I'm still Glad..

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jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

I'm still Glad..

Postby jvaime21 » Sun Dec 13, 2015 8:50 pm

Hi everyone ,. How you doin guyz ?? Im so sad to be back here as im not seeing some of our friends anymore . Its been almost one year i guess.. For my last update of my husband situation.. Since he went home in his origin country .. We are very busy almost year for his another treatment.. And another 4 cycles again..
We still hoping that it will be better even a bit. But sadly not.. Side effects are too much . So we ended april his trearment as nothing changes or no changes in his tumor and much 2x worse how he feels for everyday.. He doesnt wNt to quit but his body telling him again.. As the doctor said last year that hes lucky if he can make it for one year alive.. But .. Its been 14 months . Since the doctor said.
We just still continue the immune cell boosting.. And he gain weight now. But i know the tumor is progressing.
I can say that Wenstill feel bless and glad that despite of hard time the whole year he is still alive.. Even he cant walk well anymore.
Thank you for reading ..

Merry christmas and advance happy new year !!

Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: I'm still Glad..

Postby Lee » Sun Dec 13, 2015 10:30 pm

Hi Retchel,

Good to see your post. I think of you and your DH often. Sorry it is not better for DH, butt sometimes we must choose quality of life over quantity.

Gaining weight is a good news.

Enjoy your time together. Make those memories now. May you both a good holiday and a Happy New Years.

((((HUGS))) to you and your DH.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: I'm still Glad..

Postby midlifemom » Sun Dec 13, 2015 10:38 pm

Retchel,
Good to hear from you again. Sorry your news isn't better.
I hope you have the chance to make a few more good memories.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

User avatar
Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: I'm still Glad..

Postby Sharon Brent » Sun Dec 13, 2015 11:33 pm

Hi,
I think you used to post before I joined, but in any case I just wanted to send you some hugs and to let you know that I understand what you are going.
Keep hope alive and have an amazing Christmas
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

DarknessEmbraced
Posts: 3545
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I'm still Glad..

Postby DarknessEmbraced » Mon Dec 14, 2015 10:16 pm

I'm glad that he's gaining weight. That's really good! Enjoy your time together! Hope you both have a Merry Christmas!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

jvaime21
Posts: 308
Joined: Sat Sep 14, 2013 5:35 am
Facebook Username: alpha21_2003

Re: I'm still Glad..

Postby jvaime21 » Thu Dec 17, 2015 6:38 pm

Hi everyone ., thank you guys .. For thinking of me and hugs.. Im not so often to check in .
Yeah, gaining weight is good just because of Immucell . That hes taking. .
One night he is so down .. Still couldnt accept everything.. Couldnt play to our 5 1/2 yr old son.. Or even to attend a stage play in school.
But i tried so hard to make everything eaiser.. People say behind my back that im easy going for everything especially in my DH situatiin .
Its tough to raise your son alone with a very sick husband.. But i dont want to cry and cry all day or everyday.. I cant show my DH a feeling that its too difficult for me.. I cant show him im down?? I need to give him strength and be glad everyday that he is alive .. Watching his favorite sport ., laughing watching comedy show. And to be thankful that his still here .. overcome another day and the terrible night of pain.
Some people i dont understand it..just Because they saw me im not crying or showing them of my sadness . They thought i dont care of my DH situation. Well da-- n them !!!! ! I dont need gossip in my life..
Sorry for this i just need to shout it out..

Advance merry christmas again ..
Retchel
wife of Stg 4 SRC
Diag.'12-2013(rd+Xeloda+oxi)
04/16/14 Clear CT-
8/25/14Kidney blockd nepro.
Rec. lung 1 enlrg. Abdomen
Inoperable/incurable /Chemo for life
11/21/14 Xeloda+Irinetocan 6x
hoping for a bright sunny day

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: I'm still Glad..

Postby Sams wife » Thu Dec 17, 2015 7:09 pm

I mope you guys have a merry Christmas.

." They thought i dont care of my DH situation. Well da-- n them !!!! ! I dont need gossip in my life.."

I'd say da--n them too !! No you don't need that!!
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5


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