Ablation Update

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BrownBagger
Posts: 7954
Joined: Fri Jul 24, 2009 2:56 pm
Location: Central NYS

Ablation Update

Postby BrownBagger » Fri Nov 06, 2015 10:25 am

I had the ablation done on my left lung in NYC on Tuesday, then got chemo on Wednesday, back home. I was just relaxing following my infusion, when I noticed some weird kind of thing going on under the skin of my throat. It didn't hurt at all, but I thought it might be an infection of some sort. So, I went back to the infusion center and they told me that I have what's called Crepitus. It just means air under the skin. Apparently my incision started to leak, probably because I had developed a rather scratchy throat post-beaching tube, and was enduring sporadic coughing spells. I got ahold of an IR doc down at Sloan (Dr. Erinjeri), who suggested that I get a chest X-ray asap, which I did. The local radiologist said I had a small pneumothorax and evidence of air in my chest cavity, but that I could go home and come back in the morning for another look-see. Went back this morning expecting to be admitted, but they told me to go home and relax.

So, I'm cool.

You gotta love cell phones when dealing with different doctors at different hospitals in different cities. Now it's so easy for them to communicate and coordinate--assuming they're so inclined.

The RFA procedure itself went well. I had a bit more pain post-op than I expected, since the other two were essentially painless, but they pumped some fentanyl into me and that took care of the pain. It didnt come back. We showed up at the hospital on time at 11:30 and were back on the street again by 5:00. They discharged me based on two good X-rays, but that was before I started hacking.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Crystald
Posts: 142
Joined: Thu Feb 26, 2015 1:50 pm

Re: Ablation Update

Postby Crystald » Fri Nov 06, 2015 12:32 pm

Sounds scary as hell. :shock:

Glad all is good & you are home. Rest easy.
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Ablation Update

Postby CRguy » Fri Nov 06, 2015 12:50 pm

Glad it's all heading in the right direction bro' ..... and you did the right thing by getting on top of it and getting back to the docs !!!!
(( just a bit of mild preaching to those folks who sometimes do the old " should I stay or should I GO" dance :mrgreen: ))

SubQ emphysema / crepitus can be self resolving if the source is self limiting .. the body reabsorbs the air and heals
BUTT if there is an ongoing leak you needs your docs !!!!
sounds like you are getting great care and follow up 'cos a pneumothorax is NOT to be messed with at home .... until they know it is stable.

and ... this IS the one time we can really say " yup he really was full of hot air " :oops:
I'll go now

Cheers and Harmony ....
keep healing gently
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Ablation Update

Postby stu » Fri Nov 06, 2015 4:25 pm

Hi.
Glad to hear your making progress. I have been following your approach closely and I am delighted RFA has been successful for you despite this reaction. I just learnt today RFA has stopped at our cancer center . Hoping it starts up again soon.
Take care,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Ablation Update

Postby Ajane » Sat Nov 07, 2015 1:11 am

BB, I'll never forget how you were the first to respond to my initial panicky post almost 2 1/2 years ago. It meant the world to me as I was trying hard to get a grip. Although I haven't responded to your posts, I've always followed you closely. Sorry this ablation didn't go as well this time. Nothing like expecting the unexpected. So glad you're home and doing okay. Jane
Last edited by Ajane on Sat Nov 07, 2015 2:49 pm, edited 1 time in total.
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

eleven11
Posts: 130
Joined: Tue Sep 16, 2014 12:48 pm
Location: Chicago

Re: Ablation Update

Postby eleven11 » Sat Nov 07, 2015 9:33 am

I'm glad you're ok. Are you NED now?
11/11 Mom dx @ age 50 T3M0N0
2012 12 tx FOLFOX
12/13 2 lung nodules
1/14 VATS wedge
3/14-present 5FU
4/15 Lobectomy RML

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Ablation Update

Postby DarknessEmbraced » Sat Nov 07, 2015 11:04 am

I'm glad your doing well.*hugs* That issue with the skin in your throat would have been scary.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

stevieb
Posts: 410
Joined: Sat Feb 09, 2013 12:26 am

Re: Ablation Update

Postby stevieb » Sat Nov 07, 2015 1:35 pm

Glad you are doing better, I have two cryoablation a this week at MDA. One Monday and the other on Tuesday. Been following in and given hope! Thanks!
Dx age 33
12/19/12 Stage IV liver/lung
1/14-2/28/13 Folfox
3/27/13 rectal/lung rst; temp ileo
7/11/13 liver res/ileo rev
9/30/13 - Folfox
11/13,2/21 NED
3/14 lung recur;6/16-VATS
7/14 5 bi lung mets
10&11/15 laser lung surg
2015 Colondar Model
12/15 5 lung met-folfiri
5/15 NED
11/15 2 lung mets; cryoablation
1/4/17 2 lung mets; cryoablation
NED as of 1/23/17

NedPlease
Posts: 550
Joined: Fri Mar 23, 2012 3:56 pm

Re: Ablation Update

Postby NedPlease » Sat Nov 07, 2015 1:37 pm

Glad that issue is resolved and you're healing well. Always good to hear how well- how smart- you navigate cancer.

I learn from you and am inspired by you.

Thanks and continued healing,
N
F-54- St 4- Ascend Colon, 2 Liver mets, Poorly dif, Mutant
6/10- Folfox
9/10- R Liver Resect/Colon/Gall/Appendix
11/10-3/11- Folfox
11/11- R Lung, 1 met, VATS
3/12- 9/12- Xeloda
2/12- 6/18 Clear Scans
6/19- first time no scan
Today- NED

Badass
Posts: 1171
Joined: Sun Jan 15, 2012 11:42 am

Re: Ablation Update

Postby Badass » Sun Nov 08, 2015 12:42 am

Hi BB,
I've been thinking about you this week and glad to find this report. Sorry you had a curve ball and pain but glad that you feel things are under control. I hope the ablation left you NED and you are back on your bike asap!

Hugs and Sushi,

Jane
R.C. 12/23/11 at age 52 T3N0M0
3/1/12 completed Xeloda and radiation
5/4/12 LAR & Ileostomy
6/7/12-10/4/12 6 rounds Xelox
11/27/12 Reversal
7/13/13 1 liver met
8/13 Met resection /hai pump
4/14 Chemo completed (Irinotecan/5fu/fudr in pump)

Val*pal
Posts: 860
Joined: Sun Feb 10, 2013 1:24 pm
Facebook Username: Valerie Barkus Kantner
Location: Metro Detroit, Michigan

Re: Ablation Update

Postby Val*pal » Sun Nov 08, 2015 12:33 pm

Hope all of your side effect symptoms are gone soon, BB.
DH dx'ed May '11, age 62
Jul '11: resection Stage IV
10/11: 6 mo Folfox
8/12:thyr canc, surg/tx
2/13: peri mets
2/13: Firi/Avas
6/13: Ok
8/13: break
10/13: Lung, peri, mets
10/13: Firi/Erb
1/14: Erb Fail; spread
5/14: Tx stopped
6/20/14: At rest

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Phuong
Posts: 1508
Joined: Mon Jun 14, 2010 10:43 pm
Facebook Username: Phuong Ly Gallagher

Re: Ablation Update

Postby Phuong » Sun Nov 08, 2015 7:03 pm

Any bets on how long before BB is out chopping wood or on his bike again? :wink: Glad that things are headed in the right direction BB.
Phuong
http://sonofamotherlessgoat.net/
dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Ablation Update

Postby CRguy » Sun Nov 08, 2015 11:15 pm

Hey sista'
.... he'd get back to you if he were NOT out on his bike and doing the Paul Bunyan thang ...

come ON ... dis' is da BBagger !!!!! :mrgreen:

Cheers and Harmony
CR
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

mariane
Posts: 704
Joined: Sun Sep 13, 2015 6:16 pm

Re: Ablation Update

Postby mariane » Mon Nov 09, 2015 12:08 am

Best for you!
mom of now 14 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!

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juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: Ablation Update

Postby juliej » Mon Nov 09, 2015 12:08 pm

Crepitus? That sounds a little unnerving. Glad they came up with a quick diagnosis. I know I would have been flipping out, especially right after an RFA procedure. Sometimes things like that seem like the perfect storm (possible cough/cold + RFA procedure + chemo) and you never know which thing set it off. Hope you're feeling better and it contines to resolve itself without intervention.

I'm in the city today. Scan results were clear! :D CEA is holding steady at .7 :D

There was a big military presence in the subway and on the streets last night. They are all assembling for various Veterans Day parades on Wednesday. Got a few offers to go out for drinks, but I politely declined (sorry, boys, I have a CT scan tomorrow!).
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1


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