Had my last mini scope yesterday - yeah!!

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Had my last mini scope yesterday - yeah!!

Postby weisssoccermom » Sat Dec 05, 2015 10:04 am

Honestly, I was a little surprised when I got the letter in the mail saying that I was due for a mini flex sig in October, but I dutifully made the appointment for yesterday and went in. Spent the night in Seattle at our condo...no way I was going to try and drive up early in the morning for a 7:45am check in!!
After they admitted me and put me through all the questions, etc. my surgeon came in and asked me what was going on that brought me in to her. What type of problems was I having? WHAT? I told her that her office said I was supposed to be there and she replied with, 'oh you don't need to be in for another colonscopy until 2018'...to which I replied...'I have already done the 'prep' (two enemas) and she WAS doing the mini flex sig so let's get it over with'.

Everything was fine....clean, no polyps, barely any scar left from my excision and hardly any visible radiation damage. Dr. couldn't believe it has been 9.5 years since my diagnosis and almost 9 years since my surgery. Told me that I am DONE with these mini scopes unless I experience a problem. All I have to see her for are the once every 5 year full colonoscopies ....and unless she finds some polyps, I will stay on that schedule. No more CT scans, no more onc visits, now no more surgeon visits, CEA's are finally done.....I guess I'm totally done with the whole cancer journey although I don't think I will ever let my guard down again.

I'm actually more nervous about DH's scope on the 18th....will breathe a little better when he is all done and we know that nothing is wrong with him.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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Re: Had my last mini scope yesterday - yeah!!

Postby CatHair » Sat Dec 05, 2015 10:51 am

F 55 at Dx
Dx rectal cancer 7/22/2015
LAR with temp ileostomy 8/31/2015: T2N0M0
Ileostomy reversal 11/30/2015
NED 7/15/2016
Work full time, physically active
Wife, mom of two sons now 23 and 19 plus cats and dogs, daughter, sister
Wicked Brazilian samba-reggae drummer
So far, so good

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Re: Had my last mini scope yesterday - yeah!!

Postby NateA » Sat Dec 05, 2015 10:57 am

Soooooo happy for you!
7/15 dx CC stage 4 with lots of liver mets CEA 208
KRAS Mutant G12V, MSS.
9/23 from folfoxiri to folfox and Xeloda. CEA 25
11/11/15 all liver markers in the zone, CEA 4.0, moving to Avastin/xeloda for now..tumors shrinking
01/13/16 Avastin/xeloda CEA 3.5
03/11/16 clean PET CEA 4.4

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Re: Had my last mini scope yesterday - yeah!!

Postby DarknessEmbraced » Sat Dec 05, 2015 11:14 am

Wonderful news! :) Wishing your husband good luck with his scope on the 18th~*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Re: Had my last mini scope yesterday - yeah!!

Postby Lydia666 » Sat Dec 05, 2015 12:15 pm

Wow! Great great news! Enjoy!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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Re: Had my last mini scope yesterday - yeah!!

Postby Lee » Sat Dec 05, 2015 3:28 pm

weisssoccermom wrote:.....I guess I'm totally done with the whole cancer journey

The best news ever. CONGRATULATIONS :D

That's great that you are 5 yrs for your scopes. I've only been able to go 3 yrs at a time. Enjoy the holiday season with great health.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Re: Had my last mini scope yesterday - yeah!!

Postby Phuong » Sun Dec 06, 2015 2:41 pm

Wow, that is such amazing news!!!!! Congratulations!!!!!!!
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Re: Had my last mini scope yesterday - yeah!!

Postby muskokamike » Sun Dec 06, 2015 3:15 pm

On March 11 2014 I made my first post on this forum. You were the second person to reply and although I don't post often I do check in for valuable info. I have found your post always informative, well written and most important honest. I hope you continue to check in and help the ones who seek your advice. Enjoy your journeys end Jaynee
Last edited by muskokamike on Sun Dec 06, 2015 8:23 pm, edited 1 time in total.
53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

justin case
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Re: Had my last mini scope yesterday - yeah!!

Postby justin case » Sun Dec 06, 2015 6:06 pm

That's great news Jaynee,
My thoughts are with your husband, and a good outcome on his colonoscopy.
May you have a happy holiday season, filled with great memories and joy 8)
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Posts: 218
Joined: Fri Nov 12, 2010 1:12 pm

Re: Had my last mini scope yesterday - yeah!!

Postby wifeandmom » Sun Dec 06, 2015 7:37 pm

Thanks for sharing that wonderful news!
Dx 4/09
Rectal CA T3 N0 M0
Neo-adj. rad/Xelox
Surgery 8/25/09 LAR, temp ileo
Reversal 10/09
Surgery 12/21/09 temp ileo
ICU 12/30/09
8 rounds Xelox
Surgery 9/9/10 fix fistula, redo anastomosis
Reversal surgery 12/23/10
Hernia surgery 5/19/11
2018 Dx with radiation-induced Lumbosacral Plexopathy
ATM gene mutation
3/2019 Dx uterine carcinosarcoma Stage 1a

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Re: Had my last mini scope yesterday - yeah!!

Postby juliej » Mon Dec 07, 2015 4:00 pm

I would have done the siggy too after doing the prep. Jeesh, you're already cleaned out and ready to scope!

No more scans, no more onc visits, no more surgeon visits, no more CEA's - you are really and truly DONE! :D Congratulations!
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

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Re: Had my last mini scope yesterday - yeah!!

Postby Pathfindergrl28 » Mon Dec 07, 2015 8:01 pm

Wow that is awesome, congrats to you! :D
Genetic high BP since age 22 (currently on Bystolic)
Wife, mom of two girls
Colonoscopy 12/1/14: DX with 12 mm Tubulovillous adenoma polyp (benign), & diverticulosis in colon, Lynch negative
Colonoscopy 10/21/16: Clear colonoscopy, diverticulosis

"Don't worry about anything, instead, pray about everything. Tell God what you need, and thank Him for all He has done." Philippians 4:6

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Re: Had my last mini scope yesterday - yeah!!

Postby cathy123 » Mon Dec 07, 2015 9:21 pm

Great news!

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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Re: Had my last mini scope yesterday - yeah!!

Postby CRguy » Mon Dec 07, 2015 11:05 pm

I would hate to waste a perfectly good preppin' too Jaynee ! :mrgreen:

Glad all is well and you get to move on a bit to less checking ups.
A tad scary sometimes, but a good feeling none the less.

Mega Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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