No chemo for me again this week

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JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

No chemo for me again this week

Postby JudeD59 » Wed Dec 09, 2015 5:03 pm

Went in for my appt today. Doc asked how I felt about trying Folfox one more time but at a lowered dose and then if my side effects were as severe, we would go to 5FU only for the last six treatments. I agreed to try it. I was still running a slight fever when I got to his office but he said as long as it didn't go above 101, it was okay. I asked about coming in on Friday to have my pump removed instead of having a home nurse remove it and getting fluids at that time. He said that was an excellent idea and he wanted me scheduled for fluids next Tuesday and Thursday as well. So I set all that up with the scheduling department and then went in for my infusion.

It took them about a half hour to get blood. Wouldn't come out so they shot heparin in, still wouldn't come out, shot in some other drug and finally got good blood draw. Came back a few minutes later to say my WBC is still 2.5 and they weren't going to give me chemo today. Going to try again next Wednesday and see if count is improved by then.

Oh well.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

cathy123
Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: No chemo for me again this week

Postby cathy123 » Wed Dec 09, 2015 5:41 pm

So sorry Judy. Have you been feeling better (other than the fever?). i hope next week is better for you. I am sure it is tempting to just say forget it. Meanwhile find something fun to do this week.
Cathy

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

Sams wife
Posts: 749
Joined: Sun Jan 11, 2015 2:49 pm

Re: No chemo for me again this week

Postby Sams wife » Wed Dec 09, 2015 9:49 pm

WbC means no immune system. Right?
RBC means you need to get blood?

I was about to reply to your fever post. Hubby has a 99 fever at least 2 days a week. We have antibiotics here just in case. Doc said it would happen on weekend or night time. We need some here. I hope your doc is on top of it. Hubby's just on 5 FU tho. No experience or wisdom here.

I think you should do something fun too. Just not in a really public place. :D
My Christmas tree isn't up yet so maybe we can do that for fun? Hope you get some rest being hydrated. Hopefully they keep you coming in for it.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5

Rstarrg
Posts: 69
Joined: Thu Aug 27, 2015 7:25 pm

Re: No chemo for me again this week

Postby Rstarrg » Wed Dec 09, 2015 11:03 pm

Thinking about you Ms Judy!
Diag rectal 2a 7/27/15
Age 43
9/18/15 completed radi and xeloda
LAR Surgery 10/23/15 w/temp ileo
Started post surgery chemo (xeloda and infusions (8 total) 11/30/15
Completed 7/8 oxiplatin and Zelda
5/17/16 reversal
8/23/16 CT Scan (getting results 8/26)
Widow
Lost husband 7/14 to carcinoma unknown primary
Mother to 3 boys - 15, 13 and 11
NED 8/16, 11/16
Next scan end of 2/17

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: No chemo for me again this week

Postby Lydia666 » Thu Dec 10, 2015 10:24 am

I'm glad you are getting a break , Judy! Looking forward to your updates.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: No chemo for me again this week

Postby Lydia666 » Thu Dec 10, 2015 11:18 am

I wanted to add that i saw my onc today and I asked again how come she gave me only Xeloda when in fact the goal is to kill a stray cell either way, and she said : we are not killing a fly with a bazooka . :) So if you have to switch to 5fu only, rest assured that in Canada that's what you would've gotten anyway.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

JAZZToo
Posts: 509
Joined: Sun Oct 01, 2006 10:46 am
Location: New York City

Re: No chemo for me again this week

Postby JAZZToo » Thu Dec 10, 2015 12:31 pm

Judy
Have you had any Neupogen injections? When I had very low counts I was given Neupogen which is faster acting than Neulasta. If you get either of them be sure to take Claritin to prevent/lessen any aches and pains from the injection.
Leslie

DarknessEmbraced
Posts: 3444
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: No chemo for me again this week

Postby DarknessEmbraced » Thu Dec 10, 2015 2:36 pm

I hope your counts go up and that you can get your chemo next week!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: No chemo for me again this week

Postby JudeD59 » Thu Dec 10, 2015 2:58 pm

JAZZToo wrote:Judy
Have you had any Neupogen injections? When I had very low counts I was given Neupogen which is faster acting than Neulasta. If you get either of them be sure to take Claritin to prevent/lessen any aches and pains from the injection.
Leslie


Not yet. I think they are giving it one more week to see if it comes back up naturally. He hasn't mentioned any injections yet. Thanks for the advice.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

User avatar
hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: No chemo for me again this week

Postby hopeful » Thu Dec 10, 2015 3:14 pm

I remember several times when my husband's chemo was delayed, especially toward the end of his treatments. He got injections several times for low white count, I forget what the name was. I was sometimes surprised how quickly they bounced back. He never had any bad reactions to them. His were also delayed a couple times for low red cell count. They just went back up on there own after delaying.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

fwang910
Posts: 29
Joined: Sat Oct 31, 2015 5:17 am
Location: Melbourne, Australia

Re: No chemo for me again this week

Postby fwang910 » Sat Dec 12, 2015 12:11 am

Hi Judy,

Have a good rest till you have the next treatment, one day at a time. I know how it feels, though I only had 5-Fu before surgery.
I'm having Folfox + Avastin from Monday 14th Dec onwards. Thanks for your great feedback on this bloody healing juice!!! :lol: :lol: :lol:

Let's fight against it all together!

Leo
32 years old male from Melbourne, Australia,
Diagnosis: 14th May 2015 - Stage 3 Ultra Low Rectal Cancer (1cm from verge)
Treatment 1: 1st June 2015 - 9th July 2015 - 6 weeks chemo (5FU) & 28 rounds radiation.
Treatment 2: 10th Oct 2015 - APR; Stoma wasn't working; 23rd Oct 2015 - Stoma revision + Flexible Sigmoidoscopy
PET-CT: 30th Nov 2015 - 1 lung met(6mm) , 2 other spots on right lower lung AND 2 spots on lymph glands ( chest)
Treatment 3: 14th Dec 2015 - FOLFOX + AVASTIN

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: No chemo for me again this week

Postby JudeD59 » Sat Dec 12, 2015 2:09 am

Thanks, everyone! I'm hanging in there. I can't seem to get my strength back up and even though the chemo was three weeks and two days ago and the diarrhea stopped two weeks ago, and I've been in for IV fluids 3 or 4 times (I lost count), I'm still feeling pretty lousy. I'm drinking Smart Water, Ensure, and occasionally some cranberry juice or ginger ale, but I think I'll have to go in for fluids again. I always have a 24 oz cup of Smart Water by me and I finish 3 of them a day plus two Ensures, but I think I'm still dehydrated. I'm just not peeing very much compared to how much I'm drinking and the dizziness and weak voice keep coming back. I do still have a slight fever so that is probably burning off some fluids and the surgeon said that I seem to one of those people who will always be slightly dehydrated as long as I have my ileostomy. Some days are better than others, but no days are very good. I get up and putter around for 10-15 minutes and then have to sit or lay down for awhile before I can try again. I'm starting to worry that I'm not going to be able to tolerate chemo and they'll decide to just stop it and have me take my chances with recurrence. I know I should take it one day at a time and not worry about what might be until I see the onc again on Wednesday, but I'm a worrier by nature, so of course my mind can't think about anything else.

After pooping both into the bag and out the backside for a month after surgery, that stopped and I just occasionally passed a bit of mucus. Suddenly one day last week, I pooped the old-fashioned way again. Not just mucus, but a normal bowel movement. I told my onc in response to some question he asked and he said, "Really? That's very unusual." You'd think he'd be used to my body doing unusual things by now, but I guess not.

Thank goodness for online shopping or I wouldn't have any gifts for anyone! Luckily, wrapping gifts is something I can do sitting down so I am getting that done. And my daughters will help me decorate the house and make the cookies. We'll try to make it as festive a Christmas as possible under the circumstances.

Lydia, I think they are using the "bazooka" to try to kill the "fly" because of my high CEA numbers pre-surgery. They told me because of those numbers, they were going to be aggressive in my treatment. But thanks for letting me know about your treatment. That makes me feel better if I do have to switch to just xeloda. :)

I hope you all are doing well and have a wonderful holiday season. I'll let you know if I do go back in for more IV fluids and of course I'll let you know if I am able to have my infusion on Wednesday.

Thankful for all the support and sending hugs to all of you.

Judy
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4


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