Lingering cold sensitivity

Please feel free to read, share your thoughts, your stories and connect with others!
Post Reply
User avatar
cmewrrie
Posts: 168
Joined: Fri Mar 13, 2015 9:03 pm

Lingering cold sensitivity

Postby cmewrrie » Thu Oct 08, 2015 4:51 pm

14 days past infusion and DH still can't drink anything even slightly cold without that swallowing glass feeling. I expected that to only last a few days. Anyone else have it longer?
wife of DH (04/24/15 dx: age 43) Low RC T3N0M0 stage 2
4/27/15 clear CT
5/18 - 6/25 chemo/rad (ended xeloda on 6/19 due to side effects)
8/12/15 - ULAR scheduled - APR performed due to location - path showed T1N0M0
9/25 begin 5 rounds of xelox
10/30/15 - switch to xeloda only due to allergic reaction
1/22/16- last xeloda!
3/27/16 - post treatment CT - clear except soft tissue presacral area (possibly scar tissue) CEA .5
4/20/16 - post treatment colonoscopy
Top
Ontario Guy
Posts: 278
Joined: Fri Aug 03, 2012 7:55 am

Re: Lingering cold sensitivity

Postby Ontario Guy » Thu Oct 08, 2015 6:05 pm

Oh my, yes. After about my third infusion, I couldn't have any contact whatsoever with anything cold for several months. That included cold beverages, more's the pity.

Just had to put up with it.

Best,

OG
Top
Joannerogers
Posts: 260
Joined: Tue Jun 16, 2015 4:50 pm

Re: Lingering cold sensitivity

Postby Joannerogers » Thu Oct 08, 2015 8:53 pm

Yes I had my infusion a week and a half ago and I still can't have anything cold. For me it progressively lingered more with each infusion.
53yo married 27 years, 2 children, 24 and 25
Diagnosed april 23,2015 rectosigmoid
Starting CEA 1845
Port placement and liver bx April 27
Folfox started april 29
Avastin added on May 6
Stage IV crc with mets to 50% of liver

10/13/15 dc'd transfusion #12...toxic
Pet/ct scan on 11/3/15
20% liver resected all margins clear 11/30/15
8/18/15 cea 21.
9/15/15 cea 13.9
10/13/15 cea 14.4
1/22/2016 cea 2.5
LAR 02/15/16 all clear
Top
User avatar
horizon
Posts: 1670
Joined: Tue Apr 12, 2011 10:10 pm

Re: Lingering cold sensitivity

Postby horizon » Thu Oct 08, 2015 9:16 pm

Didn't ever have it that long but microwaved tap water was my friend during those fun times.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 13 years NED). Is this real life?
Top
Nik Colon

Re: Lingering cold sensitivity

Postby Nik Colon » Thu Oct 08, 2015 11:15 pm

You did say it's being cut down, right? Hopefully that will help, if not, might be best to get off the oxi completely. It shouldn't last that long, if so, that's not good. Don't want to get permanent as some people have. Might want to try irinotecan instead.
Top
orcasres
Posts: 836
Joined: Mon Jul 01, 2013 10:23 pm
Location: Orcas Island, WA

Re: Lingering cold sensitivity

Postby orcasres » Fri Oct 09, 2015 11:08 pm

I had 8 oxi treatments. I was sensitive to cold nearly the entire time between treatments. I was warned that this could happen and was just glad it was winter and I could forgo cold drinks for the duration of the treatments. Lois
63 yo F
Colon resection Sept. 2010
pT3N0M0 Stage 2A
Medullary Tumor 6.5cm long
Lymphovascular invasion
Lynch negative
12 FOLFOX 11/2010 to 5/2011 8 w/Oxi
NED so far
Top
CoachDan
Posts: 47
Joined: Wed Apr 22, 2015 5:59 am
Location: Limerick, PA

Re: Lingering cold sensitivity

Postby CoachDan » Mon Oct 12, 2015 10:08 am

The cold doesn't bother me so much, but after my 2nd treatment last week, I have a lingering bad taste in my mouth. It hasn't curbed my appetite too much yet, but I can see that happening if it gets worse. Can I hope for improvement between treatments or will this last for the whole ride?
47 yo Husband and Father of 13 yo son and 11 yo daughter
DX 4/9/2015 - Rectal Cancer stage 3c
Radiation/Xeloda started 5/6/2015, ended 6/15/2015
APR Surgery 8/14/2015
Folfox started 8/23/2015
Top
plastikos
Posts: 351
Joined: Wed Jan 14, 2015 6:09 am

Re: Lingering cold sensitivity

Postby plastikos » Mon Oct 12, 2015 10:28 am

I think different patients will have different experiences. But yes it is possible.
St. IV Colon CA @ 37, male, Kras wild, MSI-high (2014)
11/2014 Right Hemicolectomy + Liver Resection
12/2014 - 6/2015 FOLFOX + Cetuximab
10/2015 - Recurrence liver
Liver resection 10/2015
FOLFIRI 11/2015 - 5/2016
Recurrence liver, nodes 11/2016
Pembrolizumab started 12/2016 -> pseudoprogression(?) -> biliary obstruction -> biliary stenting
Chemo 4x: most mets inactive and smaller on PET-CT
March 2017 - Back on Pembrolizumab again
Sept 2017 - SIRT - > NED
2019 NED
Top
JDinNC
Posts: 771
Joined: Fri Jul 05, 2013 9:49 pm
Location: Murphy, N.C.

Re: Lingering cold sensitivity

Postby JDinNC » Mon Oct 12, 2015 12:18 pm

During my 6 months of chemo..I had to drink everything at room temperature. I was surprise to discover the glass pain right after coming home from my first treatment. Whenever we went out to dinner I had to bring my own at room temp. drink with me because everyplace we went their drinks were always cold.

Once my treatments were over...swallowing got back to normal
61 y/o female @ DX...........
T3N0M1
6/13 DX- stage 4
Sigmoid colon cancer.
One met to lung
7/13 colon resection
8/13 lung resection
7/17 four years....NED
8/18 five years....NED
MELANOMA
63 y/o @ DX
6/15 stage 2a
7/15 surgery on arm
7/15 NED
4/16 recurrance
5/16 remove metastasis from back
5/16. Started immunotherapy
8/16 discontinue treatment
7/18...PET scan...NED
Top
Post Reply

Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Google [Bot] and 375 guests

Powered by phpBB® Forum Software © phpBB Limited