Six Years

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Six Years

Postby SkiFletch » Sat Nov 14, 2015 2:34 pm

Greetings everyone, long time no talk. I'm back to make good on a promise I made six years ago to a 29 year old scared out of his mind having recently heard those fateful words. This was one of the first places I came on the old interwebs sitting in the hospital, waiting alone with my trusty laptop six years ago. I work in medical research, so I knew from the start, colon cancer is not something to be messed with. Sitting there in the hospital, I needed to find someone else like me. I scoured this forum for days, lurking and gobbling up as much knowledge and experience as I could. Here I found other young folks diagnosed with CRC just like me, and here I also found some hope. Because some of them were still alive and well. Not long after seeing those success stories and realizing how good they made me feel, I made a promise to myself. If by the wonders of Medicine, God, and help from friends and family I became one of those success stories, I would make sure to return that glimmer of hope back to this community.

Six years later, I'm still cancer free. My doctors, family, and I threw the book at this thing, doing everything we could to try and secure my future. Nobody really knows what put it over the edge, but we do know that I'm still cancer free. It's an enormous blessing to still be here. Back when I was diagnosed, less than 10% of folks like me made it to 5 years, and a majority of those who did, still had cancer. Only time will tell if I really am Cured, but we keep getting closer and closer to that true reality. As I go along here, I'm shedding all sorts of doctors, which is a wonderful thing. My surgeons both kicked me to the curb, and my oncologist only brings me in once every 6 months now (we do CEA's every 3, but I just go to a labs place for them). Come March, I'll have my last CT scan, and drop to yearly appointments with my oncologist. Scope intervals keep getting longer too.

Most days, I don't even know that I had cancer, and have settled into daily life and the concerns of a young father. God has decided that I need to stick around for a bit, cause I have to take care of my two wonderful girls.


So if you're that scared kid like I was, I hope this can serve as some hope for you, or even offer some comfort. Few of us make it this far, but some do. I'm blessed every day to be one of those and hope others can do the same.

With thoughts, prayers and swinging chickens,
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Joined: Sat Oct 17, 2015 10:04 am

Re: Six Years

Postby dudette » Sat Nov 14, 2015 2:59 pm

Thank you so, so much for sharing. Exactly what I needed to read to bring me one step closer to fighting mode instead of simply giving in.
Dx 03/2015 @ age 41 - CC stage IV - pT3 N2b (14/29) cM1 (hep) L1 V1 Pn1 R1
unresectable mets liver 60% + lungs
04/15 - sigmoid resect.
07/16 - hysterectomy (ovaries)
05-06/15 - 4 x Folfirinox
12/15 - 02/16 4 x Xeliri + Avastin
03-05/16 9 x Xeloda
09-12/16 Folfiri + Cetuximab
01/2017 - metronomic chemo + methadone
July 20, 2107 - Temi has passed away.

justin case
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Joined: Sun Sep 04, 2011 8:26 am
Location: Katy, Texas

Re: Six Years

Postby justin case » Sat Nov 14, 2015 3:33 pm

Looking good Fletch, coming up on 4 years for me. I can't believe your daughter is that big already 8)
7/11 diagnosed Stage 2 colon and rectal cancer
lar/temp ilio
Reversal & port removal
21 round of chemo Folfox 9tx, 5fu 12 tx
Last treatment July 2012

Posts: 2297
Joined: Fri Feb 06, 2009 10:07 am

Re: Six Years

Postby ams5796 » Sat Nov 14, 2015 4:05 pm

Great to hear from you and with such terrific news! Your family is beautiful. Enjoy every day.

Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

Posts: 1343
Joined: Sat Aug 17, 2013 5:46 pm

Re: Six Years

Postby stu » Sat Nov 14, 2015 4:29 pm

Fabulous news. Great to see you and your family.
May the good times keep coming.
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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Posts: 227
Joined: Tue Feb 25, 2014 4:38 pm

Re: Six Years

Postby muskokamike » Sat Nov 14, 2015 4:37 pm

Congrats from a die hard Leaf fan just north of TO
53M Dx rc10/31/13
CT scan, BONE scan
MRI/T3N0M0 1 suspicious node
5 wks chemo/rad
LAR open TME 2/26/14
temp ileo
0/24 nodes pCR/pathological
Mop up Folfox (8) Mar/28-Jul/4
Aug/14 clear CT scan
8/27/14 reversal
Feb/15 clear scope
July/15 clear CT scan
Feb/16 clear CT scan
Feb/17 clear CT scan
Feb/18 clear scope
Feb/18 clear CT scan
Sep/19 clear CT scan DISCHARGED!
CEA levels 1.6 dx
1.6,1.4,1.7,2.4,2.9, 2.7 2.3 2.5 2.2 2.1 2.5 2.6 2.7
2.7 Sept 19
0-4 normal

Posts: 499
Joined: Sat Dec 17, 2011 7:17 am
Location: New Jersey

Re: Six Years

Postby esk2poo » Sat Nov 14, 2015 5:18 pm

Beautiful family and the smiles show what it's all about for you now. Praying those stay on your face forever. You, along with many on here, helped me out a lot through my trying times and I really appreciated it. Maybe some of the newbies can search your posts and see all you have been through to get to this point and help them out now. Hope your work on your house is all complete and you can hit the slopes all winter.
Dx 8/23/11 stage 3b crc
3 of 11 LN's
resection 9/15/11
folfox start 10/31/11 12 sessions
De-ported 6/2012
clear CT 7/2012
Clear colonoscopy 9/2012

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Posts: 1538
Joined: Tue Apr 12, 2011 10:10 pm

Re: Six Years

Postby horizon » Sat Nov 14, 2015 6:19 pm

I can't tell you how happy this makes me. When I joined here scared out of my mind you were without question one of the people who helped me the most. I'll always be grateful for that.

You look so much like a friend of mine it frightens me. :)
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Posts: 1527
Joined: Tue Sep 09, 2014 3:23 pm
Location: PNW/USA

Re: Six Years

Postby bitchslapped » Sat Nov 14, 2015 6:22 pm

Wonderful photo. I love it when our veteran members check in as we've most certainly run across the older posts. And yes, looks like you do have two lovely girls to look after. :)

Best Wishes
DSS,35YO,unresect mCRC DX 7/'14,lvr,LN,peri,rib
FOLFOX+Avstn 4 Rnds d/c 10/'14
Stent 9/'14
FOLFIRI+Avstn 10/'14
Gone From My Sight 2/20/15
Me:garden variety polyps + precancerous polyp, diverticulitis
Carergver x2 DH,DM dbl occupancy,'03-'10
DH dx 47YO mCRC,'04-'07 fried x HAI
DM dx CC 85YO,CC,CHF,stroke,dementia,aphasia

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Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Six Years

Postby chrissyrice » Sat Nov 14, 2015 6:39 pm

Thank you so much for checking in with us!

So happy you are still NED... I remember your story and so thankful for your support.

DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

Posts: 339
Joined: Wed Jan 14, 2015 6:09 am

Re: Six Years

Postby plastikos » Sat Nov 14, 2015 7:26 pm

Just awesome news. And just what I needed to read today. Congrats on your milestone. Hoping and praying all of us here have the same fortune.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED

Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Six Years

Postby orcasres » Sat Nov 14, 2015 7:42 pm

Wonderful news and a beautiful family portrait. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far

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Posts: 10146
Joined: Sun Feb 10, 2008 6:00 pm

Re: Six Years

Postby CRguy » Sat Nov 14, 2015 8:09 pm

Well done Fletch and thanks for chekkin' back in buddy !


BUTT for this we need the squirrel :mrgreen:


keep riding the NED train
Cheers and Harmony
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 612
Joined: Wed May 14, 2014 1:32 am

Re: Six Years

Postby Stanfordmom » Sat Nov 14, 2015 8:43 pm

Thank you for posting. Congrats on six years!

You have a beautiful famil.

DX 4/2/2014 at 44, stage 4, mets liver and ovaries
Mom to 2 boys
Three surgeries, HAI pump and lots of chemo

Posts: 665
Joined: Sat Nov 08, 2014 3:36 pm

Re: Six Years

Postby cathy123 » Sat Nov 14, 2015 8:47 pm

Congratulations! So glad you continue to do well!

Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds

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