Ok, 1st post on getting to know others

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Nik Colon

Ok, 1st post on getting to know others

Postby Nik Colon » Tue Oct 27, 2015 11:44 pm

:P In this thread, let's just post when we joined, etc, and only post if you want. I will keep updating this first post by join date order. Hey, could be fun (we can start other posts about other things, family, hobbies, anything.
FYI, if you are a caregiver, you can also reply, just put CG after your handle, eg. Handle (CG) :)
PS...please let me know if I miss something or incorrect.

The list is in order by date joined.
**********************************
Handle................ Joined..........aka.........Stage.............dx
Ron50..................02/10/06......Ron.........3cCC-NED...01/98
Lee.......................04/15/06......Lee.........3cRC-NED....04/04
PGLGreg..............11/03/06.....Greg........2aRC-NED....11/05
CRguy..................02/10/08.....................4aRC-NED....05/07
Ams5796.............02/06/09.....................3cRC............01/07
Bev G...................01/07/10......Bev.........4aCC-NED....12/09
Juliej....................08/05/10.....................4bRC-NED....08/10
teacher49............08/14/11....Barbara....2aCRC-NED.05/11
kellywin................01/23/13.....Kelly........3cRC-NED...11/12
DBF......................06/07/13.....Donna.....4aCC-NED....05/13
JDinNC................07/04/13......Jan.........4CC-NED......06/13
Ajane....................07/23/13.....Jane.......1RC..............07/13
arizona mom.......05/08/14.....................4CC..............05/14
Stanfordmom......05/14/14......Sha........4b.................04/14
sjring....................06/30/14.....Steve......4CC..............09/13
Danieljt (CG)........08/10/14.....................3cCC-NED...05/14
Iitg ritesh.............08/25/14.....................2aRC............10/13
lhawk0730 (CG)..10/27/14.....................3bRC............10/14
DarknessEmbraced.11/01/14.....................2aCC............10/14
Cathy123.............11/08/14.....Cathy......1RC..............10/14
lpas......................11/20/14.....................3bCC............11/14
MamaN ...............12/30/14 ....................3bCRC.........07/10
Nik Colon.............01/08/15......Nik.........4aCC-NED?..12/14
Sams wife (CG)...01/11/15.....................2aRC............01/15
plastikos..............01/14/15.Andre/Dre..4aCC............11/14
LB10.....................03/17/15....................3RC..............03/14
Annemiek............04/07/15..Annemiek..3cCC-NED....10/14
JudeD1959..........04/12/15.....Judy.......2RC...............04/15
LeonW..................05/03/15.....Leon.......4aCC............12/12
jhocno197 (CG)...05/11/15....................4bCC............12/14
Joannerogers......06/16/15....................4CRC............04/15
ieowi.....................07/27/15....................4CC..............07/15
OneFoot...............09/11/15.....Nicci.......3bCC............09/15
RickWhosoever...09/27/15......Rick........2RC..............01/15
Fritz the Cat.........10/21/15.....................2aCC............09/15

2nd post on getting to know others "in this forum"

OK, Kids. Come out of the closet. What do you guys do? (started 07/2014)
Last edited by Nik Colon on Sun Nov 01, 2015 4:18 am, edited 140 times in total.

Nik Colon

Re: Ok, 1st post on getting to know others

Postby Nik Colon » Tue Oct 27, 2015 11:46 pm

Nik Colon...joined 01/08/15...aka Nik...4aCC-NED?...dx 12/14
Last edited by Nik Colon on Wed Oct 28, 2015 9:48 am, edited 2 times in total.

User avatar
CRguy
Posts: 10285
Joined: Sun Feb 10, 2008 6:00 pm

Re: Ok, 1st post on getting to know others

Postby CRguy » Wed Oct 28, 2015 12:02 am

CRguy
Joined : Sun Feb 10, 2008 7:00 pm

still here and kicking !
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

JudeD59
Posts: 726
Joined: Sun Apr 12, 2015 12:16 pm

Re: Ok, 1st post on getting to know others

Postby JudeD59 » Wed Oct 28, 2015 12:12 am

JudeD1959 aka Judy
April 12, 2015
56 yrs old, wife, mother to 4 daughters
RC Stage II T3N0M0 DX April 2, 2015
6 cm. mid-rectum-CEA 121
Xeloda and radiation finished 06/15/15- CEA 242
CEA right before surgery 81
LAR performed 8/12/15 Temporary ileostomy
CEA 10-21-15 1.6
PET scan 11-4-15 All clear
Port installed 11/11/15
Folfox started 11/18/15
Folfox stopped due to bad reaction
Reversal 2/17/16
CEA 2/3/16 1.7
CEA 3/31/16 1.3
CT Scan 4/12/16 All Clear
Port removed 4/21/16
CEA 5/24/17 1.4

ieowi
Posts: 202
Joined: Mon Jul 27, 2015 1:27 am

Re: Ok, 1st post on getting to know others

Postby ieowi » Wed Oct 28, 2015 3:08 am

Mon Jul 27, 2015 9:27 am
exactly ! :roll:
Father 58 yo , Colon cancer IV + 4 Lymph. 7/2015
K-ras Mutant,GNAS,FBXW7,PIK3CA, MSI-low
4 cycles irinotecan+FU5
developed abdominal met + lung met...Failed
4 cycle Oxaliplatin+folfox. peri met growing...Failed
unofficial trial !!!

User avatar
LeonW
Posts: 358
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: Ok, 1st post on getting to know others

Postby LeonW » Wed Oct 28, 2015 5:21 am

Midnight, Sun May 03, 2015.
11:59 pm to be precise.
Dec 2012 - CC 2 unresect liver mets, CEA 41.8 (MM 65yrs)
Jan 2013 - colectomy @ spleen 2/26 nodes IVa T3N1bM1a
Feb-Jul - 1x Xelox-7x Xelox/Avastin, shrinkage from #3
Aug - 2x PV embolization (both failed)
Sep 2013 - R liver resect, 25d hosp (liver failure/delirium, lung emboli, encephalopathy), no living cancer (pCR)
2014/15 - recovery, scopy: 2 polyps
2016 - new town/life
2018, scopy: 2 polyps
2018/20 low (1.0-1.4) CEAs/clean CTs: 4x2014, 6x2015-17, 3x2018-20
next June 2021!

arizona mom
Posts: 127
Joined: Thu May 08, 2014 10:25 am

Re: Ok, 1st post on getting to know others

Postby arizona mom » Wed Oct 28, 2015 7:05 am

May 2014
47 yrs mom of 4
5-7-14 - dx stage IV-3 liver mets. CEA 76
5-20-14 Folfox w/Avastin
7-24-14 - Colon/liver resection and HAI implant at MSKCC
11-18-2014 - scan- NED!
12-19-14 finished 12 treatments of Folfox (dropped Oxali after 9)
2-19-15, 6-18-15 clean scans - NED
9-11-15 mets in ovaries - hysterectomy - CEA 1.0
Folfiri 10/15 to 3/16
3-24-16 CT scan NED
7-1-16 It's back. 1cm in lung and 3 peri mets. :(

User avatar
OneFoot
Posts: 28
Joined: Fri Sep 11, 2015 7:29 am

Re: Ok, 1st post on getting to know others

Postby OneFoot » Wed Oct 28, 2015 7:54 am

OneFoot.... 09/11/2015....S3CC.... Nicci

Well, hopefully stage 3, just received my PAD and there's "something that is not a polyp" in my kidney...
Nicci, F, dx age 46
One Foot in Front of the Other
IIIB RectoSigmoid cancer, 09/2015
XELOX 11/2015
T3N1bM0? 3/25ln, kidney status suspicious
perineural and lymphatic invasions

Nik Colon

Re: Ok, 1st post on getting to know others

Postby Nik Colon » Wed Oct 28, 2015 8:08 am

Oops

DarknessEmbraced
Posts: 3576
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Ok, 1st post on getting to know others

Postby DarknessEmbraced » Wed Oct 28, 2015 8:26 am

DarknessEmbraced: Saturday, November 1st, 2014, 5:54pm
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

lpas
Posts: 1010
Joined: Wed Nov 19, 2014 11:11 pm

Re: Ok, 1st post on getting to know others

Postby lpas » Wed Oct 28, 2015 9:00 am

November 20th, 2014 (@ 12:11am!)
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo

sjring
Posts: 181
Joined: Mon Jun 30, 2014 3:16 pm
Location: Philadelphia, PA

Re: Ok, 1st post on getting to know others

Postby sjring » Wed Oct 28, 2015 9:07 am

Handle................ Joined..........aka........Stage.............dx
sjring...................6/30/14.......Steve......S4-CC.............Sept-2013
50 YO Husband & father of 2 teenagers.
DX 9/9/13 Stage 4 cc (at age 48)
16 Rounds FOLFOX + Avastin (Oct-13 to May-14)
Maintenance chemo - Avastin & 5-FU infusions (Jun-14 to Jul-15)
Jul-15: Mets to lymph nodes, resuming FOLFOX
Sep-15: MRI showed stability, back to maintenance chemo.

Ajane
Posts: 427
Joined: Tue Jul 23, 2013 3:03 am

Re: Ok, 1st post on getting to know others

Postby Ajane » Wed Oct 28, 2015 11:37 am

Ajane....7/23/13......Jane......1RC....7/13
7/13, T2, G3, Ultra-low. CEA 5.7 KRAS Wild, MSS
8-9/13 6 wks Xeloda/radiation
12/13 TEM pCR NED
5/15 CEA 4.6 PET 1.5 cm met, UL Lobectomy
6-10/15: Rounds 1-2 Xelox+Avastin; 3-8 Folfox+Avastin
10/15-4/16: 12 rounds Avastin
9/2016 CEA 4.2, 12 mm AP node
11/2016 CEA 4.3. PET/CT. 16mm AP nodal met removed
4 wks chemorad
2/2017 NED CEA 2.4
Carafate to tx esophageal ulcers caused by rad
Avastin maintenance postponed

2 Corinthians 12:9

User avatar
kellywin
Posts: 492
Joined: Wed Jan 23, 2013 4:46 pm
Location: Northern CA

Re: Ok, 1st post on getting to know others

Postby kellywin » Wed Oct 28, 2015 11:54 am

Handle................ Joined..........aka........Stage.............dx
kellywin.................01/23/13....Kelly........IIIC-NED....11/2012
Kelly, mom 14 yo girl
Dx 11/15/12 Rectal Cancer @ age 40
Stage IIIC
5.5 weeks Xeloda & Radiation - complete 2/5/13
Colectomy 3/12/13, 7 of 14 nodes positive - no ileo
4/24/13-8/20/13 - 5 rounds Xelox, 1 Xeloda only

JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Ok, 1st post on getting to know others

Postby JDinNC » Wed Oct 28, 2015 3:46 pm

JDinNC. aka Jan

DX 6/2013

Joined 7/4/2013

Colon....stage 4
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED


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