Am still waiting to drink the barri for my 10am cat scan
and it's 9:50, wonder why they suggested I get here early
Guess a full waiting room drums up more business with all the coughing
My CEA which has never been more that 2 has been going up the past year last month a
All time high of 3.3, I know this by itself doesn't mean any thing but
As we all know cancer makes you afraid
Pooped twice in my pants this weekend
I am so tired of this crap you would think at 9 years plus it would get better but no
I am very uneasy for some reason
I know there is nothing to be gained by worrying but wish I could just turn off my
Brain for a while
Scaning pooping and worried
Scaning pooping and worried
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
Re: Scaning pooping and worried
Sorry to hear about your stress. I know just how you feel. My cea went from 1.6 to 3.9. But it is a different doc and different lab. Docs look at me and say you probably fine, check again in 3 months. Yeah. Say that to someone in your own family and see how far it goes!
Good luck with the scan today. Hopefully there is something else wrong playing with the cea? That seems like an odd thing to wish for someone.
From another Helen. Not too many of us around. We should watch each other's backs.
Good luck with the scan today. Hopefully there is something else wrong playing with the cea? That seems like an odd thing to wish for someone.
From another Helen. Not too many of us around. We should watch each other's backs.
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???
Re: Scaning pooping and worried
My mom grandmother and great grandmother were all named Helen
Seems like the name is out of fashion
Almost 11am and while I have finished the yummy barrium
Am still in the waiting room
I did have a funny sad exchange with a nurse when asked what meds I am allergic to
I responded aspirin it brings on my asthma
She looks at me and says no not you medication what are you
Allergic to..... I just shook my head and said it again
I hope she was just having a bad day there is no way any medical personal
Could be that stupid
I hate nyu queens
My butt is starting to sweat in my depends
I tried the butterfly but well the poor butterfly drowned
Seems like the name is out of fashion
Almost 11am and while I have finished the yummy barrium
Am still in the waiting room
I did have a funny sad exchange with a nurse when asked what meds I am allergic to
I responded aspirin it brings on my asthma
She looks at me and says no not you medication what are you
Allergic to..... I just shook my head and said it again
I hope she was just having a bad day there is no way any medical personal
Could be that stupid
I hate nyu queens
My butt is starting to sweat in my depends
I tried the butterfly but well the poor butterfly drowned
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Scaning pooping and worried
I wish you good luck with your scans and hope you get some news soon!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Scaning pooping and worried
Finished around 12
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
Re: Scaning pooping and worried
Hi there. Well at least it's over. Hope you get the results soon and the cea is just a weird lab difference.
I get cea checked every 3 months. It was 1.7 after chemo then 1.6 then 1.6. Then I moved to Florida and have new lab and docs. Jumped to 3.9 in September. Just had blood draw today. Hoping for less than or equal to the 3.9. Doc says cea is not an accurate test. All I could respond was that it was dead on for past 2 years. So I have waited three months to get another data point. Hope we both get good results.
I get cea checked every 3 months. It was 1.7 after chemo then 1.6 then 1.6. Then I moved to Florida and have new lab and docs. Jumped to 3.9 in September. Just had blood draw today. Hoping for less than or equal to the 3.9. Doc says cea is not an accurate test. All I could respond was that it was dead on for past 2 years. So I have waited three months to get another data point. Hope we both get good results.
54 y/o
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???
10-2013 colonoscopy
11-2013 colon resect
12-2013 stage 3b results are in 4 of 11 LN
12-2013 - 5-2014 folfox
9-2014 cea 1.7 12-2014 CT clear cea 1.7 3-2015 cea 1.6
6-2015 new doc new lab. Cea now 3.9???
Re: Scaning pooping and worried
Could cancer come back after 9 years??! I highly doubt it! Let us know.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
Re: Scaning pooping and worried
Is it possible that this recent CEA result stemmed from a different brand of test? It is my understanding there are two companies (Roche and someone else) and their scales and sensitivities are different.
More info on CEA here. http://www.cancernetwork.com/oncology-j ... tal-cancer
More info on CEA here. http://www.cancernetwork.com/oncology-j ... tal-cancer
48 yo DH diagnosed/resection (rectosigmoid at 18 cm), 8/15
IIIB--T3, N2a (6/24), moderately differentiated, genetic testing--negative for mutations
CEA pre-surgery 3.5
FOLFOX began 8/15
Oxaliplatin dosage reduced at Round 8 due to WBC issue, began Neulasta for that
Oxaliplatin ended at Round 9 due to persistent neuropathy
IIIB--T3, N2a (6/24), moderately differentiated, genetic testing--negative for mutations
CEA pre-surgery 3.5
FOLFOX began 8/15
Oxaliplatin dosage reduced at Round 8 due to WBC issue, began Neulasta for that
Oxaliplatin ended at Round 9 due to persistent neuropathy
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