Happy 4th cancerversary to me

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Ehut
Posts: 218
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Happy 4th cancerversary to me

Postby Ehut » Tue Dec 01, 2015 9:52 pm

Four years ago I was diagnosed with stage 4 disease with several mets in my liver. After 9 months of aggressive treatment, I was NED and have remained that way since. My life has almost completely returned to normal, except for the 6 month ct scans and doctor visits. I feel for the other members who haven't had as favorable an outcome, but I still visit this site regularly and think about you all. Hoping to post in a year when I officially become a long term survivor!
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

Lydia666
Posts: 676
Joined: Sat Jun 06, 2015 6:50 pm
Location: Montreal, Canada

Re: Happy 4th cancerversary to me

Postby Lydia666 » Tue Dec 01, 2015 10:35 pm

Very happy for you and encouraging for the rest of us!
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.

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CRguy
Posts: 10073
Joined: Sun Feb 10, 2008 6:00 pm

Re: Happy 4th cancerversary to me

Postby CRguy » Wed Dec 02, 2015 12:34 am

ANY ... -versary which includes the word NED .... needs celebrating
WORD !!!!

Best wishes
and keep kickin' colorectal BUTT !!

Cheers
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
12 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Happy 4th cancerversary to me

Postby Ajane » Wed Dec 02, 2015 12:44 am

Ehut, Congrats on the four years of NED and sharing your encouraging journey! Jane
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

Tanya
Posts: 116
Joined: Fri Jul 03, 2015 10:34 am
Location: Kings park NY

Re: Happy 4th cancerversary to me

Postby Tanya » Wed Dec 02, 2015 2:48 am

Congrats. So happy for you.
Dx-32y.o. Anal cancer-stage 3.
Aug-Sep xeloda & radiation-30
November 12-MRI-bones clear
November 30-NED
Moms of two (3 & 12 y.o.)
Recurrence -01.19.2016
Colostomy and APR surgery - 01.27.2016
Possibly chemo - June

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nitebreez
Posts: 79
Joined: Sun Mar 24, 2013 3:37 pm
Location: West Central Florida
Contact:

Re: Happy 4th cancerversary to me

Postby nitebreez » Thu Dec 03, 2015 1:12 pm

CONGRATS!!!
As of this upcoming February (Feb. 19th),...I will be 3 years NED, from diagnosis. I don't post much here in the forum lately,...but I visit a lot. I like to keep touch with what's happening with everyone. And you know, cancer really changes your life, and your whole viewpoint from then on. So I come and lurk about, and keep up with everyone. So it's really great hearing from others who have made it to nedsville, and are staying there (for awhile, or forever). :D
T4a-Nx-M0 cc (perforated colon) Septic shock
2/19/13 emergency surgery/colostomy
4/13/13 colostomy reversed (reconnected!)
1/22/14 folfox completed
3/3/14 CT Scan NED
4/15/16 CEAs still low

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Crystald
Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: Happy 4th cancerversary to me

Postby Crystald » Fri Dec 04, 2015 12:10 pm

Congrats Ehut!

Thanks for posting, it gives the rest of us hope. Any good news is great!
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

DarknessEmbraced
Posts: 3390
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Happy 4th cancerversary to me

Postby DarknessEmbraced » Fri Dec 04, 2015 12:42 pm

Congratulations! Very happy for you! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Hapa
Posts: 388
Joined: Thu Jan 03, 2013 2:46 pm

Re: Happy 4th cancerversary to me

Postby Hapa » Fri Dec 04, 2015 2:58 pm

Great News!!
DH Stage 3 RC

purplerose34
Posts: 8
Joined: Wed Aug 26, 2015 3:21 pm

Re: Happy 4th cancerversary to me

Postby purplerose34 » Sat Dec 05, 2015 3:52 pm

What amazing news. Congratulations.
Have you got any advise? Have you got a special diet or exercise regime? Anything you thinkythat helps you stay ned?
Feb 2015 Diagnosed with stage 4 bowel cancer at 34 years old.
4/2/15. Surgery ... removal of primary tumor and mets to ovary. Temporary ileosyomy
March 2015... diagnosed with multiple mets to the liver
April 2015... started Folfox and Panitumumab
completed 12 cycles in September.
Clear ct in October
clear Pet and clear liver MRI
currently ned

Lee
Posts: 5974
Joined: Sun Apr 16, 2006 4:09 pm

Re: Happy 4th cancerversary to me

Postby Lee » Sat Dec 05, 2015 4:47 pm

AWESOME NEWS :D

May you ALWAYS reside in NEDville.

Thank you for sharing

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Ehut
Posts: 218
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: Happy 4th cancerversary to me

Postby Ehut » Sun Dec 06, 2015 9:59 am

Thanks for the kind and encouraging words, everyone. For the first 2 years after chemo ended I took a few supplements, but have no idea what, if any, benefit they gave. I took PSK, modified citrus pectin, Cimetidine, and baby aspirin. I think there is definitely a psychological benefit to taking supplements after chemo, since in a way I felt "naked" after ending chemo, and this gave me some hope that I still had some "crutches". Lately I am only taking baby aspirin since there seems to be solid evidence backing its use.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 7+ years and counting!

purplerose34
Posts: 8
Joined: Wed Aug 26, 2015 3:21 pm

Re: Happy 4th cancerversary to me

Postby purplerose34 » Sun Dec 06, 2015 2:18 pm

Thank you. I also feel quite "naked" without chemo taking supplements makes me feel safer.
Again your story gives me hope. Thanks.
Feb 2015 Diagnosed with stage 4 bowel cancer at 34 years old.
4/2/15. Surgery ... removal of primary tumor and mets to ovary. Temporary ileosyomy
March 2015... diagnosed with multiple mets to the liver
April 2015... started Folfox and Panitumumab
completed 12 cycles in September.
Clear ct in October
clear Pet and clear liver MRI
currently ned

Stanfordmom
Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Happy 4th cancerversary to me

Postby Stanfordmom » Mon Dec 07, 2015 3:59 am

Congrats, Ehut! You gave us hope.

Sha
DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo
fighting!


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