All is well. Dr. said in April 2017 he will pronounce me CURED. He said that the new info out says that 25% of Stage IV's are CURED and that once I passed the 3 year milestone post hepatic resection this past April, my chance of being in that 25% skyrocketed.
We do disagree on Vitamin D. He said he never tests it unless the patient demands it because the proof is all 'in retrospect' and there is no firm proof that it does anything for you. He wants me to take 200 IU's a day. Not happening! He did a Vit. D and Calcium today and said we'd just have to agree to disagree but he's worried about kidney stones (my calcium has been .8 over the high norm ONCE in 6 years, 10 months and that was 2 weeks ago). I told him I'll figure it out when I get my results and that 'in retrospect', I would love to be one of those who did take Vit. D3 and 5 years from now when he's telling all his patients to get their numbers up to 80- 100, that I'll be one of those survivors he's talking about.
Oh, just as a side note, tomorrow if our 45th Wedding Anniversary!
Officially NED - my onc visit
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Officially NED - my onc visit
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Re: Officially NED - my onc visit
Happy day today! Happy anniversary tomorrow!
I'd just go ahead & celebrate for 2 days. ; )
I asked our doc about vit d. He just said smokers are always low. Waiting to see him. I hope they tested for it! He sounded like he would.
I'd just go ahead & celebrate for 2 days. ; )
I asked our doc about vit d. He just said smokers are always low. Waiting to see him. I hope they tested for it! He sounded like he would.
Husband dx 1/13/15 St.2 CEA 7.1
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Chemo/25rad 2/15 till 4/24/15
5FU/leucovorin
Surgery 6/8/2015 Stage IIa T3N0MX microscopic cancer left
Watching 4 lung spots
0/5 lymph nodes. Lap. APR
25% less 5FU/leucovorin 7/14/2015 x 26 CEA 3.4
25% more 5fu 9/2015
9/16/15 CEA 7.7
1/16/16 @ 9.2 during allergy?
3/16 New lung spot 4x4 mm
6/16 CEA 6.9 spot 5x5
Re: Officially NED - my onc visit
Amazing news...congrats!
Stage IV rectal
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan
10/12 Cancerous polyp removed age 51
6/14 uLAR and resected liver met
12/14 finished FOLFOX / Avastin
1/15 ilio reversed = LARS!!!
1/20 onc said “cured!” - no further monitoring unnecessary
5/21 chest pain revealed new lung mets… radiation
10/21 maintenance avastin/xeloda
9/22 stivarga 2 weeks, d/c'd due to foot pain
10/22 vectabix + irinotecan
Re: Officially NED - my onc visit
Happy Happy day!
6/13 Age 45 mom of 11 and 13 yr old DX Stage IV liver mets
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
7/13 colon surgery
9/13 Folfox
11/13 Xeliri
3/14 more liver mets
4/14 Lung Met
4/14 Liver resect delayed;lung resect done
5/14 Surg not an option
9/14 Stivarga
3/15 Back to IV Chemo
6/15 Avastin
9/15 In Clinical Trial
Re: Officially NED - my onc visit
So glad this worked out for you and all was clear! Hope you enjoy a relaxed and anxiety-free weekend.
11/14 Dx sigmoid CC @ 45yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
12/14 Colectomy + hysterectomy
Stage IIIB, T3N1bM0, 2/20 nodes, MSS, G2, KRAS(A146T), TP53, SMAD4, ERBB2, CEA 1.0
2/15-7/15 XELOX & celecoxib
2/19 clean scope
11/19 clean CT
Ongoing cimetidine & other targeted supplements
Mom to a 6 & 8yo
Re: Officially NED - my onc visit
You must have cried a lot! 
Great news, I am happy for you.
Great news, I am happy for you.care giver to mom 68 y/o
2002: right breast cancer stage II 2cm, 4/19 ln,
mastectomy
chemo: 4xdox+4xtax+4xcmf
2013: left bc stage I 1 cm, lymph nodes clear,
mastectomy, tamoxifen
8/15 sigmoid colon cancer stage IV,
5 cm, unresectable/fixed to the wall,
kras mut codon 13
lvr met 13 mm, peritoneal carcinomatosis, CEA 1440
8/15 folfiri started
10/15 CEA 1071 switched to folfox
2002: right breast cancer stage II 2cm, 4/19 ln,
mastectomy
chemo: 4xdox+4xtax+4xcmf
2013: left bc stage I 1 cm, lymph nodes clear,
mastectomy, tamoxifen
8/15 sigmoid colon cancer stage IV,
5 cm, unresectable/fixed to the wall,
kras mut codon 13
lvr met 13 mm, peritoneal carcinomatosis, CEA 1440
8/15 folfiri started
10/15 CEA 1071 switched to folfox
Re: Officially NED - my onc visit
Wonderful news! Happy anniversary!
Jackie
Jackie
70 male stage 3b cc
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
Dx 5/9/14
Resection 7/1/14
dx 9/14
65 yr wife DLCl
Sct 3/21/19 Ned last 8 mo.
-
DarknessEmbraced
- Posts: 3817
- Joined: Sat Nov 01, 2014 4:54 pm
- Facebook Username: Riann Fletcher
- Location: New Brunswick, Canada
Re: Officially NED - my onc visit
Wonderful news and happy anniversary!
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured!
Re: Officially NED - my onc visit
Hugs Di. We have been on this journey for quite a while. If you can survive marriage for that long , cancer doesn't stand a chance. I reach 17 years in Jan.I'm going thru another mini crisis at the moment. The targin (oxycodone/naloxone) that I have been on for over 18 months has to stop. I have found my blood pressure has been fluctuating wildly. My nephrologist said it is from pain. I have lived with pain for so long that it suddenly hit me that he is right. At sometime during every day I am going to hit 10. I am just so used to living with it. He said the pain is from opioid induced hyperalgesia. The oxycodone is now causing pain , not stopping it. I have been warned by two pharmacists that I face 16-20 weeks of very ordinary dose lowering withdrawl. They both said I really won't enjoy it. Then what . My neph has put me on a lower dose nsaid. He has to do bloods every two weeks to make sure he is not killing me. So congratulations for surviving but commiserations for what you may have to endure during that survival, survival is not easy, Hugs Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo
-
dianetavegia
- Posts: 2731
- Joined: Sat May 16, 2009 8:47 pm
- Facebook Username: Diane Weldy Tavegia
- Location: Villa Rica, Georgia
Re: Officially NED - my onc visit
LABS came by email and the slightly elevated calcium of 11.1 dropped 2 points. Everything was perfect. On 6,000 IU's of Vit. D3, my values were 87.3 so I'm very pleased. My onc figured out the cause of the calcium concern. I also read a possible reason. I had taken Alka - Seltzer that morning due to a queasy tummy/ nerves. Also, I read a very common cause for a false elevated Serum Calcium is a tight tourniquet and pumping the fist prior to the blood being drawn. I insisted the gal loosen the tourniquet and relaxed my hand during the blood draw.
So. That was more good news! CEA was excellent and down almost a full point even tho the previous one was also normal. Mine jumps from 2.4 to 3.4 except when I had a horrible sinus infection and bacterial tonsillitis.
Thanks for the well wishes!!
Ron, I developed mechanical allodynia on my legs and found a study that says it's caused by CNS damage from FOLFOX. Feel better my friend!
So. That was more good news! CEA was excellent and down almost a full point even tho the previous one was also normal. Mine jumps from 2.4 to 3.4 except when I had a horrible sinus infection and bacterial tonsillitis.
Thanks for the well wishes!!
Ron, I developed mechanical allodynia on my legs and found a study that says it's caused by CNS damage from FOLFOX. Feel better my friend!
Last edited by dianetavegia on Fri Oct 09, 2015 8:34 pm, edited 3 times in total.
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
Stage IV PET = 1.5cm liver met. HR 4/11/12
14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc
“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2
-
RickWhosoever
- Posts: 47
- Joined: Sun Sep 27, 2015 11:47 am
Re: Officially NED - my onc visit
Congrats!!!
Jan '15 Dx Stage 2 Rectal Cancer
5 weeks chemo/radiation
May '15 LAR
Oct '15 Finished 8 cycles of Oxi & Xeloda
Now - trying to live life to its fullest
5 weeks chemo/radiation
May '15 LAR
Oct '15 Finished 8 cycles of Oxi & Xeloda
Now - trying to live life to its fullest
Re: Officially NED - my onc visit
Oh Diane ...I'm so so happy for you. I told you that you would be next after Bev. In a year and a half you will be officially cure...I hope this is a starting trend for many more here.
Happy dance,
Jan
Happy dance,
Jan
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
Re: Officially NED - my onc visit
Congrats on the good report. I asked my doctor about vit D. He said it's the new "in" vitamin, and I can take it if I want. I do take it.
Also, congrats on your anniversary. We celebrated our 45th this past August.
Also, congrats on your anniversary. We celebrated our 45th this past August.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.
Re: Officially NED - my onc visit
Awesome news!!!! Happy Anniversary!
Cj
Cj
DX Stage IIIb RC, T3N1M0, April 2010, 51
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED
6 wks Xelox/rad 6/10
resection, temp illeostomy 8/10 Complete response!
12 rounds FOLFOX for clean up 9/10, Allergic to Oxi, started Xeloda only 12/10
Ileo takedown 9/28/11
4/2020 NED
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