New scan ... Waiting

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Bat-Mom
Posts: 101
Joined: Sun Feb 09, 2014 8:01 pm
Location: FL was RI

New scan ... Waiting

Postby Bat-Mom » Fri Dec 11, 2015 12:27 pm

Going to be a long week. 3 months ago my cea doubled. Was 1.6 went to 3.9. Doctor pushed it off to new lab, the test isn't accurate, etc. just did blood work and now 4.1 and waiting on my six month CT. This just does not get easier.

So my CT scan at my new doc I had to drink two bottles of Barium. But my old CT scans I didn't have too. Does anyone know why? I am wondering if my new scan is on old equipment that isn't too accurate but the tech says that she is sure it is just a different protocol for a different Doctor. I thought I had pretty good docs and facilities in Rhode Island. CT scans were done in hospital. Here they are done in a strip mall. Should I be worried?
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: New scan ... Waiting

Postby midlifemom » Fri Dec 11, 2015 12:47 pm

Sorry, don't know anything about CT protocols.
I hope things go well.
You're right, it doesn't get easier.
Just one thought. There are two different 'scales' for measuring cea.
One has upper normal limit of 3, the other is 5.
A copy of your lab work should show the parameters for that test.
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

Lund5505
Posts: 69
Joined: Tue Jul 08, 2014 1:37 am

Re: New scan ... Waiting

Postby Lund5505 » Fri Dec 11, 2015 12:54 pm

I wouldn't worry too much. I've had scans where Ive had to drink the chalky stuff and scans where it was clear juice stuff and scans with just water. It seems to depend on the particular sites radiologist preferences. All types results turn out the same.

When is your next ct or are you waiting on results?
10/2013 dx female @54 stage IV innumerable liver mets
CEA 2600 kras wild MSS
11/2013 folfox avastin 8 rounds
6/2014 neuropathy development CEA 9.8 but won't go lower
8/2014 colon resection
11/2014 folfiri and cetuximab 9 rounds CEA 1700
4/2015 cetuximab only 4 rounds CEA down to 20 but won't go lower
7/2015 chemo break getting too toxic
10/2015 xeloda 3 rounds CEA 800 then 300 then back up to 900
1/2016 irinotecan CEA 1800 at start 2/2016 too toxic
4/2016 Cea 3200
Hospice recommended but I'm not ready yet

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: New scan ... Waiting

Postby JDinNC » Fri Dec 11, 2015 2:25 pm

I just went and picked up my delicious french vanilla liquid chalk yesterday for my CT on Monday. This time I have to drink it two hours before the scan. Other times they had me drink it while sitting in the waiting room so it looks like there are different protocols for different doctors/scans
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: New scan ... Waiting

Postby DarknessEmbraced » Fri Dec 11, 2015 4:40 pm

Good luck with your scans! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Bat-Mom
Posts: 101
Joined: Sun Feb 09, 2014 8:01 pm
Location: FL was RI

Re: New scan ... Waiting

Postby Bat-Mom » Fri Dec 11, 2015 8:28 pm

Thanks all. Results on 17th. Looking forward to getting it over with.
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???

User avatar
NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: New scan ... Waiting

Postby NZJay » Mon Dec 14, 2015 1:06 pm

I have my fingers crossed for a good outcome for you. So many things can impact CEA.
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

RobDontGiveUp
Posts: 30
Joined: Mon Jul 06, 2015 9:17 pm

Re: New scan ... Waiting

Postby RobDontGiveUp » Wed Dec 16, 2015 10:36 pm

get my scan results tomorrow so I know how you feel.

I just finished my first 12 rounds of chemo and there was shrinkage halfway through so I'm hoping for NED.

I wish you the best of luck with your results.
35 M dx Stage IVA colon cancer 7/15 w/
mets to retroperitoneal lymph nodes, suspected neck and para aortic as well
CAA 19-9 <3
12 rounds of FOLFOX W Vectibix 7/15
partial remission with shrinkage of tumor and ln's. Switch to XelodaAvastin 12/15
complete remission NED 6/16 Still on XelodaAvastin
Cancer returns in ln's Start Folfiri Vectibix 10/16
Shrinkage in ln's Folfiri vectibix 2/17
Tumor returns to cecum but ln's remain stable, right hemi 7/17
Folfiri Vectibix 8/17
lung mets 2 nods 2.5cm Stivarga 6/18

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: New scan ... Waiting

Postby lpas » Wed Dec 16, 2015 10:47 pm

Will be thinking of you tomorrow. Good luck!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

Steph20021
Posts: 553
Joined: Sat Dec 27, 2014 4:58 pm
Location: Ontario, Canada

Re: New scan ... Waiting

Postby Steph20021 » Wed Dec 16, 2015 11:16 pm

Bat-Mom wrote:Going to be a long week. 3 months ago my cea doubled. Was 1.6 went to 3.9. Doctor pushed it off to new lab, the test isn't accurate, etc. just did blood work and now 4.1 and waiting on my six month CT. This just does not get easier.

So my CT scan at my new doc I had to drink two bottles of Barium. But my old CT scans I didn't have too. Does anyone know why? I am wondering if my new scan is on old equipment that isn't too accurate but the tech says that she is sure it is just a different protocol for a different Doctor. I thought I had pretty good docs and facilities in Rhode Island. CT scans were done in hospital. Here they are done in a strip mall. Should I be worried?


Hoping for good results for you tomorrow. I hate the stupid cea and what it does to us.
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab

iitg.ritesh
Posts: 174
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: New scan ... Waiting

Postby iitg.ritesh » Thu Dec 17, 2015 12:03 am

Thinking of you tomorrow.
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

Bat-Mom
Posts: 101
Joined: Sun Feb 09, 2014 8:01 pm
Location: FL was RI

Re: New scan ... Waiting

Postby Bat-Mom » Thu Dec 17, 2015 8:19 am

Thanks all. Wait is down to 6 hours. Ugh. My doc has the See Your Chart application on his portal. That's where I read my labs from. It has my mammogram from months ago but not my CT. Makes me even more nervous that it isn't posted. Could be a backlog. Could be that They put CTs in after the appt Could be a misfile. Could be nothing.
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: New scan ... Waiting

Postby lpas » Thu Dec 17, 2015 9:46 pm

Any news Bat-Mom? Hope it went well.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

iitg.ritesh
Posts: 174
Joined: Mon Aug 25, 2014 7:11 am
Location: WA

Re: New scan ... Waiting

Postby iitg.ritesh » Fri Dec 18, 2015 8:05 pm

Hope everthing is good :D
32yo Dx@rectal cancer 05/10/13, CEA 3.4
chemoradiation, xeloda finished on 02/12/13
LAR surgery 22/01/14, pT3N0, 0/3 nodes, folfox 02/14--06/14 , 8 cycles folfox, 4 cycles of xeloda
Stricture due to radiation, diversion colitis
Reversal 14/10/14
NED

Bat-Mom
Posts: 101
Joined: Sun Feb 09, 2014 8:01 pm
Location: FL was RI

Re: New scan ... Waiting

Postby Bat-Mom » Fri Dec 18, 2015 8:44 pm

Well results are in. Not as good as I had hoped. Found a complex mass in right ovary. Not happy about it. Nurse said that complex isnt the best news. Doc sent me for CA125 marker with follow up cea and some ultrasounds. Worst case it is a recurrence, middle of the road would be a new cancer or best case benign but regardless of which it is he recommends removal of the ovary asap.

Going to be a long few days waiting for those results. So tiring.

I am not sure what to do. Like the doc and like the nurse but I really don't feel good about the facility. Asked for a referral to Moffitt in Tampa but I really don't want to delay treatment waiting on more appointments.

Kind of still in shock. It's not like I am using the ovary for much but I was really hoping to stop having surgeries. Told my husband I am going to be hollow soon.
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???


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