Postby Steph20021 » Wed Nov 04, 2015 7:43 pm
I am 3 months out from when I got my ileostomy back and I am frequently having sore skin without any evidence of leaks. I am using the ring barriers that you shape with your hands and Using powder and spray to make a fake scab over sore looking areas, and I just changed appliance yesterday morning and it's sore already. Feeling bummed. Out of ideas to try. Anyone have a clue?
DX 1/31/14 @ 33- SPS-T4a(invades visceral peri), N2a(6/106 LN), M1a(ovary) (Stage 4a) MSS; BRAF V600E
2/1/14-subtotal col, lost R ovary, temp ileo
3/14-9/14- folfox; sepsis
11/14-CT/PET: L ovary met, pelvic met, (?)ghost liver met(?)
12/14-folfiri -13 rds kept me stable from 3/15-6/15
8/15-HIPEC, NED
09/15- cea 0.9
05/16- recurrence in abdo wall and lymph nodes
01/17- pulmonary embolism
02/17- 1 wk radiation to abdo wall
08/16- on folfiri
01/18-folfox
11/18- Beacon trial-encorafenib & cetuximab