I just found this webbsite yesterday! I was sitting in the dr office reading CURE and seen the article about the website. I sure wished I knew about this 2 years ago. I have enjoyed reading all the topics. I was diagnosed Feb 6 2004 when I was 33 years old. I'm doing very well after my resection and chemo. The only side effects that are still present is nueropathy in my feet. A very small price to pay for my quality of life.
I have done genetic testing and my results were inconclusive however the doc feel I have HNPCC and I am probably the start of a new mutation. I had my ovaries taken out Oct 05 as a precaution. I have a nine year old son. As most of you have posted I also had no signs or symptoms and was extremely anemic however there were no signs.
The best thing any of us can do is educate others and encourage support. I'm so glad to see many of you reaching out to others.
I would be happy to answer any questions that come my way.