Hanako wrote:Dear all, my name is Hanako and I live in the Netherlands. I've joined the forum because I eonder how treatment is in other countries. I am 41 years old, two years ago I was diagnosed with stage 1 rectalcancer. After treatment of 25 radiation sessions and 5 weeks of chemo pills (xeloda) I had surgery with a stoma as end result. 85% of full recovery I was told. Only with in a half year the ct scan showed spots on my lungs. Within half a year I am now stage 4 with 19 lung mets spreaded in both my lungs. My only given option is chemo. Beacause I feel the chemo will do more harm I have not started chemotherapy. I still feel good and healthy, have no complaints at this moment. Who has the same diagnosis and what treatment are you given...regular or altrnative. Thank you for your time...
Kind regards, Hanako
orcasres wrote:As a stage II, I can't help you much with your questions, but someone will come along soon and join in. Welcome to the club that no one really wants to belong to. People here are very helpful and understanding. Lois
Hanako wrote:Thank you all so much for replying! I do not want chemo because I don't feel it will make live better. I have a very good oncologist in Dordrecht. Before that I was treated at the Daniel den Hoed clinic in Rotterdam and I've been for a second opinion in the Anthony van Leeuwenhoek. So as far as the best information and best doctors in our country, I have visited them. The advice is chemo to prolong life, however they all say it will hopefully het me a year more than without treatment. A year ago I was given 6-9 months and Iam still here with no noticable health issues. I function like a healthy person and am Able to do all I want. I am so very afraid that chemo will change all this around. That I will get sick from the chemo and not be able to what Iam doing now. The doctors made it quit clear that i will not get better. Then why start chemo. The advice is 5fu with avastin through a portacath. The mets are to spread and to large in numbers to get surgery or radiation. Who has the same diagnosis and is undergoing chemo ...how is that working formyou? How do you feel? What is your prognosis? Thanks again... Hanako
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