DH n I went for our results on our colonoscopies and also my Ct after 9 monts off chemo. He says colonoscopies are fine. He was pleased. But not so good news on my CT. Two new spots on my spleen and one on my lung. My fear has always been DH and I would not get better together, than one of us would relapse. He feels so bad but I keep telling him that's just the way it goes. Not to feel down on it. So I guess I go for Pet scan this Thursday to see what's up. Keep us in your prayers.
Jackie
The one thing I didn't want!
The one thing I didn't want!
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Re: The one thing I didn't want!
DH - dx Dec 2014, stage IV with bladder & peritoneal involvement - non-resectable
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Colostomy
FOLFOX failed
FOLFIRI failed
Tumor actually distending pelvic skin
Not a candidate for last-ditch pelvic exenteration
Stivarga finally begun 2/19/16
Tumor growing/fungating
Lonsurf started 11/18/16
Died 3/10/17
Re: The one thing I didn't want!
i'm so sorry
Elise
Elise
2012
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Feb - Stage 2 (T3 N0 M0) CC @ 30
Mar - R hemicolectomy, 18 LN
May-Nov 6 - Chemo (8 Xeloda)
2013
Feb - NED
2014
Feb - NED
May - Stage 4 - 1 liver met @ 32
Jun - Liver resection
Oct - CLEAN SCAN
Aug-Jan - FOLFOX 5 rounds, 5FU X 6
2015
Ap, Oct - NED
2016
Mar - NED
Re: The one thing I didn't want!
So sorry. I am praying for you.
Cathy
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
Re: The one thing I didn't want!
Danieljt wrote:DH n I went for our results on our colonoscopies and also my Ct after 9 monts off chemo. He says colonoscopies are fine. He was pleased. But not so good news on my CT. Two new spots on my spleen and one on my lung. My fear has always been DH and I would not get better together, than one of us would relapse. He feels so bad but I keep telling him that's just the way it goes. Not to feel down on it. So I guess I go for Pet scan this Thursday to see what's up. Keep us in your prayers.
Jackie
It might mean this is the current situation but hopefully they have a treatment plan for you and that you will eventually get better together. All we can do is keep the hope.
Oct 2012- thyroid cancer
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
June 19, 2015 Dx@39 yrs- CRC-T3N1M0
No vascular, no perineural invasion
Aug-Sept 2015- 28 rad/5FU
Oct 28, 2015- LAR- temp ileo, neg. nodes- 0/11
March 2016- 6 rounds Xeloda/positive CHEK2 mutation
August 2016- DCIS and decided post prophylactic double mastectomy
May 2018 - clean CT
Sept 2018-clean scope
Devastation, total shock- oct 2018, invasion of peri mets
Dec 20 - 2 round of folfox
Mom to 4 & 7 yrs kids - at least i brought them to this level of independence.
-
Bev G
- Posts: 5856
- Joined: Thu Jan 07, 2010 11:19 pm
- Facebook Username: Bev Golde
- Location: Quechee, VT
Re: The one thing I didn't want!
Hi Jackie,
I'm sorry to hear about your CT results. If I may say this is NOT as bad as it would be if these were your husband's results. Perhaps you remember that my husband Steve had stage IV lymphoma. He never had a completely clean scan, and his results would ebb and flow. Finally his scan in September of 2013 was quite bad. The lymphoma had pretty much spread everywhere. He had been on, I think, four different chemos. At that point we moved to Vermont to get him ready for a bone marrow transplant, which he had in Mat 2014. He has been cancer-free since then and is pretty much back to normal. I think it likely they will put you back on chemo for a while and then re-scan. The next chemo is likely to work very well. Lymphoma sucks, butt in a really different way than colon cancer, and in the whole scheme of things is fairly accompanied be a sense of real optimism. I think of you so frequently, sort of knowing what you're going through. Sending you warm best wishes.
(((Jackie))))
Bev
I'm sorry to hear about your CT results. If I may say this is NOT as bad as it would be if these were your husband's results. Perhaps you remember that my husband Steve had stage IV lymphoma. He never had a completely clean scan, and his results would ebb and flow. Finally his scan in September of 2013 was quite bad. The lymphoma had pretty much spread everywhere. He had been on, I think, four different chemos. At that point we moved to Vermont to get him ready for a bone marrow transplant, which he had in Mat 2014. He has been cancer-free since then and is pretty much back to normal. I think it likely they will put you back on chemo for a while and then re-scan. The next chemo is likely to work very well. Lymphoma sucks, butt in a really different way than colon cancer, and in the whole scheme of things is fairly accompanied be a sense of real optimism. I think of you so frequently, sort of knowing what you're going through. Sending you warm best wishes.
(((Jackie))))
Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo
9/13 ^17th clean PET/CT NED for now
Re: The one thing I didn't want!
Thanks Bev, I'm so glad to hear from you. Your opinion and your kind heart are a comfort to me. I no I'm not a colon ca patient but I seem to be drawn to this site. I also appreciate everyone's response, it makes me fell that someone cares.
Jackie
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Re: The one thing I didn't want!
I'm so sorry, Jackie. I don't know much about lymphoma but Bev's experience sounds really hopeful. Keeping fingers crossed for you that the doctors are able to develop a good treatment plan.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
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