemo and two kids sounds even more draining other 2 kids alone!!

Big hug!
Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

User avatar
elise
Posts: 1519
Joined: Fri Apr 27, 2012 5:09 pm
Location: Ontario (Canada)

Re: Newly diagnosed aged 28

Postby elise » Thu Dec 17, 2015 9:10 am

Hello from another young-in :)

I was dx with T3N0M0 in 2012 when I was 30 and metastatic CRC in 2014. I'm now NED :)

Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED

Wishingonastar
Posts: 21
Joined: Wed Dec 16, 2015 11:58 am

Re: Newly diagnosed aged 28

Postby Wishingonastar » Thu Dec 17, 2015 10:58 am

So pleased you're NED Elise! Lovely to see even if it does come back there can be hope. I feel like a proper stalker for some forum members, I've read the good news stories so many times my husbands fed up of me reading them out!
Annemiek I agree with the swearing, in my head I'm urging on the chemo to hunt & destroy with lots of explicit language! I studied in Aberdeen & lived there for 6yrs but now live in my native Edinburgh (brought my Aberdonian husband back with me.)
I'm terrified but knew something was wrong even before symptoms, my body felt 'off'. Now i feel like I have a future again & hoping it's a long one. If I was in a car crash & someone said I had a 50/50 chance I'd bet on surviving, cancer is like one loooooong car crash & the mental side so far has been way worse than physical xx
Diagnosed 8th oct 2015 with upper rectal cancer aged 28. 4.5 months postpartum
LAR & TME 12th oct, no stoma.
pT3 4/25 nodes stage 3
Started cap/oxy 13th November 2015
CT scan: Nov 2016 NED

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Newly diagnosed aged 28

Postby cathy123 » Thu Dec 17, 2015 8:44 pm

Wishing - are they doing any genetic testing? Since you are so young it would be good to know if there is a possibility of lynch.

I agree 100% that the mental part of this fight is the toughest. You are on you're way thru now - hang in there'. I hope you have many happy years ahead with your babies.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds


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