New standard for cancer survivor quality of life programs

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New standard for cancer survivor quality of life programs

Postby chrisca » Sun Nov 15, 2015 4:48 am

For those who are survivors, there is a new standard requiring accredited cancer centers to provide a quality-of-life improvement program. From the document "Guide for Delivering Quality Survivorship Care" from the National Cancer Survivorship Resource Center:

"A major facilitator in increasing the number of survivorship programs, the Commission on Cancer (CoC) announced a new patient-centered Survivorship Care Planning standard that must be phased in by 2015. Because CoC-accredited institutions care for the majority of cancer patients in the United States, this standard has the potential to significantly impact survivorship care." (page 8,

This gives us an opportunity to ask our doctors what's being done to meet this standard and to get into a program to address quality-of-life issues we're having. It's an encouraging development, and I'm bringing it up next month when I see my oncologist.
Male, false negative colonoscopy age 48
DX: 12/2010 rectal cancer age 51
Stage T3N0M0 2 cm from anal verge
neoadjuvant rad/chemo Xeloda
Rectal resection (open surgery) straight anastomosis
Xeloda round 2
ileostomy reversal 11/2011
Successful adhesion X-lap 8/2013
Ongoing LAR syndrome but NED 7 years

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