survivor since 1991

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Mercy110
Posts: 108
Joined: Wed Aug 16, 2017 12:13 am

Re: survivor since 1991

Postby Mercy110 » Fri Aug 10, 2018 9:55 am

Just realised it is such an old post (from 2009, seriously??). You are definitely an inspiring survivor. Advice well-received :D God bless.
Mum age 56, NRAS-mutate Q61R
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda No Radio. CEA: 7.3, 8.0, 9.8 CT: Multiple lung nodules. Stage4.
2017-09: 85% FOLFOX + Avastin CEA: 7.0, 4.7 (10/10), 3.7 (11/10), 2.9 (12/3), 2.2 (12/21), 2.4 (01/09), 3.4 (2/24), 2.6 (3/9), 3.6 (5/24), 19.2 (8/16), 22 (8/31), 24.9 (9/18), 27.7 (10/9)
2017-11: Stable CT
2018-03 to 05: Folfox Allergy
2018-08: Folfiri, CT lung met, 2 lymph nodes
2018-10: Folfiri + Avastin

WISH ALL MIGHTY GOD HEALS MUM WITH HIS MIRACLE

tater
Posts: 77
Joined: Wed Jul 19, 2017 5:53 pm

Re: survivor since 1991

Postby tater » Fri Aug 10, 2018 10:50 pm

thanks for the check in it helps us who are trying to be early survivors.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18

User avatar
CRguy
Posts: 9673
Joined: Sun Feb 10, 2008 6:00 pm

Re: survivor since 1991

Postby CRguy » Sat Aug 11, 2018 2:12 am

bomberbob wrote:I am still alive. Checked every year. Doc takes the polyps before they do harm. DO NOT GIVE UP. Barbie dolls with the grandkids are gone. They are driving cars now. I repeat. Do not give up.
Bomberbob


WORD

for everyone
for ever

WORD !

Thanks Bomberbob
You are one of us
and we all wanna be YOU !

Cheers and Harmony on the Journey
CRguy
Caregiver x 3
Stage IV A rectal cancer/lung met
11 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Ron50
Posts: 671
Joined: Fri Feb 10, 2006 7:04 pm

Re: survivor since 1991

Postby Ron50 » Sat Aug 11, 2018 8:21 am

Hi Bomberbob,
Congratulations on your survival. I understand your sentiments completely. Sometimes the medical profession forget that once you have had cancer you are in the zone and will always be at risk of developing new ones. I had to fight to have my last colonoscopy performed. The board at the hospital believed I was no longer at risk but at just over three years since the previous one , it produced four tubular adenomas the largest over 11 mm. Fortunately they had not turned and I now have a report stating I am to have scopes every two years. Unlike you I had 48 sessions of some nasty chemo and suffer ongoing side effects from it. In jan next year I reach 21 years still cancer free. I tell everyone that will listen that surviving survival is not easy. We really have to work at it. I was 48 at dx and am over 68 now. All the best Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Capri
Posts: 68
Joined: Thu Apr 19, 2018 5:59 pm

Re: survivor since 1991

Postby Capri » Sat Aug 11, 2018 11:43 am

Bomberbob I beg to differ.

You DO have grand words of wisdom to share. You write simply and eloquently. Your words give me hope for my son and all others here who are fighting this battle. Thank you, thank you!
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT 2 liver hemangiomas, PET scan-nothing "lit up"
Neuropathy has started.
7/30/18 Completed 12 cycles of FOLFOX.
Port removed October
11/2/18 Clean colonoscopy; 11/20 CT normal.


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