Inoperable Stage IVs

[NIKMAKMOM]

Hi All,
I'm an inoperable stage 4...I was diagnosed with colon cancer 10/14, which was surgically resected because I was completely blocked. It was a successful surgery and no colostomy. However, I have mets to my liver, lungs and mediastinal lymph nodes. The reason for being inoperable is because the medial stinal nodes are inaccessible with surgery. Since I have mets in my liver and lung, we thought maybe reducing tumor load, but surgical intervention can't get them all, so it would not be beneficial. I'm a chemo lifer..started with folfox which helped to reduce size of all my tumors, and I am now on maintenance chemo 5fu and Avastin every 2 weeks. Its been 1 year and 25 chemo sessions later, and so far l'm still stable.

I'm always reaching for the SilverLining and keeping positive really helps!

[erinelainerose]

I was told "inoperable" due to location/size of my lesions. I'll be undergoing Y90 treatment on Thursday this week (day after tomorrow) for the right lobe. Left lobe to be treated in 4 weeks. Praying it will be effective as I'm almost down to my last two chemo options (Stivarga and Lonsurf). Pretty much decided I'm not going to use Stivarga, though.

I recently read information about MSI-high and MSS biomarkers (someone posted the link above to the Incurable Scientist's blog post about this). I'm waiting for my doctor's office to get me my report as to whether I was tested for this or not. I'm hoping I'm quite "unstable" as this could be a window of opportunity for a clinical trial.

If you don't mind my asking, what size are your tumors now? Anytime I mention anything other than the standard chemo, I get pushed back on - they act incredulous as if I am missing some huge piece of the puzzle. I do get what they (the oncs) are saying, but I want to try and think outside the box and not just slowly let the chemo whittle him away.

[erinelainerose]

I was told "inoperable" due to location/size of my lesions. I'll be undergoing Y90 treatment on Thursday this week (day after tomorrow) for the right lobe. Left lobe to be treated in 4 weeks. Praying it will be effective as I'm almost down to my last two chemo options (Stivarga and Lonsurf). Pretty much decided I'm not going to use Stivarga, though.

I recently read information about MSI-high and MSS biomarkers (someone posted the link above to the Incurable Scientist's blog post about this). I'm waiting for my doctor's office to get me my report as to whether I was tested for this or not. I'm hoping I'm quite "unstable" as this could be a window of opportunity for a clinical trial.

If you don't mind my asking, what size are your tumors now? Anytime I mention anything other than the standard chemo, I get pushed back on - they act incredulous as if I am missing some huge piece of the puzzle. I do get what they (the oncs) are saying, but I want to try and think outside the box and not just slowly let the chemo whittle him away.

I was told "inoperable" due to location/size of my lesions. I'll be undergoing Y90 treatment on Thursday this week (day after tomorrow) for the right lobe. Left lobe to be treated in 4 weeks. Praying it will be effective as I'm almost down to my last two chemo options (Stivarga and Lonsurf). Pretty much decided I'm not going to use Stivarga, though.

I recently read information about MSI-high and MSS biomarkers (someone posted the link above to the Incurable Scientist's blog post about this). I'm waiting for my doctor's office to get me my report as to whether I was tested for this or not. I'm hoping I'm quite "unstable" as this could be a window of opportunity for a clinical trial.

If you don't mind my asking, what size are your tumors now? Anytime I mention anything other than the standard chemo, I get pushed back on - they act incredulous as if I am missing some huge piece of the puzzle. I do get what they (the oncs) are saying, but I want to try and think outside the box and not just slowly let the chemo whittle him away.

I was told "inoperable" due to location/size of my lesions. I'll be undergoing Y90 treatment on Thursday this week (day after tomorrow) for the right lobe. Left lobe to be treated in 4 weeks. Praying it will be effective as I'm almost down to my last two chemo options (Stivarga and Lonsurf). Pretty much decided I'm not going to use Stivarga, though.

I recently read information about MSI-high and MSS biomarkers (someone posted the link above to the Incurable Scientist's blog post about this). I'm waiting for my doctor's office to get me my report as to whether I was tested for this or not. I'm hoping I'm quite "unstable" as this could be a window of opportunity for a clinical trial.

If you don't mind my asking, what size are your tumors now? Anytime I mention anything other than the standard chemo, I get pushed back on - they act incredulous as if I am missing some huge piece of the puzzle. I do get what they (the oncs) are saying, but I want to try and think outside the box and not just slowly let the chemo whittle him away.

This Thursday? Today? I hope all went well!!! Please let us know!

[AngelaN]

Hi Just to clarify - my husband did not have a liver transplant. The surgeon is a transplant surgeon/oncologic surgeon who is not afraid to be aggressive with treatment for the right patient.

[Nik Colon]

I just wanted to comment to anyone new here. Please feel free to start your own post so it does not get missed. On the main page, click where it says "New Topic"

[j'swife]

My DH had inoperable liver mets "too many to count" several were over 7 mm.
We went to Dr K at MSK after learning about her use of the HAI pump and it took less than 6 months until his successful resection.
Hope you find your path to that place soon..all the best