Long time lurker here. I've posted a few times over the years. But i'm almost to my 5 year mark. Man it's been a long ride to get here but i've made it. I have my 5 year PET scan coming up on Nov. 9th. I was DX at age 29 with Stage 3C. I had 2 tumors, one was the size of a grapefruit and the other right behind it the size of a golf ball. 6 months of chemo. Ups and downs along the way. But i credit my wife, kids and whole family for helping me get here. I also thank you guys on here for giving me hope! So whatever comes of the PET scan i know i can beat it! Lastly i just wanted to tell the new people here that NEVER NEVER give up hope. There are a lot of dark times we endure, a lot times where i felt like giving up. But you have to keep going! I love each and everyone of you guys. Thanks.
Scott
Almost 5 years Later
Re: Almost 5 years Later
What a nice note. So happy you have made it to the 5 year mark. I am sure your scan will be great. Glad to hear from you!
Cathy
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
Diagnosed 10/14 low rectal cancer age 43
Clinical T2NXMX
Radiation/xeloda 12/14-1/15
LAR with temp Ileo 3/15
pT2N0M0, lymphatic invasion 0/37 nodes
4 xelox, 1 xeloda only
Reversal 9/15
Mom to 9&11 year olds
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brooks0729
- Posts: 18
- Joined: Thu Dec 09, 2010 5:42 pm
Re: Almost 5 years Later
cathy123 wrote:What a nice note. So happy you have made it to the 5 year mark. I am sure your scan will be great. Glad to hear from you!
Thank you so much!
Re: Almost 5 years Later
That's great news! 5 years. I wish you only the best on your upcoming scan.
Also thank you for stopping to post positive encouragement.
Fighting this damn disease day to day is emotionally exhausting. We all share the same frustrations, fear, pain, and worry. When you get good news from someone who is NED it is so encouraging!
Also thank you for stopping to post positive encouragement.
Fighting this damn disease day to day is emotionally exhausting. We all share the same frustrations, fear, pain, and worry. When you get good news from someone who is NED it is so encouraging!
Age 58
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice
DX Jul 2014 Stage IVb CRC metastatic, unknown primary, CEA 1826
Inoperable, Chemo for life
KRASwt
MSI: not tested
29 Jul 14 Port
30 Jul - 19 Jan 2015 Folfox (12 cycles) CEA 164.5
9 Feb 15 - 20 May Flofiri failed (6 cycles) CEA 417.0
17 Jul 15 - Initiated Vectibix CEA 555.5
17 Jul 2015 - 14 Jan 2016 Vectibix
8 Feb 2016 - 11 Apr 2016 Xeloda
26 Apr 2016 Hospice
Re: Almost 5 years Later
Ha, always good to hear good news stories of fellow 3c!
So glad for you and your family the wait is almost over and the chance of getting cancer is as small as the rest of the population again..
Enjoy living and life untill you are very old and wrinkly
Annemiek
So glad for you and your family the wait is almost over and the chance of getting cancer is as small as the rest of the population again..
Enjoy living and life untill you are very old and wrinkly
Annemiek
43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9
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DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Almost 5 years Later
Congratulations on being near the 5 year mark. Wishing you all the best with your PET scan.*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Almost 5 years Later
What a wonderful story of hope. Thanks so much for posting and congratulations!!
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Almost 5 years Later
Congrats. 5 years is a huge milestone.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
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brooks0729
- Posts: 18
- Joined: Thu Dec 09, 2010 5:42 pm
Re: Almost 5 years Later
Thanks you guys for the best wishes. I will post the results of my scan on Nov. 9th.
-
brooks0729
- Posts: 18
- Joined: Thu Dec 09, 2010 5:42 pm
Re: Almost 5 years Later
Annemiek wrote:Ha, always good to hear good news stories of fellow 3c!
So glad for you and your family the wait is almost over and the chance of getting cancer is as small as the rest of the population again..
Enjoy living and life untill you are very old and wrinkly
Annemiek
When i found out i had 3c i did the dumb thing and looked online at survival rates and i was crushed!! I thought my life was over then. Good thing i don't believe everything i see on the net
Re: Almost 5 years Later
never never never give up
stage 3A surgery 6/6/6 finished chemo jan 07
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
11 5FU/12 Levcouorin/10oxaliplatim
port removed jun 07
anal fistula surgery oct 05 may 07 feb 08 sep 08 jun 09
Re: Almost 5 years Later
brooks0729 wrote:When i found out i had 3c i did the dumb thing and looked online at survival rates and i was crushed!! I thought my life was over then. Good thing i don't believe everything i see on the net
I avoided them here but I stumbled across them in a Time magazine article. Came close to throwing up when I did.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Re: Almost 5 years Later
First I cried my eyes out and then I searched until I found more positive numbers.. And then decided it's coinflipping anyway and turned to focus on other stuff. Still creeps up on me when I lay awake at night.
Annemiek
Annemiek
43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9
Re: Almost 5 years Later
Hi Congratulations and prayers for your final Pet. I had my final lung X-ray and ct scan this past month. I was told I was in the group most likely to recur with a tumor in my appendix and also in my right colon. BUT decided to prepare for the worst but hope for the best. Also my sister who is a doctor told me there is a percentage who survive and it could be me. Feeling very lucky and blessed to be here. Sending you the best.
DXCCT3N2aMx 5/20LN
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
Folfox10/10-4/11
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health
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