our cancer creed

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helen098
Posts: 2005
Joined: Sun Jul 01, 2007 2:07 pm
Location: Forest Hills New York

our cancer creed

Postby helen098 » Thu Dec 10, 2015 4:24 pm

I think we should write a cancer greed sort of like the travelers never stand when you can sit, sit when you can lie down…. to give to all newbies

I will start
Cancer Sucks but not all of the people you meet will.
Eat/drink whatever you can whenever you can
Exercise – even if it’s just standing up – every day
Nap daily because once you return to “normal” there will be no more naps
never trust a fart


what can you add?
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: our cancer creed

Postby lpas » Thu Dec 10, 2015 11:30 pm

Cancer is a marathon, not a sprint.

Don't spend so much time worrying about the future that you forget to enjoy the present.

Be your own best advocate.
Last edited by lpas on Fri Dec 11, 2015 10:19 am, edited 1 time in total.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

midlifemom
Posts: 1358
Joined: Wed Jan 15, 2014 10:58 am
Location: NJ

Re: our cancer creed

Postby midlifemom » Fri Dec 11, 2015 6:56 am

Breathe
Stage 3 cc - dx Jan '14 age 53, cea 2.9
t2n2m0, KRAS mutant, MSS
Folfox Feb - Aug '14
Nov '14 cea 27.7 -2 liver masses
Dec '14 left lobectomy and HAI
Jan '15 FUDR and FOLFIRI
Aug '15 fudr done, liver clear, add avastin for lungs. Cea 4.3
Feb '16 CEA rising
May '16 2 wk break then drop Iri for 6 weeks.
Jul '16 cancer grew, constricted main bile duct. Stent inserted. On break till jaundice clears. CEA climbing. Doing reduced Folfox. Allergic to Oxali.
Sep'16 chemo failed. Trial or hospice?

sjring
Posts: 181
Joined: Mon Jun 30, 2014 3:16 pm
Location: Philadelphia, PA

Re: our cancer creed

Postby sjring » Fri Dec 11, 2015 8:39 am

Dr. Google is not board certified.
50 YO Husband & father of 2 teenagers.
DX 9/9/13 Stage 4 cc (at age 48)
16 Rounds FOLFOX + Avastin (Oct-13 to May-14)
Maintenance chemo - Avastin & 5-FU infusions (Jun-14 to Jul-15)
Jul-15: Mets to lymph nodes, resuming FOLFOX
Sep-15: MRI showed stability, back to maintenance chemo.

dudette
Posts: 106
Joined: Sat Oct 17, 2015 10:04 am

Re: our cancer creed

Postby dudette » Fri Dec 11, 2015 1:25 pm

never trust a fart


Helen, that just cracked me up :lol: - but unfortunately it's true.
Temi
Dx 03/2015 @ age 41 - CC stage IV - pT3 N2b (14/29) cM1 (hep) L1 V1 Pn1 R1
Wild K-RAS, N-RAS, BRAF / MSS
unresectable mets liver 60% + lungs
Surgery
04/15 - sigmoid resect.
07/16 - hysterectomy (ovaries)
Chemo
05-06/15 - 4 x Folfirinox
12/15 - 02/16 4 x Xeliri + Avastin
03-05/16 9 x Xeloda
09-12/16 Folfiri + Cetuximab
01/2017 - metronomic chemo + methadone
July 20, 2107 - Temi has passed away.

SugarBubbie
Posts: 239
Joined: Sun Jun 12, 2011 3:55 pm
Facebook Username: Rhonda Pinkston
Location: Texas

Re: our cancer creed

Postby SugarBubbie » Fri Dec 11, 2015 7:38 pm

Hurry up and wait.......happens to me every visit to mda
DX Stage II anal cancer 2007 age 57
Radiation 6 weeks, Xeloda/oxilaplatin
DX Breast cancer Jun 2011 Stage3 one lymph nodes
Taxol 12 weeks FAC 4 tx, 31 radiations
5 year survivor certificate from MDA 2012 for anal cancer
DX triple neg bc oct 2015 4 rounds adriamyicyn, 20 radiations
"Positivity has no downside"

User avatar
vilca11
Posts: 730
Joined: Fri Feb 14, 2014 11:19 am
Location: Moscow, Russia; Baltimore, USA 1992; Vilcabamba, Ecuador 2012

Re: our cancer creed

Postby vilca11 » Sat Dec 12, 2015 10:17 am

DO NOT THINK !!!!! Recite Bumpy Dumpy every time you think your thinking.
11/2005 CC stage 1, F,50yo@dx
Mod dif adenocar, MSS, APC, TP53, CEAs1.6-4.8
1/12 1met liver@Vena Cava, RFA, 3oxi,11 5FU
8/13 2 mets same place,SBRT
4/14 2 Xeliri+Avastin
5/14 Nano Knife liver same 2 mets
6/14 2 Xeliri, ADAPT
4/15 PET, 2 same mets,Cryo Liver
5/15 MJ Oil, Herbs, Suppl, ADAPT
10/15 PET, same area, doubled in size, high SUV
10/15 RH, HAI, visceral involv., no LN
2/16 red FF, 50% red dose FUDR, CEA trends up
3/16 CT, PET, MRI L.Lobe all in small tumors
4/16 No acceptable options, going home

User avatar
Sharon Brent
Posts: 288
Joined: Mon Oct 06, 2014 5:19 am
Location: London England

Re: our cancer creed

Postby Sharon Brent » Wed Dec 16, 2015 6:31 pm

Never Loose Hope
Live Each Day as it Comes
Our Type is Cancer is a pain in our Bums
DH, 47yo, Dx Stg IV, mCRC, lvr, lng 1/14, Tx Capeciabine 9 rnds
Children 5 & 1
DH 48th Birthday 6 November in Hospital
Home palliative care on 12 November 2014
Called back to Jesus 4pm 15 November 2014
Life Celebration in Nigeria 8 January 2015

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: our cancer creed

Postby Sams wife » Wed Dec 16, 2015 10:28 pm

midlifemom wrote:Breathe


Good one. I forgot to do that for a while.
Still do.
All of them good so far!
Marathon, not a sprint, got me before "breathe"
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5


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