New standard for cancer survivor quality of life programs

Please feel free to read, share your thoughts, your stories and connect with others!
User avatar
chrisca
Posts: 237
Joined: Wed Dec 07, 2011 10:35 pm
Location: Portland, Oregon

New standard for cancer survivor quality of life programs

Postby chrisca » Sun Nov 15, 2015 4:48 am

For those who are survivors, there is a new standard requiring accredited cancer centers to provide a quality-of-life improvement program. From the document "Guide for Delivering Quality Survivorship Care" from the National Cancer Survivorship Resource Center:

"A major facilitator in increasing the number of survivorship programs, the Commission on Cancer (CoC) announced a new patient-centered Survivorship Care Planning standard that must be phased in by 2015. Because CoC-accredited institutions care for the majority of cancer patients in the United States, this standard has the potential to significantly impact survivorship care." (page 8, https://cancersurvivorshipcentereducation.org/uploads/Guide_for_Delivering_Quality_Survivorship_Care_FINAL.pdf

This gives us an opportunity to ask our doctors what's being done to meet this standard and to get into a program to address quality-of-life issues we're having. It's an encouraging development, and I'm bringing it up next month when I see my oncologist.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 7 years

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 29 guests