survivor since 1991

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Posts: 114
Joined: Wed Aug 16, 2017 12:13 am

Re: survivor since 1991

Postby Mercy110 » Fri Aug 10, 2018 9:55 am

Just realised it is such an old post (from 2009, seriously??). You are definitely an inspiring survivor. Advice well-received :D God bless.
My Mum (age 56), NRAS-mutate Q61R
2017-05: Surgery with stoma. T4N1M0. Stage3C. Xeloda Only. Increasing CEA. CT: Multiple lung nodules. Stage4.
2017-09: 85% FOLFOX + Avastin, stable CT
2018-03 to 05: Folfox Allergy, Folfiri (with Avastin since Oct)
2019: CEA:178, started Irinotecan+Zaltrip+TS-1, 25 times radio with xeloda
2020: CEA: 217.3, pending treatment


Posts: 128
Joined: Wed Jul 19, 2017 5:53 pm

Re: survivor since 1991

Postby tater » Fri Aug 10, 2018 10:50 pm

thanks for the check in it helps us who are trying to be early survivors.
DH to 38 wife w/kids
Stage 3C DX 3/3/17 CEA 29
5-fu and radiation ended May 17, 2017
Stage 4 External iliac node July 17, 2017
FOLFOX + Avistan July 18 2017 CEA 2.3
Nov 9, 2017 Coloanal Anastomosis, Hysterectomy & External Nodes Removed W/ileostomy
Clear Margins NED
CEA 1.5 12/17, 2.1 2/18, 2.3 6/18, 1.1 9/18, 1.3 12/18, 1.8 3/19, 2.5 6/19
Clear CT and MRI on 2/5/2018, 9/18 Clear Scans
Reversal Surgery 6/26/18
Small Spot on right ureter surgery 10/30/19 adhered to artery
Dec. 2 start 12 rounds FOLFIRI

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Posts: 10234
Joined: Sun Feb 10, 2008 6:00 pm

Re: survivor since 1991

Postby CRguy » Sat Aug 11, 2018 2:12 am

bomberbob wrote:I am still alive. Checked every year. Doc takes the polyps before they do harm. DO NOT GIVE UP. Barbie dolls with the grandkids are gone. They are driving cars now. I repeat. Do not give up.


for everyone
for ever


Thanks Bomberbob
You are one of us
and we all wanna be YOU !

Cheers and Harmony on the Journey
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Posts: 699
Joined: Fri Feb 10, 2006 7:04 pm

Re: survivor since 1991

Postby Ron50 » Sat Aug 11, 2018 8:21 am

Hi Bomberbob,
Congratulations on your survival. I understand your sentiments completely. Sometimes the medical profession forget that once you have had cancer you are in the zone and will always be at risk of developing new ones. I had to fight to have my last colonoscopy performed. The board at the hospital believed I was no longer at risk but at just over three years since the previous one , it produced four tubular adenomas the largest over 11 mm. Fortunately they had not turned and I now have a report stating I am to have scopes every two years. Unlike you I had 48 sessions of some nasty chemo and suffer ongoing side effects from it. In jan next year I reach 21 years still cancer free. I tell everyone that will listen that surviving survival is not easy. We really have to work at it. I was 48 at dx and am over 68 now. All the best Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Posts: 78
Joined: Thu Apr 19, 2018 5:59 pm

Re: survivor since 1991

Postby Capri » Sat Aug 11, 2018 11:43 am

Bomberbob I beg to differ.

You DO have grand words of wisdom to share. You write simply and eloquently. Your words give me hope for my son and all others here who are fighting this battle. Thank you, thank you!
Mom to son 46 yo at Dx (2017)
11/17 sigmoid tumor found on colonoscopy
1/18 Robotic resection, Adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
10/18 Port removed
11/2/18 Clean colonoscopy; 11/20 CT normal.
3/2019 Abdominal CT normal
9/2019 Chest, abdomen, pelvis CTs "unremarkable".

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